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Re: Period with depo provera injection anyone?
From: Caitlin (anonymous@obgyn.net)
Mon Feb 23 08:25:34 2009
Just to clarify, I'm talking about Depo Provera, not Lupron. But, it's
nice that someone shares my thoughts about this. Everyone is entitled
to their own decision when it comes to their bodies and health. We
choose what is best for us and that, to me, is the best decicision that
I can make for myself.
At Fri, 20 Feb 2009, E. wrote:
>
>You're not the only one.
>
>It's really weird that people can say the same thing over & over again.
>Lupron is a treatment option, and it *may* work for some people.
>Women have different reactions to the drug.
>But for some reason, some people here think it is the worst
>treatment option simply because they have had adverse effects
>to it/and/or it has not helped them with their pain.
>So they actively discourage and put down people who use it.
>Women who have had excision surgeries with specialists
>*may* still end up having their endo come back.
>Does that mean that we should demonize excisionsionists &
>say their treatment doesn't work? No.
>Yet because this treatment (Lupron) has not worked
>for everyone, and because it is a temporary treatment,
>people feel free to demonize it.
>But they'll feel free to tell you about the bc pills,
>which can have lethal side effects as well!
>
>--
>Everyone should make their own treatment decision, the
>one that is right for them (as long as they are educated
>about what the treatment can and cannot do).
>
>At Fri, 20 Feb 2009, Caitlin wrote:
>>
>>This is the response I usually get. I'm educated on the subject and am
>>a bit tired of getting responses from people who question my choice of
>>treatment. I know the Endo is not gone. But, I am pain free and am
>>able to live my life fully and happily. And to me, that is what's most
>>important. Will I require another surgery? Of course but I and only I
>>know when that will be.
>>
>>At Fri, 20 Feb 2009, anonymous wrote:
>>>
>>>The problem is the endo is not gone, and can cause many more problems in
>>>the future.
>>>
>>>At Wed, 18 Feb 2009, Caitlin wrote:
>>>>
>>>>Hi Stephanie,
>>>>
>>>>I've been on Depo for stage 3 endo and love it! I'm due for my third
>>>>shot next month. I did experience some spotting and mild mild cramping
>>>>during the first week of each shot but other than thatm absolutely
>>>>nothing and the pain is gone. Of course, it may not work this well with
>>>>everyone. I do experience major fatigue from it but find that I can
>>>>work through it and am sure to take a multi vitamin which seems to help
>>>>a bit. I also have bowel issues due to a mix of IBS and adhesions on my
>>>>bowels. For me, the benefits totally outweighed the side effects. This
>>>>may not be the case for you. Definitely talk to your doctor and let
>>>>him/her know how you feel. Best of luck to you!
>>>>
>>>>--
>>>>Caitlin
>>>>
>>>> At Tue, 17 Feb 2009, Stephanie wrote:
>>>>>
>>>>>i was placed on depo after being confirmed with a diagnosis for
>>>>>endometriosis. i unfortunately was never helped by depo. i stayed on
>>>>>it for 3 mths and bleed through all of them. i was then switched off
>>>>>and tried lupron and had the same effect. i was informed by my doctor
>>>>>though that it is normal for it to take up to your second cycle for
>>>>>periods to cease or slow down. give it a little more time, if that
>>>>>doesnt work, speak with your doctor. hope this helps and i wish you all
>>>>>the pain free days in the world!
>>>>>
>>>>>At Sun, 15 Feb 2009, bren wrote:
>>>>>>
>>>>>>Hi-
>>>>>>I was just wondering if those of you who had the depo provera injection
>>>>>>the first time still got their period the following month? I've been to
>>>>>>3 obgyns in Kaiser, one who unofficially diagnosed me endometriosis last
>>>>>>July & eventually did a laparoscopy on me, but supposedly only found
>>>>>>scar tissue & adhesions from my appendectomy back in 2003 (which I still
>>>>>>wonder if my "appendicitis" was actually endo on my appendix back
>>>>>>then)...he removed the adhesions & scar tissue, but I continued to
>>>>>>suffer worsening pain & symptoms each month. I recently went to an
>>>>>>obgyn who specializes in urology for my bladder symptoms who suggested I
>>>>>>have a cystocopy, but this obgyn did not want to perform one on me...she
>>>>>>was absoultely no help and just plain rude. Then I met w/ the obgyn who
>>>>>>specializes in infertility (closest I can get to an endo specialist in
>>>>>>Kaiser-since there "isn't one" supposedly) and due to my worsening pain
>>>>>>w/ each cycle, she gave me the option between lupron, bc, or depo
>>>>>>provera injection to stop my periods. Since I've had bad reaction to
>>>>>>birth control in the past & the fear of side effects from lupron since I
>>>>>>already suffer from joint stiffnes, pain, & sciatic pain (nerve pain),
>>>>>>etc, & I tried the medroxyprogesterone tabs before my lap w/o much side
>>>>>>effects, I decided to go w/ depo. I thought that I wouldn't have my
>>>>>>period anymore, as I was told, & that my pain would get better if endo
>>>>>>was missed in my lap. However, I still got the worsening symptoms
>>>>>>(nerve, joint pain + severe fatigue) even w/ my pain mangement & my
>>>>>>period started off w/ spotting and then heavy bleeding & lasted about
>>>>>>10-14 days off & on w/ flow & spotting. I've also gained weight, which
>>>>>>I heard is a side effect, but don't understand how this is possible &
>>>>>>how I gained weight after starting to get more sick/pain when I have
>>>>>>loss of appetite & eat less? I'm currently on pain management & depo
>>>>>>provera is still in my system. I suffer severe pain & fatigue & my
>>>>>>roommate has to feed me my medications in the mornings so that I can
>>>>>>actually get out of bed an hour later for work. I just don't understand
>>>>>>what is going on w/ my body. I have burning pain in my pelvis,bladder,
>>>>>>that shoots into my lower back below my waist, especially the left side,
>>>>>>hip pain, tailbone pain, & shoots down my leg(s) (worst on left leg)to
>>>>>>my feet w/ a tingling radiating nerve pain w/ weakness in my legs now. I
>>>>>>have painful bowel movements (& difficulty passing stool) &
>>>>>>ugency/frequency urination w/ hesitation (like I really have to relax my
>>>>>>muscles to "go"). I do know that I was told that my pelvic muscles are
>>>>>>very tense and unable to relax & they don't know if this is a cause or
>>>>>>effect of my pain. Any ideas? I am having another EMG tomorrow since I
>>>>>>was diagnosed w/ carpal tunnel & sciatica back in June when I had my
>>>>>>first EMG. My pain is so bad that the EMG doesn't phase me. W/o my
>>>>>>pain management & xanax to relax my muscles, I would be disabled. Just
>>>>>>curious of what types of symptoms everyone has and all the diagnosises
>>>>>>whether endo/adeno related or not, & types of medications & side effects
>>>>>>you've had. Please share as living in such chronic pain & fatigue is
>>>>>>horrible.
>>>>>>Thanks!
>>>>>>
>>>>>>--
>>>>>>Bren
>>>>>>
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