ENDO Messages for March, 2009: Re: Stage IV Endo, Conception and Cyst questions, my first post!

Re: Stage IV Endo, Conception and Cyst questions, my first post!

From: NWeber (anonymous@obgyn.net)
Tue Mar 31 15:03:33 2009

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Hi Marissa, I am also 26, and have been there. All I can tell you is you need to get to an endo specialist. I had 3 surgeries with a regular obgyn specialist, each time them telling me they got it all, and my entire pelvic cavity was still covered in the endo. You need a very skilled surgeon to remove stage 4 and there are only a few in the country that can do excision for you. This will allow them to remove the disease properly and it will help your chances of conceiving. You do not want to get pregnant with these kind of adhesions. They will cause lots of pain, and increase issues as the pregnancy progresses.

I had my excision surgery in December and I am now 5 weeks pregnant with our first child with no fertilty treatments, just having the excision surgery fixed my issues. I also have no stomach issues, back pain, or period issues anymore. All of your symptoms are classic of endo and you most likely have it in the pouch of douglas, that is where your back pain is coming from.

I am attaching links of some specialists. I would recommend sending your records to the CEC for a free record review. They will give you a better idea of what you need to do for treatment.

Here are the links. Feel free to email me. davidandnicole@sunflower.com

Drs. Albee & Sinervo Center for Endometriosis Care (CEC) Atlanta, GA http://www.centerforendo.com/

Dr. Andrew Cook Vital Health Institute Los Gatos, CA http://www.vitalhealth.com/

Dr. David Redwine Bend, OR http://www.endometriosissurgeon.com/

Dr. Iris Orbuch New York, NY Phone: (212) 343-3040

Dr. Martin Robbins Scarborough, ME http://www.advancedwomenshealthcare.us/

Dr. John Dulemba Denton, TX http://www.thewomenscentre.net/home.nxg

CANADA:

Dr. K. Lie Toronto,Ontario

At Tue, 31 Mar 2009, Marissa wrote: >
>This might get a little long, so I apologize first! I am 26 and was
>diagnosed with endo at 19. I have since had 4 laparoscopies, multiple
>trips to the ER due to ovarian cysts and no luck in 3 years trying to
>have a baby. I am Stage IV. My last surgery was in Sept 2008. The
>results were that I had a 4cm cyst on my left ovary, extensive pelvic
>adhesions, and multiple endo "sacs". My Dr. (who has been my Gyn since
>day 1) was able to remove everything except for some adhesions that went
>from my uterus to my rectum and bowel. He said that "it would have been
>like trying to remove wallpaper from a wall without damaging the
>drywall". I have painful bowel movements and horrible periods with a
>lot of clots. My first question would be, do i need to worry about
>theses adhesions being connected from the bowel to the uterus, and will
>they affect pregnancy if and when that happens?
>Second, I was placed on Lo-Estron (sp?) in Dec. after a Lumbar MRI
>showed 2 cysts back to back on my right ovary. Both cysts measured
>1.8cm, not too bad, and they were simple cysts. I went for a follow-up
>ultrasound in Feb. which revealed, as I had suspected and felt 2 weeks
>prior, that one cyst had ruptured and dispersed. The other had grown to
>2.6 cm. I was then placed on Femcon FE. I started my period 2 weeks
>ago today (Tues. ) and started the new pills at the same time. I am
>STILL bleeding/spotting now 15 days later. I have been on 12 other
>treatments, all from Ortho tri-cyclene, Lupron, Depot Provera, Danazol,
>Seasonale, and many others. My husband and I have been TTC for 3 yrs,
>and I feel like, again, I am at a standstill. I have migraines at least
>2-3 times every few months that I am being treated for. I also have
>chronic low back pain that I saw a chiro for 12 vists with no real
>improvement. I am a perfect weight for my height, so I can only
>attribute it to the endo. What else can I do from here?

Next message: annie: "Re: To Annie- TTC"
Previous message: anonymous: "Re: Proctalgia Fugax"
In reply to: Marissa: "Stage IV Endo, Conception and Cyst questions, my first post!"
Next in thread: Ally: "Re: Stage IV Endo, Conception and Cyst questions, my first post!"

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