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Re: Proctalgia FugaxFrom: anonymous (anonymous@obgyn.net)Tue Mar 31 13:56:57 2009
I have had severe pain exactly as you described it. I vomit, sweat etc from the pain. It is brought on by sex, sometimes even the thought of sex, bowel movement or just for the hell of it it comes on out of no where. I have kept a log of food etc, to no avail. I find that if I am dehydrated it comes on. I have tried, advil, hot bath , over the lumbar area of my back, vibration, TENS electric stimulation to my lower back and all had some calming effect, but not any more. It was silent for a while after I started consistently with Yoga, but the pain is now coming more often, but less intense. I have found that i take 2 advil and stretch in a 1/2 kneeling position, the pain subsides. I believe the pain is coming from lumbar area, as I started with this muscle spasm the same time I had my first bout of siatic pain. Whether is is nerve problem induced or straight muscle spasm I do not know. I hope this helps. At Sun, 19 Jun 2005, anonymous@obgyn.net wrote: > >At Mon, 20 Dec 2004, Lisa wrote: >> >>Thank God, thank God I found you guys. I've suffered for my entire >>adult life with this nameless condition and I finally found it tonight >>here. >> >>It's horrible to wake up in the middle of the night with a pain so >>intense you think you're dying. I've walked the floors, paced, prayed, >>cried, begged, passed out. Oh, occasionally it might happen in the >>middle of the day, but it almost invariably is a night thing. After I >>get an attack, the whole next day I'm lifeless and weak. >> >>A gastroenterologist I consulted about 8 years ago ran the whole gamut >>of tests, internal and external, and could find nothing wrong with me. >>He looked at me like I was off my nut when I told him it felt like >>someone doing a procto exam with their fist. He finally gave a >>frustrated diagnosis of "possibly spastic colon" and put me on a 40 >>grams of fiber a day regimen! Oh, I followed it for a while, at least >>till there was no hide left on my poor raw behind, then I dropped back >>to a reasonable amount when not even the fiber stopped the pain. After >>all, I've always eaten healthy, and I have no problem with either >>diarrhea or constipation. >> >>So I've lived with this for years, scared he missed something, scared it >>could be colon cancer or some other horrible life-threatening illness. >>After all, what else could hurt so bad? But tests are expensive, and >>even though you don't want to hear you've got something wrong, it's just >>as frustrating for you to hear that they can't find anything. You pay >>off all those medical bills over the next several months feeling like an >>idiot, and it makes you even more inclined not to go back and get more >>in debt for nothing. >> >>All I can say is that if I could reach inside and touch the pain, it >>would be a few inches inside the colon. Sometimes it feels almost like >>hard period cramps, and it radiates into my tailbone and into my female >>organs too. The pain is always, though, centrally in the colorectal >>area. I just wish I could reach in and massage away the hurt, but >>instead all I can do is pray it's a short spasm and not a long drawn-out >>one. I've even had to lay off from work or go in late the next day I'd >>be so wrung-out from wrestling with the pain. >> >>I'm just curious to hear what everyone else does that actually gives >>relief. The only medicine I've ever gotten any relief with is plain old >>aspirin. Tylenol and other NSAIDS don't seem to bring any, and I'm not >>sure if the aspirin actually works or if the pain is subsiding on its >>own. At any rate, the time it takes for anything to kick in is an >>agonizing wait. >> >>Anyway, thanks for making your website available to women like me who >>have tried everything else and just need to find some common ground. >>Maybe I'll get a little better educated from the others on here who have >>learned to live with this most bizarre disorder. > >-- >Try moist heat. I have had proctalgia for many years and have tried everything imagninable to relieve the pain because it is so intense, even a swig of whisky...and I rarely dring any alchoho...but I was desperate. Then finally I discovered that moist heat relieves the pain very quickly. Many internet resources say to fill a tub with hot water and sit in it. However, by the time you do that the pain is beginning to subside on its own. I heat a moist towel in the microwave and then wrap it in another towel, or in a plastic bag with another towel around it. The moist heat helps the pain to go away much faster than anything I have ever tried. >
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