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Re: Stage IV Endo, Conception and Cyst questions, my first post!
From: NWeber (anonymous@obgyn.net)
Tue Mar 31 21:20:29 2009
Ally,
You might also benefit from this. Try it near ovulation. One month of
trying with this and it worked.
http://www.early-pregnancy-tests.com/softcup.html
At Tue, 31 Mar 2009, Ally wrote:
>
>Hi Marissa!
>
>I have stage IV endo too and have been TTC since 08/06. I didn't even
>know I had endo until a year into our TTC journey. I had endometriomas
>everywhere on u/s! I had surgery with an OB/GYN oncologist and was told
>I should be "good enough to get pregnant". Just 7 weeks later I ended
>up seeing a specialist and was told that I really needed to have surgery
>again (excision). That surgery ended up being 7 hours and included a
>bowel resection. I can tell you that none of my bowel symptoms were
>improved after my first surgery, but the results from the bowel
>resection were amazing!
>
>Unfortunately, the excision surgery was over a year ago and I am still
>not pregnant. We tried a couple rounds of Clomid and the only result
>was more ovarian cysts. I was then put on LoOvral for continuous birth
>control to try keep more cysts from forming. After 4 months, 50% of the
>cysts had disappeared! However, after 5 months on the CBCP, I began
>spotting and did so for 2 weeks. Just last week I took 5 days off the
>pill to have a period and hopefully that fixes things. The plan is to
>go off the birth control in a few weeks, TTC, and repeat u/s in 2 months
>to check for cysts. We are also waiting to adopt!
>
>Best of luck to you. You are not alone...
>
>At Tue, 31 Mar 2009, Marissa wrote:
>>
>>This might get a little long, so I apologize first! I am 26 and was
>>diagnosed with endo at 19. I have since had 4 laparoscopies, multiple
>>trips to the ER due to ovarian cysts and no luck in 3 years trying to
>>have a baby. I am Stage IV. My last surgery was in Sept 2008. The
>>results were that I had a 4cm cyst on my left ovary, extensive pelvic
>>adhesions, and multiple endo "sacs". My Dr. (who has been my Gyn since
>>day 1) was able to remove everything except for some adhesions that went
>>from my uterus to my rectum and bowel. He said that "it would have been
>>like trying to remove wallpaper from a wall without damaging the
>>drywall". I have painful bowel movements and horrible periods with a
>>lot of clots. My first question would be, do i need to worry about
>>theses adhesions being connected from the bowel to the uterus, and will
>>they affect pregnancy if and when that happens?
>>Second, I was placed on Lo-Estron (sp?) in Dec. after a Lumbar MRI
>>showed 2 cysts back to back on my right ovary. Both cysts measured
>>1.8cm, not too bad, and they were simple cysts. I went for a follow-up
>>ultrasound in Feb. which revealed, as I had suspected and felt 2 weeks
>>prior, that one cyst had ruptured and dispersed. The other had grown to
>>2.6 cm. I was then placed on Femcon FE. I started my period 2 weeks
>>ago today (Tues. ) and started the new pills at the same time. I am
>>STILL bleeding/spotting now 15 days later. I have been on 12 other
>>treatments, all from Ortho tri-cyclene, Lupron, Depot Provera, Danazol,
>>Seasonale, and many others. My husband and I have been TTC for 3 yrs,
>>and I feel like, again, I am at a standstill. I have migraines at least
>>2-3 times every few months that I am being treated for. I also have
>>chronic low back pain that I saw a chiro for 12 vists with no real
>>improvement. I am a perfect weight for my height, so I can only
>>attribute it to the endo. What else can I do from here?
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