Re: Frustrated with outcome of conversation with my doctor
From: anonymous (anonymous@obgyn.net)
Thu Mar 26 21:53:07 2009
Have you read any of the sites that have been posted, and educated
yourself on endo? Perhaps you could even bring some of the info with
you.
I would start with the CEC site, look at the educational section
centerforendo.com
The doctors you are dealing with DO NOT KNOW what they are talking about
and you need to contact an endo expert.
I don't know if this doctor is near you, but a friend said she's very
good. She is NOT an endo expert, and will not know more than an endo
doc. BUT she is nice, the friend said, and will be kinder than the
people you are dealing with perhaps.
http://www.ucomparehealthcare.com/drs/massachusetts/obstetrics_and_gynecology/Ravniker_Veronica.html
http://www.reachmd.com/xmradioguest.aspx?pid=8109
I checked this site, one review seems encouraging, the other a bit
discouraging.
I don't know if you're directly in Boston, or if she is or what (I don't
know the geography) , but you might ask if she can recommend any NICE
doctors if she's not near you. The doctors you're dealing with don't
even seem nice!!
http://www.ratemds.com/doctor-ratings/870134/MA/South-Weymouth/Ravnikar
At Thu, 26 Mar 2009, Stephanie wrote:
>
>Hi there,
>
>before i begin, let me start with a brief history of my ordeal with
>Endo. My symptoms began @ age 16, for 2 years I was told I did not have
>Endo no matter how persistant I was that the symptoms fit perfectly. At
>age 18 I had a lap done and it was found but never removed, I was then
>treated with Lupron, Depo, Birth control, some NSAIDs all of which
>failed. When I moved to Boston I decided I would find a doctor that was
>more familiar with Endo and went to MGH, on the first visit to the
>doctor he said it was important for them to do another lap to see what
>was going on. A month later they did it and excised the Endo. I felt
>great for about 3-4 months and then my pain returned worse than ever
>before. I went back to see my doctor and with only a discussion, no
>exams or tests he said ITS NOT ENDO, WE GOT IT ALL, ITS SOMETHING ELSE,
>IM REFERRING YOU TO ANOTHER DOCTOR WHO IS A MUSCULOSKELETAL SPECIALIST
>AND CAN FURTHER INVESTIGATE AS WELL AS SENDING YOU TO A PAIN CLINIC. i
>went to the pain clinic who said, its not a muscle issue, maybe some
>pelvic floor myalgia but i already knew that, it seems to be a combo of
>nerve issues and ENDOMETRIOSIS. I then called my doctor today and they
>basically said, we feel that since you did not respond to the Lupron,
>Depo Provera, or birth control that there is some other issue and that
>Endo isnt the cause becuase those meds wouldve worked. I proceeded to
>argue it stating I know plenty of people wiht this problem that didnt
>respond to meds and still had ENDO so how can you even say that you're
>positive?? In the end, they refused to see me until i see the other
>specialist and then they will follow up probably in a month. Does
>anyone have any advice? Ive been told I should go to the center for endo
>and try to see if theres some form of endo that hes not familiar with or
>something else they could do for me but im trying to research other
>alternatives as we are in a recession and traveling would take a big
>chunk of change out of my funds. Thank you for your time. and I wish
>you all pain free days.
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