Re: Period with depo provera injection anyone?
From: Caitlin (anonymous@obgyn.net)
Mon Feb 23 08:18:39 2009
NWeber,
I am talking about Depo Provera as stated in the subject line of this
post, not Lupron.
At Fri, 20 Feb 2009, NWeber wrote:
>
>Are you Taking Depo Provera (birth control) or Depot Lupron? Two
>completely different things.
>
>I think the reason you get this response on this board is because alot
>of us out there that have been prescribed Lupron and learned how it
>doesn't really do much but prolong the inevitable. You have people who
>get on this board looking for information, and I personally think
>endorsing Lupron is the wrong choice for new patients, they need to know
>the correct information up front about Excision surgery rather than
>being prescribed tons of drugs with a long list of side affects.
>
>The majority of doctors that use this drug have no clue about how to
>treat endo. They never tell you the real side affects, and there are
>side affects that most people sometimes never see until surgery or until
>later after they have finished treatment. For example my disease
>gallbladder from the drug, not to mention the bone loss, hair loss,
>memory loss, fibromyalgia, and Lupus issues . Also, there are so many
>doctors who prescribe Lupron more than six months, which is absolutely
>not supposed to be done, beyond the 6 month recommended time.
>
>I am happy Lupron has worked for you, but the majority of patients it
>does not work. I think new people on this board need to see messages
>about it not helping people and the horror stories of the side affects.
>People need to know the truth about what it does and how it can affect
>you. It's scary how much they prescribe this drug, people trying to
>conceive are given it, and shouldn't be at all, due to birth defects and
>the FDA never approving it for this use.
>
>Please if you are thinking about this drug or are currently on it, do
>your research. Get the real story, not the one your doctor tells you.
>
>At Fri, 20 Feb 2009, Caitlin wrote:
>>
>>This is the response I usually get. I'm educated on the subject and am
>>a bit tired of getting responses from people who question my choice of
>>treatment. I know the Endo is not gone. But, I am pain free and am
>>able to live my life fully and happily. And to me, that is what's most
>>important. Will I require another surgery? Of course but I and only I
>>know when that will be.
>>
>>At Fri, 20 Feb 2009, anonymous wrote:
>>>
>>>The problem is the endo is not gone, and can cause many more problems in
>>>the future.
>>>
>>>At Wed, 18 Feb 2009, Caitlin wrote:
>>>>
>>>>Hi Stephanie,
>>>>
>>>>I've been on Depo for stage 3 endo and love it! I'm due for my third
>>>>shot next month. I did experience some spotting and mild mild cramping
>>>>during the first week of each shot but other than thatm absolutely
>>>>nothing and the pain is gone. Of course, it may not work this well with
>>>>everyone. I do experience major fatigue from it but find that I can
>>>>work through it and am sure to take a multi vitamin which seems to help
>>>>a bit. I also have bowel issues due to a mix of IBS and adhesions on my
>>>>bowels. For me, the benefits totally outweighed the side effects. This
>>>>may not be the case for you. Definitely talk to your doctor and let
>>>>him/her know how you feel. Best of luck to you!
>>>>
>>>>--
>>>>Caitlin
>>>>
>>>> At Tue, 17 Feb 2009, Stephanie wrote:
>>>>>
>>>>>i was placed on depo after being confirmed with a diagnosis for
>>>>>endometriosis. i unfortunately was never helped by depo. i stayed on
>>>>>it for 3 mths and bleed through all of them. i was then switched off
>>>>>and tried lupron and had the same effect. i was informed by my doctor
>>>>>though that it is normal for it to take up to your second cycle for
>>>>>periods to cease or slow down. give it a little more time, if that
>>>>>doesnt work, speak with your doctor. hope this helps and i wish you all
>>>>>the pain free days in the world!
>>>>>
>>>>>At Sun, 15 Feb 2009, bren wrote:
>>>>>>
>>>>>>Hi-
>>>>>>I was just wondering if those of you who had the depo provera injection
>>>>>>the first time still got their period the following month? I've been to
>>>>>>3 obgyns in Kaiser, one who unofficially diagnosed me endometriosis last
>>>>>>July & eventually did a laparoscopy on me, but supposedly only found
>>>>>>scar tissue & adhesions from my appendectomy back in 2003 (which I still
>>>>>>wonder if my "appendicitis" was actually endo on my appendix back
>>>>>>then)...he removed the adhesions & scar tissue, but I continued to
>>>>>>suffer worsening pain & symptoms each month. I recently went to an
>>>>>>obgyn who specializes in urology for my bladder symptoms who suggested I
>>>>>>have a cystocopy, but this obgyn did not want to perform one on me...she
>>>>>>was absoultely no help and just plain rude. Then I met w/ the obgyn who
>>>>>>specializes in infertility (closest I can get to an endo specialist in
>>>>>>Kaiser-since there "isn't one" supposedly) and due to my worsening pain
>>>>>>w/ each cycle, she gave me the option between lupron, bc, or depo
>>>>>>provera injection to stop my periods. Since I've had bad reaction to
>>>>>>birth control in the past & the fear of side effects from lupron since I
>>>>>>already suffer from joint stiffnes, pain, & sciatic pain (nerve pain),
>>>>>>etc, & I tried the medroxyprogesterone tabs before my lap w/o much side
>>>>>>effects, I decided to go w/ depo. I thought that I wouldn't have my
>>>>>>period anymore, as I was told, & that my pain would get better if endo
>>>>>>was missed in my lap. However, I still got the worsening symptoms
>>>>>>(nerve, joint pain + severe fatigue) even w/ my pain mangement & my
>>>>>>period started off w/ spotting and then heavy bleeding & lasted about
>>>>>>10-14 days off & on w/ flow & spotting. I've also gained weight, which
>>>>>>I heard is a side effect, but don't understand how this is possible &
>>>>>>how I gained weight after starting to get more sick/pain when I have
>>>>>>loss of appetite & eat less? I'm currently on pain management & depo
>>>>>>provera is still in my system. I suffer severe pain & fatigue & my
>>>>>>roommate has to feed me my medications in the mornings so that I can
>>>>>>actually get out of bed an hour later for work. I just don't understand
>>>>>>what is going on w/ my body. I have burning pain in my pelvis,bladder,
>>>>>>that shoots into my lower back below my waist, especially the left side,
>>>>>>hip pain, tailbone pain, & shoots down my leg(s) (worst on left leg)to
>>>>>>my feet w/ a tingling radiating nerve pain w/ weakness in my legs now. I
>>>>>>have painful bowel movements (& difficulty passing stool) &
>>>>>>ugency/frequency urination w/ hesitation (like I really have to relax my
>>>>>>muscles to "go"). I do know that I was told that my pelvic muscles are
>>>>>>very tense and unable to relax & they don't know if this is a cause or
>>>>>>effect of my pain. Any ideas? I am having another EMG tomorrow since I
>>>>>>was diagnosed w/ carpal tunnel & sciatica back in June when I had my
>>>>>>first EMG. My pain is so bad that the EMG doesn't phase me. W/o my
>>>>>>pain management & xanax to relax my muscles, I would be disabled. Just
>>>>>>curious of what types of symptoms everyone has and all the diagnosises
>>>>>>whether endo/adeno related or not, & types of medications & side effects
>>>>>>you've had. Please share as living in such chronic pain & fatigue is
>>>>>>horrible.
>>>>>>Thanks!
>>>>>>
>>>>>>--
>>>>>>Bren
>>>>>>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)