ENDO Messages for March, 2009: Re: Pain Meds forever?

Re: Pain Meds forever?

From: anonymous (anonymous@obgyn.net)
Sun Mar 29 01:04:34 2009

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Amazingly, I just found out my insurance now does cover acupuncture. It didn't used to....

I don't know how else to describe the differences betweens muscle relaxers and pain killers! One relaxes muscles, the other kills pain! I don't know all the info on this stuff, but some years ago one of my doctors suggested xanax. It's an anti-anxiety med, i think, but also relaxes muscles. I took it with pain killers (i think i took OTC pain stuff at the time) and it helped relax the deep uterine muscle cramps...I couldn't drive on it, and usually fell asleep, but hey! it did help a LOT with the pain!

This was not my ob/gyn who recommended it, but she didn't seem to take my pain too seriously anyway :(

I don't take it now, because post-op, narcotic pain killers do the job those painful period days...

I really do think some of my pain is related to serious muscle spasms from all those years....I'd like to try phys therapy...Walking still bothers me, too, at times (when I used to walk miles!) and I wonder if adhesions are making me tired too.....

Hmmm...so you don't have a uterus, right? I would assume all the muscles around that area could be cramped up too....I can feel when I stand up at times that it seems like my butt is really tight, lol! It never used to feel this way. at times it feels like my organs are 'braced' for some kind of spasm. I wanted to wait until I had really healed from surgery to try phys therapy...

Do the meds you take help? Have you asked the specialist for ideas on things that might be wrong?

The acupuncturist I go to does trigger injections with a homeopathic anti-spasm / anti-pain liquid (I guess?) I think it does help, but I have to catch up to where I was before (I didn't go some months this winter). When they called to ask about injections, they found out my insurance does cover acu.

Oh, and I did notice when I eat some of the 'no no' foods on the IC diet, my pelvic pain is worse. There's also a site that has a list of foods that can make pelvic pain worse (includes things like peanut butter).

let me see if I can find it....I just started drinking coffee 1/2 and 1/2 (reg / decaf) again, which I couldn't do for a couple of years...it gave me bowel spasms nd pain, since my uterus was attached to my bowel :(.....I was so thrilled to feel almost normal drinking some coffee, but I think it might be contributing to some of the pelvic pain...sigh...

I see some of the spices on the 'no' list are also in anti-oxidant supplements I take! Wow, I've had cinnamon every day for months now because it's supposed to be good for PCOS / blood sugarI really don't remember what it was like when I felt normal for more than a day in a row! I was eating peanut butter quite a bit because i had given up red meat! (arachadonic acid there...) and then my B vitamins also got low from that....

round and round!

http://www.continencenurse.net/pelvic_health/articles/therapies.html

This site above is pretty good, it has a mention of muscle relaxation training (i think that is what i need!)

It's interesting what's mentioned here about histamines...I've had levels that tested high...vitamin c and quercetin are supposed to be natural anti-histamines, but I wonder if vit c is a problem for IC?

http://www.pelvicpain.org.uk/forum/viewtopic.php?p=1560&sid=74b22fc5c746d74c00a5f203149f3cd5

ooh! i also got a TENS system from HSN (not much $ at all)...I've had this used on me before for other phys therapy, I want to try it, but am a little afraid...

Oh my goodness! this has happened before, I vow to eat more healthily, get some pain, and then find that a lot of the foods I've eaten are on lists like this! I don't check the list before I start the new regime, because often I feel pretty good BEFORE...and then I see that I've eaten a lot of potentially pain causing foods....

http://www.paralumun.com/bladder.htm

At Sun, 29 Mar 2009, BrokenKitty wrote: >
>It was a well known specialist, yes. I have been doing the endo diet
>for a few months and that does help, but the pain is still there. I am
>also supposed to start physical therapy for pelvic floor muscle spasms,
>hoping that helps too. Wondering if insurance covers acupuncture? And I
>just started yoga again this week. I try to walk for 30 minutes a day,
>but it hurts and is still really tiring.
>
>What's the difference between muscle relaxants and pain killers? I am
>currently on oxycontin and percocet.
>
>Thanks.
>
>At Sat, 28 Mar 2009, anonymous wrote:
>>
>>Is it a well known specialist?
>>
>>I still have pain, probably from adenomyosis. I also try to watch my
>>diet which does help some what (the IC diet).
>>
>>I have started acupuncture, and that helps. Pelvic floor physical
>>therapy is supposed to help.
>>
>>Muscle relaxants are not really pain killers, and they do help some
>>women (magnesium is a natural relaxant too).
>>
>>Yoga helps other women...I have to get to that level!
>>
>>At Sat, 28 Mar 2009, anonymous wrote:
>>>
>>>I have had two laps, the last one with a specialist. It has been almost
>>>two months since surgery and there is still pain. Honestly, I didnt
>>>expect the pain to go away completely, but it's still bad enough that i
>>>have to take pain meds to make it tolerable. The doc said he got all
>>>the endo out. I had adeno too and they had to remove my uterus.
>>>
>>>My question is, is there anyone here that has been through a bunch of
>>>surgeries, treatments, etc and still has to take pain meds all the time?
>>>Do you get them through a pain managment specialist? I just want to know
>>>what the rest of my life is going to be like.

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