Re: Dr Kanayama - pain after?
From: anonymous (anonymous@obgyn.net)
Sat Jan 31 17:16:38 2009
IMO he capitalizes (literally) on women's desires to have children...
ask him what organs could be adhered together, and why his surgeries are
so bloody???? ask to see pics of someone's surgery, internally, to see
how bloody they are
At Sat, 31 Jan 2009, Kelly wrote:
>
>At Wed, 28 Jan 2009, Michele wrote:
>>
>>At Wed, 28 Jan 2009, anonymous@obgyn.net wrote:
>>>
>>>At Wed, 4 Jun 2008, Michele wrote:
>>>>
>>>>Hi . Yes I had two surgeries with Dr. Kanayama. I was stage III endo.
>>>>My 1st surgery was 8/06. I had extreme pain everyday. Pain down my
>>>>left side, legs back etc. After my surgery i still had bad pain. I
>>>>went back and he said he would not stop until we knew why. On an ultra
>>>>sound he found a cyst on my left ovary about 5cm so he put me on bc
>>>>pills to shrink it. I went back a month later still had pain but the
>>>>cyst was gone. As he was looking on the ultrasound when he went near
>>>>the left side I felt extreme pain he was looking and actually found a
>>>>mass in the wall of my uterus. It was not inside or outside but in the
>>>>wall. He would not have been able to see it during my first lap. His
>>>>ultra sound mach picked it up because it can show blood flow in tissues.
>>>>I have a family history of cancer so he wanted to remove it. I had my
>>>>second surgery in 2/07. My surgery was over 3 hours this mass was in
>>>>about 12 layers of endo fibroid and the center was blood. the pain was
>>>>from this mass bleeding into itself. He has never seen anything like
>>>>it. It was a form of adenomyosis but a localized case. We are not sure
>>>>how it happened but there is a link of adeno to c-sections which I had
>>>>in 2004. After that surgery I have been pain free and I am now pregnant
>>>>with no help from any drugs. Before i saw him I went to dozens of Dr.'s
>>>>they all pretty much said we have no idea what is wrong with you. He
>>>>did not give up. Go back tell him how you feel and he wont give up on
>>>>you either. Endo is a crazy disease in many cases you do need another
>>>>surgery. Your success rate goes up with a second surgery. I wish you
>>>>all the luck. Michele
>>>>
>>>>At Mon, 2 Jun 2008, LW wrote:
>>>>>
>>>>>Has anyone had surgery with Dr Kanayama, and still had pain afterwards,
>>>>>or worse yet, more problems? thanks
>>>
>>>Hi - this is very interesting to me bc. I had surgery with Dr. Kanayama a month ago
>>>after a failed 1st surgery and he said the surgery was very successful and
>>>all of the endo. is gone. I have stage III as well. Although, I am still having
>>>the same pain LEFT SIDED PAIN if not a little worse and I don't feel that it is
>>>all gone. I think that I may have endo in the wall of my uterus as well but
>>>he says he doesn't see it.
>>>I am very frustrated bc. I know that something is still not right. How long did
>>>it take for him to realize he had missed the mass in your uterus?
>>>What did your pain feel like?
>>>I am so frustrated and would love to hear any advice you can
>>>give me!
>>>Congratulations on your pregnancy.
>>>
>>>Thanks so much.
>>>Kelly
>>
>>--
>>My pain felt like someone was stabbing me on my left side next to my bellybutton and the pain would shoot down my left leg. It was everyday for about 4-5hrs. Nothing would help the pain. I had my 1st surgery in august and he found the mass in early december. I had my 2nd surgery in february 2007 and ever since that day knock on wood I have not had the pain again. after my 1st surgery he knew I still was suffering and he said he would not stop until he found out why. i was going back every month.I am in the medical profession and there is no black and white there is alot of grey. He is a very good Dr.Endo is such a crazy and unpredictable disease. When you have stage III and stage IV endo you have a greater success rate with a second surgery. dont give up and he wont give up on you. Good luck. Michele
>>
>--
>Thanks so much for your response. I feel so alone and it's nice to talk to someone that has
>gone thru this. The main source of my pain is very low on the left side above my pelvic bone.
>The pain pulses during the day but there is ALWAYS an aching feeling.
>I am going to see Dr. K again on February 9th and hoping that he can help me.
>Is there any advice you can give me on what to ask him?
>Do you know why he didn't originally see the mass in your uterus and it took him
>many months before he did see it?
>My only dream in life is to be pregnant and have a healthy baby and I'm hoping
>that this can happen!
>Thanks again.
>Sincerely,
>Kelly
>
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