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Re: Prabhat K. Ahluwalia, M.D.
From: NWeber (anonymous@obgyn.net)
Fri Feb 27 08:45:04 2009
Danielle,
Have you submitted your records to the CEC in Atlanta? They do them for
free, and this will be the best bet for getting you the help you need.
They see the most complicated cases.
http://www.centerforendo.com
At Fri, 27 Feb 2009, Danielle wrote:
>
>Hi Nikki,
>
>I had my first surgery with Dr. Ahluwalia in February 2006 and it went
>GREAT! I never healed so fast in my life from a surgery. Just make sure
>you tell him that you want ONLY him operating on you and not his
>students. I have posted a comment in this forum before and will paste
>it in this one for your benefit:
>
>Hi. I am 23 yrs old and have had this procedure. I was promised no
>side effects accept less pelvic and lower back pain when I got my
>period. Maybe I should start from the beginning. When I was 12(1998) I
>had my first surgery. It was for an ovarian cyst the size of a large
>orange on my left ovary. It took me 2 months before I could stand up
>straight and another few weeks before I finally went back to school.
>They put me on birth control to regulate my period immediately after
>surgery. I was pain free for a good many years and when I say pain I
>mean that normal cramps don't count. Then when I was 16, the horrible
>incapacitating pain started again. Mind you the doc that performed the
>first surgery retired and some other doc and his midwife moved in. When
>I complained to them about my history of ovarian cysts (getting them
>almost monthly and one that he ruptured during an exam) and of bleeding
>tissue and clots for 45 days at a time, they told me that there was
>nothing that they could do for me. I was so fed up from hearing that
>from them for almost 4 years, I went and got and got a second opinion.
>THE BEST THING THAT I EVER DID!
>After a 5 minute pelvic exam he sad that by my pain intolerance I needed
>immediate surgery. Less than a month later, I was put under. He told
>my mother that it would be a routine 30-45 minute surgery. That was
>until he came out over 3 hours later and he said that he couldn't
>believe what he saw. I had endo stage IV where it starts to destroy
>your organs. He had to remove half of my left ovary, peel my colon off
>of my uterus, remove these things called 'chocolate cysts' off of my
>bladder, uterus, colon, ovaries, pelvic floor muscles and uterers and
>that he noticed that my uterus was slightly tipped but nothing to worry
>about. He said that he has not seen that much damage or that amount of
>tissue from endometriosis EVER in anyone my age or age group. He said
>that he only sees that in women over 40. In a week I was back to work
>with only slight twinges of pain. I thought that he was the best OBGYN
>doc out there! That was in February 2006, I was a few months away from
>turning 21.
>In September of that same year, I got married. (Let’s just say that my
>husband was the first man that I ever kissed and I got kissed when I was
>20.) Not knowing what to expect from that side of marriage, I didn't pay
>too much attention to the pain. After being married only 2 months, I
>went back to that same doctor and told him my symptoms. He gave me a
>pelvic exam and said that my uterus has completely prolapsed into my
>colon and if I consented he would go in and tack it up. He also
>suggested that during the same surgery that I have the sacral neurectomy
>for all of my pain. (My pain was so bad that all I could do was lay
>down in a ball and rock back and forth and moan whenever I got my period
>and it scared the heck out of my husband who saw this first hand since
>we started dating.) He promised me no sexual side affects from both
>surgeries and the only good side affect would be less pain during
>intercourse and during my period. On November 17, 2006 I underwent the
>knife again. When I came to I could not believe the pain I was in!
>After 2 shots of Demerol, they told me to try and pee. I got up and
>walked to the bthrm with help of my mother, husband and nurse. When I
>got there I couldn't go. The nurse told my doc and he said I can go
>home if I pee. So I started to drink like crazy (no one told me that
>you are not supposed to drink heavily after this surgery) and all the
>while the I.V. is in. After an hour or so and 2 more shots of Demerol
>I finally say that I have to pee and I got up and walked again with the
>help of the same three people and I finally pee. I was so excited that
>I could go home with my husband even though we lived 2.5 hours from the
>hospital in another city. The doctor didn't think that I peed enough so
>he had the nurse scan my bladder. I don't know if you know what this
>does but it is a hand held device that is pressed down onto the bladder
>to measure the CC's it contains. Didn't I just have surgery in this
>area?!?!?! That hurt so bad when they pressed at all different angles to
>check the CC amount. After 5 minutes of pain, I was told that I had 300
>cc's to empty. Even though I just went almost 600 cc's 15 mns prior. My
>mom who is a nurse told me to stop drinking and told the other nurse to
>turn of my I.V. From there I made at least three more trips to the
>bthrm. It is now 11 am at night and we should have left around 9:30-10
>to get home since my husband had to leave the house at 5:30am to get to
>work the next morning. The doctor then told us that I cannot go home
>until my bladder was empty. SO my loving patient husband went home
>amidst my crying that I wanted to go with him. After he left, the doc
>tried to admit me over night and I suggested that I go home with my
>parents who live less that 10 mns away. He thought that was practical.
>I forgot to mention that when I was in recovery my mom said that my
>doctor came out and explained what she did and that she also removed
>more endo tissue and adhesions and scar tissue. I said that she must be
>mistaken because my doctor is a man. That's when I realized that he had
>one of his students practice on me! And yes, I signed a waiver,
>unfortunately. When I was discharged I received my 6th shot of Demerol
>with a prescription for Tylenol 3 which to me is as potent as a handful
>of skittles.
