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Re: Laproscopic Removal-5 mths ago, now I feel horrible all over again
From: Stephanie (anonymous@obgyn.net)
Fri Feb 20 17:13:05 2009
Yeah, I havent had much luck with the normal treatments for Endo. They
all seem to have backfired. I'm actually already seeing a supposed
"enodmetriosis specialist" at Mass General in Boston but he's reluctant
to give out pain medications so we aren't totally on the same page
because I am in constant pain due to having my period nearly every day
and the medications we have tried are failing miserably. I went to the
ER today and the have told me they believe the endo cells have started
to grow back and i also have a cyst on my left ovary so i will go see my
specialist tuesday and see what he has to say
At Tue, 17 Feb 2009, E. wrote:
>
>If you have been on bc pills and only feel worse, that treatment isn't
>working.
>I understand you also did not get any relief of pain on Lupron or
>DepoProvera.
>This looks like you need to have a surgery so they can see what's going
>on inside of you. Can you afford to go to a specialist? If you can't,
>go back to your doctor and try to get something for the pain (you can
>also ask for a muscle relaxant) in the meantime as a stop gap measure.
>But your endo seems persistant, and for that you need surgery.
>
>Have you seen some of these specialist sites?
>Dr. Cook in CA http://www.pelvicpain.com/
>Dr. Lyons in Georgia http://www.thomasllyons.com/procedures.htm
>Dr. Robbins in Maine http://www.endoexcision.com/
>Dr. Liu in TN http://www.gyndr.com/
>and Dr. Redwine http://www.endometriosistreatment.org/
>are just some of the excisionists that may be able to help you.
>
>At Tue, 17 Feb 2009, Stephanie wrote:
>>
>>i'm on BC now and I've only felt worse on them, on top of that, my
>>mentraul periods are completely out of wack, stopping for 3 days tops
>>and starting all over again. I'm lucky to get 2 days pain free in a
>>month. My doctor can't see me for another week but I'm hoping to get
>>something for the pain because I can't live like this. I'm absolutely
>>miserable.
>>
>>At Tue, 17 Feb 2009, E. wrote:
>>>
>>>Since you did so well on Lupron, have you tried the bc pills? Have they
>>>helped at all? Have you asked your doctor about Danocrine? Have you
>>>tried natural progesterone or muscle relaxants to take the edge off the
>>>pain?
>>>
>>>At Tue, 17 Feb 2009, Kat wrote:
>>>>
>>>>I've had a similar experience. I've had 2 lapro and 2 rounds of lupron.
>>>>My 1st lapro was 8 years ago and I was pain free for about 3-4 yrs then
>>>>I had lupron for 6 mnths and it was wonderful!! I had no pain and the
>>>>side effects were mild for the most part but they were certainly easier
>>>>to deal with than the pain. 1 month after I went off lupron my pain
>>>>returned. Months later I had my 2nd lapro I also had a LEEP done at the
>>>>same time they found no sign of endo just 1 adhesion. I was better for
>>>>almost a year and then it came back and its as bad as it ever was. Its
>>>>been 2years now since my last lapro and my 2nd round of lupron and I'm
>>>>in SO MUCH pain!! When I have a period its worse than its ever been. I
>>>>cant walk and I throw up from the pain and passout and this is with
>>>>doubling up on lortabs!
>>>>I'm sorry your having pain so soon after surgery. Have you considered
>>>>Lupron? I recommend it to anyone I wish I could be on it all the time.
>>>>
>>>>At Mon, 16 Feb 2009, anonymous wrote:
>>>>>
>>>>>also, endometriosis.org
>>>>>
>>>>>At Mon, 16 Feb 2009, Stephanie wrote:
>>>>>>
>>>>>>Is this common? Is this even possible? I felt so great after the surgery
>>>>>>I'm just so confused and honestly let down that I'm back feeling so bad
>>>>>>so soon. I'm on BC but now its like I'm menstruating almost every week
>>>>>>so do I take the pill do I not? It's a gamble either way. I just feel
>>>>>>very discouraged, after dealing with this pain for 7 years I thought I
>>>>>>was finally free from it and now come to find out, i'm clearly not.
>>>>>>Please help. Thanks, Steph
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