Re: I have Endometriosis.. I think?
From: anonymous (anonymous@obgyn.net)
Sun Mar 29 23:00:52 2009
Wow! you poor thing, 8?!!
Was the doc you saw an endo specialist? An excision specialist? Lots of
docs, even those who say they are specialists, do not know enough about
endo....I too was told I didn't have endo by an ob/gyn who said she knew
endo...when I went to a real specialist for excision, they removed a LOT
- all over the place!!
please look into these sites, the CEC will review your records for free
centerforendo.com
endometriosissurgeon.com
pelvicpain.com
endoexcision.com
erc.activboard.com/
endo-resolved.com
endometriosis.org
At Sun, 29 Mar 2009, Jewels wrote:
>
>I've had problems with my menstrual cycle since i was about 8 (I was an
>early bloomer). It has never been normal and ALWAYS painful. This pain
>left me screaming on the floor with horrible pain! Symptoms like
>extremely heavy periods which would last from 2 weeks to a month,
>extreme anal pain, ovary pain, back aches, vomiting, burning urination,
>and overall feeling like garbage. I've been to the emergency room and
>doctor's office so often, many of the nurses and doctors recognize me by
>name. For years doctors had been unable to detect anything wrong with
>me and always sent me home with strict instructions to take tylenol for
>the pain and to always keep a hot water bottle by my side. My family
>was so used to seeing me lying on the floor screaming in pain, that they
>would leave me there until i started to calm down. Last year, i was
>making my usual visit to the emergency room, in hopes of them magically
>discovering... anything! I hated going over and over again only to be
>told there was nothing wrong when i clearly KNEW there was. Finally, an
>angel. He had asked me if i had ever heard of ENDO and told me to ask
>my family doctor. Now, a year later, i've gone to see a specialist who
>had agreed that this might very well be it. I had the surgery. After
>two days he phoned and said he found..nothing. He found nothing. He
>told me that even though he didnt see anything, it doesnt mean its not
>there. For now he's just going to see if he can try and control the
>pain until he can come up with something else. So do i have it? Do i
>not have it? I'm lost. For now i'm on contraceptives and estrogen and
>advil and.. i hate it. None of this is helping and i dont even know if
>it's really there. I've suffered with this pain for about 11 years now
>and i am DESPERATE. Could anyone tell me if any of this has happened to
>them? Are there any other illnesses with similar symptoms? I'm so tired
>of waiting and i don't have the support women in this type of situation
>should have. My doctors are annoyed, they don't really book me and i've
>tried soo many.
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