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Re: Diaphragmatic Endometriosis - for kchrisFrom: anonymous (anonymous@obgyn.net)Fri Jan 30 22:27:37 2009
At Fri, 16 Jul 2004, Marie wrote: > >At Tue, 13 Jul 2004, Mindy wrote: >Hi Mindy > >Sorry for the delay...been gone for a couple days. It's hard to compare >my symptoms because I had a hysterectomy (with ovaries as well) at age >28...I'm 41 now. So as far as symptoms that seem to intensify at >certain times of the cycle...I can't compare. Did you have the bloody >sputum (gosh, that sounds so personal) > >I haven't heard back from Dr. Redwine yet so I'd imagine next week. So >I'll keep you posted! Do you live near Dr. Redwine? I'm in Cleveland, >Ohio, so making that trip is a huge expense...well worth it, of course. >But with Endo, as I'm sure you know, the guessing game of "do I have >more Endo, or is it my imagination"....that is so hard, isn't it? > >Makes me CRAZY! You go into these surgieries thinking "gosh, I hope they >find SOMETHING (not Cancer!) so that I don't feel like a complete >idiot!!! > >Write back! I'm so comforted by your emails! > >-- >Marie >> >That was the first thing my doc asked was about the bloody sputum. I >>sure hope it's not in your lungs. >> >>My symptoms are pain on the right side (on my side, not front or back) >>just under the rib cage and the pain radiates up to my shoulder. It's >>sharp and stabbing constantly and intensifies with every inhalation, >>burp, hiccup, etc. Starts day two of menstruation and lasts almost two >>weeks. Night time is the worst for me as well. Sometimes I get stuck >>in a position that is so painful to get out of. >> >>Yes, Dr. Redwine is the best! I was a mess and he gave me my life back. >>I have been painfree since in the locations where he removed the endo. >> >>You have been through so much, as have I, and it's sad we have to go >>through all of this again, probably to discover it's endo in a new >>location. >> >>Please let me know what he says. I am planning on writing him as well. >>Did you have to pay the evaluation fee? >> >>Mindy :-) >> >>At Tue, 13 Jul 2004, Marie wrote: >>> >>>At Tue, 13 Jul 2004, Mindy wrote: >>>Hi Mindy >>> >>>How strange...we have so much in common. My last surgery (8th) was done >>>by Dr. Redwine as well and I have been symptom free since then...1999. >>>Your symptoms do seem to match all the research I've done on >>>diaphragmatic endo. I don't have that pain under my rib cage. And I >>>only seem to get the common arm pain at night when I am sleeping on my >>>back and try to roll over. It's as if there is a huge weight upon my >>>chest and abdomen and I have to grab onto the bed post and SLOWLY roll >>>over. >>> >>>My main symptoms are the bloody sputum, chest pain, extreme fatigue, and >>>shortness of breath. A pulmonologist thought I might have Endo in my >>>lungs or diaphram which could be the cause of the bloody sputum. For 4 >>>months I've had every test there is, EKG, echocardiogram, cardiac blood >>>workup, MRI, CT scans, Endoscopy, Bronchoscopy, etc. Ruling out heart >>>problems, esophigitis, lung cancer, etc. This is REALLY starting to >>>give me flashbacks of my 6 years of Endo struggles. Usually when you >>>have most of the medical profession "stumped" with your >>>symptoms.....it's Endo! >>> >>>I have just faxed my recent info to Dr. Redwine to see what he thinks. >>>Do you have any of the symptoms I write of above? >>> >>>So happy you responded...thank you...so good to have someone to talk to >>>who has already had surgery with Dr. Redwine....who is fabulous, isn't >>>he? >>> >>>Thanks! >>>Marie >>>> >>>Hello :-) Funny you should write this today! I have been researching the >>>>forum today to help diagnose myself before going back to my doctor next >>>>week. >>>> >>>>My pain is on my right side under the rib cage....deep and it radiates >>>>up into my shoulder. What I have found is my symptoms are identical to >>>>those who have been diagnosed with diaphramatic endo. I am curious as >>>>to what your symptoms are? >>>> >>>>I have had two surgeries....first one unsuccesful (local doc), and my >>>>second one a huge success (with Dr. Redwine). My pain has not returned >>>>in the areas it was removed :-) I, too, had bladder and colon >>>>(intestinal) endo. >>>> >>>>Mindy >>>> >>>>At Mon, 12 Jul 2004, Marie wrote: >>>>> >>>>>Can anyone who has been diagnosed with Diaphragmatic Endo tell me their >>>>>symptoms? I've had 8 surgeries for Pelvic Endo, including bowel, >>>>>bladder, etc. and the Doctor's are now suspecting Diaphragmatic Endo. >>>>> >>>>>Thank you! >>>>>Marie >>>>> >>>>>-- >>>>>Marie >>>>> >>>-- >>>Marie >>> >-- >Marie >
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