>We get home around 12:30am and less than 2 hours later I wake up
>screaming in pain that I have never experienced before in my history of
>pelvic pain! My mother said that I looked like a spooked horse whose
>eyes get huge. My dad and little brother thought I was dying and my
>little brother who was 16 at the time started to cry. In the process of
>walking out the door (it would take longer for us to call 911 and have
>an ambulance pick me up than for my mom to bring me back to the
>hospital) and all my pain, I realized that I had to pee. My mom said
>that I was crazy and I said let me pee. After I peed, the pain lessened
>and that scared me. I was still in extreme pain and when I got to the
>ER (same hospital where I had the surgery) and after the un-discharged
>me from earlier the nurse gave me a double dose of Demerol. It helped
>until my bladder filled again. So I start sobbing and screaming as I
>walk to the bthrm to pee. Thankfully the bthrm is two feet from the
>exam table in the same room. I go and the pain gets knocked down a
>notch. After two hours or so of me screaming and getting up and peeing
>(which is really bad to get up so much right after pelvic surgery) the
>nurse gives me a shot in between of Demerol. Then the nurse happens to
>be walking by to check up on me and she hears me but can't see me since
>I am in the bthrm with the door open and I am sitting on the toilet just
>sobbing my heart out because it hurts so bad she runs and grabs a shot
>of loradol or toradal (something that sounds like that) and gives me the
>shot while I am still sitting.
>An hour or so goes by and I am dealing with twinges of pain but before
>you know it my bladder starts to fill and I once again start screaming
>and crying. Meanwhile my mom is at her wits end and trying not to cry
>in front of me so that I don't get scared by her reaction. The nurse
>comes running in and my mom explains to the nurse that something is
>really wrong, that I shouldn’t be in this amount of pain just because my
>bladder starts to fill. The nurse looks frazzled and tired the poor
>thing (I must of been pretty scary that my pain was uncontrollable) and
>she runs and gets the doctor on duty who I saw once when I was brought
>in and he has me explain to him again all that is going on and he then
>looks at the nurse at my mom and then back at me and at that time I need
>to get up and pee to lessen the pain and he finally saw first hand what
>was going on. By the time I get back to the exam table where I have
>been trying to get comfortable since I first came in, the doctor was
>there with a clipboard. He said that I needed to sign a waiver for the
>'big guns'. I exhaustedly and gladly signed. He rolled me over on my
>side, pulled down my sweats and gave me the shot in my hip.
>(Unfortunately he hit a nerve but I couldn't tell till later.) He then
>said that the most common symptom is itching. If I feel anything else
>to call the nurse. Let's just say that I finally fell asleep while
>scratching and continued to scratch while I was sleeping.
>We left the ER around 5:30am the day after my surgery. Crazy right. It
>gets better. It took a few weeks for the 4 month swollen pregnant look
>to go away. Every night for almost a year, I woke up with that same
>pain when my bladder filled. It was tolerable after I peed. I still
>have bad pain if I don't empty before I go to bed or right when I wake
>up. Remember how the doctor promised no sexual side affects? He was so
>wrong! He (or she if the student did this part) cut the nerves that go
>to the Bartholin glands and they are what produce the lubrication when
>you are sexually aroused. They also removed the nerves off the back of
>my uterus. Since November 17, 2006 I have not gotten sexually aroused.
>Imagine being married for only 2 months and having this taken away from
>you!!!!!
>I still get ovarian cysts and have endo symptoms again. I still have
>pain that shoots out of nowhere. I have bad lower back pain when I get
>my period on top of ovarian and other pain. I don't want to imagine how
>bad the pain would be if I didn't have the nerves removed. Then again,
>I think the extra pain would be worth it if I could enjoy relations with
>my husband again.
>Shall we talk about the birth control that I have been on since I was
>12? I was on that garbage for over 10 yrs. Yes, I had great skin and no
>PMS but do you know what that stuff does to you?! It turns out that the
>pill is what is responsible for no sex drive. It makes your liver work
>obnoxiously hard to create this protein called sex binding globulin that
>destroys testosterone, and you need that to feel sexy and want to have
>sex. It also thins the skin in the vaginal vestibule, the skin that is
>around your vaginal opening. I only know this because I am seeing this
>great specialist in the DC area who treats vulvo-vaginal disorders. He
>is the one that made me stop taking the pill and who referred me to a
>physical therapist who works with pelvic floor dysfunction. My hip and
>inner vaginal and pelvic muscles where 70-80% tighter than they are
>supposed to be and that causes major pain during intercourse. Even
>though he cost a small fortune to go see, he opened my eyes to a lot of
>problems that the other OBGYN docs weren't telling me and couldn't tell
>me because they had no idea what to treat or even look for.
>I am 23 yrs old and am still looking for some doctor who can fix me back
>the way that I used to be. I hope that you find some relief as I did.
>
>At Tue, 6 May 2008, Nikki wrote:
>>
>>I just found out my RE has no experience with stage IV endo (despite him
>>telling me he did!). So, I'm in the market for a new surgeon.
>>
>>Does anyone have experience with Dr. Prabhat Kumar Ahluwalia of Little
>>Falls, NY and Utica, NY? He came highly reccommended by a doctor friend
>>of mine, but I'm hesitant to take reccommendations from someone who was
>>never a patient of Dr. Ahluwalia.
>>
>>The last few "highly reccommended" surgeons turned out to be duds. I'm
>>tired of visiting cruddy doctors. I can't afford to keep visiting these
>>types of doctors, with the lost time for travel and all of the co-pays.
>>
>>If Dr. Ahluwalia turns out to be another disappointment I'm giving up.
>>I'd rather live with endo than the results of a horrible surgery.
>>
>>Thanks for any info.
>>
>>--
>>Nikki
>>
>>--
>>"Shopping is my cardio," Carrie Bradshaw
>>
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