Re: I have Endometriosis.. I think?
From: E. (anonymous@obgyn.net)
Mon Mar 30 16:57:13 2009
A lot of women have the same symptoms when they got their pd...and they
ended up having endometriosis.
Your doc may not have seen it because many gyns aren't capable of seeing
endo
in all its various forms. Many specialists are though. Unfortunately,
there are only a handful of them and some of them do not take insurance.
Here are the weblinks to a few endo specialists, you can read what they
say about endo:
Dr. Cook in CA http://www.pelvicpain.com/
Dr. Lyons in Georgia http://www.thomasllyons.com/procedures.htm
Dr. Robbins in Maine http://www.endoexcision.com/
Dr. Liu in TN http://www.gyndr.com/
and Dr. Redwine http://www.endometriosistreatment.org/
There are two doctors, Dr. Orbuch and Dr. Seckin, who are in
NYC and specialize in endo. You can check them out at
ratemds.com.
You may also want to check out the Endometriosis Association.
They require a membership fee to join, but you can order
books and other information without joining.
You can check it out here: http://www.endometriosisassn.org/
If your doctor says that he found no endo, he could very well be
mistaken. Unfortunately, you'll have to have another lap with a
specialist to find out.
Every time you have a surgery, you can get adhesions, which will only
add to the endo pain. That's why it's important to find a doctor who
knows what they are looking for before they open you up. Multiple
surgeries can make your endo worse down the road.
At Sun, 29 Mar 2009, Jewels wrote:
>
>I've had problems with my menstrual cycle since i was about 8 (I was an
>early bloomer). It has never been normal and ALWAYS painful. This pain
>left me screaming on the floor with horrible pain! Symptoms like
>extremely heavy periods which would last from 2 weeks to a month,
>extreme anal pain, ovary pain, back aches, vomiting, burning urination,
>and overall feeling like garbage. I've been to the emergency room and
>doctor's office so often, many of the nurses and doctors recognize me by
>name. For years doctors had been unable to detect anything wrong with
>me and always sent me home with strict instructions to take tylenol for
>the pain and to always keep a hot water bottle by my side. My family
>was so used to seeing me lying on the floor screaming in pain, that they
>would leave me there until i started to calm down. Last year, i was
>making my usual visit to the emergency room, in hopes of them magically
>discovering... anything! I hated going over and over again only to be
>told there was nothing wrong when i clearly KNEW there was. Finally, an
>angel. He had asked me if i had ever heard of ENDO and told me to ask
>my family doctor. Now, a year later, i've gone to see a specialist who
>had agreed that this might very well be it. I had the surgery. After
>two days he phoned and said he found..nothing. He found nothing. He
>told me that even though he didnt see anything, it doesnt mean its not
>there. For now he's just going to see if he can try and control the
>pain until he can come up with something else. So do i have it? Do i
>not have it? I'm lost. For now i'm on contraceptives and estrogen and
>advil and.. i hate it. None of this is helping and i dont even know if
>it's really there. I've suffered with this pain for about 11 years now
>and i am DESPERATE. Could anyone tell me if any of this has happened to
>them? Are there any other illnesses with similar symptoms? I'm so tired
>of waiting and i don't have the support women in this type of situation
>should have. My doctors are annoyed, they don't really book me and i've
>tried soo many.
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