 |
 |
 |
|
|
|||
|
|
||||
|
||||
|
|
Re: Diaphragmatic Endometriosis-Marie - for kchris, old messageFrom: anonymous (anonymous@obgyn.net)Fri Jan 30 22:26:34 2009
At Tue, 20 Jul 2004, Mindy wrote: > >No I don't have blood coming up. He was worried it might be in the >lungs, but I am fine there. I am pretty sure it's on the diaphram. > >Please email me and let me know what Dr. Redwine thinks. I am seeing >my local doctor tomorrow.....he and Dr. Redwine have worked together. > >He put me on Aygestin and BCP's, but they are not wokring :-( I guess >it's too soon to tell. > >I live in So Cal, but I had family and friends in Bend >:-) Most have moved now. Funny thing, I spent a lot of time up there >growing up! It was still a huge expense though, but we were able to save >on lodging. > >Painfree wishes, >Mindy >mjmanke@hotmail.com > >>At Tue, 13 Jul 2004, Mindy wrote: >>Hi Mindy >> >>Sorry for the delay...been gone for a couple days. It's hard to compare >>my symptoms because I had a hysterectomy (with ovaries as well) at age >>28...I'm 41 now. So as far as symptoms that seem to intensify at >>certain times of the cycle...I can't compare. Did you have the bloody >>sputum (gosh, that sounds so personal) >> >>I haven't heard back from Dr. Redwine yet so I'd imagine next week. So >>I'll keep you posted! Do you live near Dr. Redwine? I'm in Cleveland, >>Ohio, so making that trip is a huge expense...well worth it, of course. >>But with Endo, as I'm sure you know, the guessing game of "do I have >>more Endo, or is it my imagination"....that is so hard, isn't it? >> >>Makes me CRAZY! You go into these surgieries thinking "gosh, I hope they >>find SOMETHING (not Cancer!) so that I don't feel like a complete >>idiot!!! >> >>Write back! I'm so comforted by your emails! >> >>-- >>Marie >>> >>That was the first thing my doc asked was about the bloody sputum. I >>>sure hope it's not in your lungs. >>> >>>My symptoms are pain on the right side (on my side, not front or back) >>>just under the rib cage and the pain radiates up to my shoulder. It's >>>sharp and stabbing constantly and intensifies with every inhalation, >>>burp, hiccup, etc. Starts day two of menstruation and lasts almost two >>>weeks. Night time is the worst for me as well. Sometimes I get stuck >>>in a position that is so painful to get out of. >>> >>>Yes, Dr. Redwine is the best! I was a mess and he gave me my life back. >>>I have been painfree since in the locations where he removed the endo. >>> >>>You have been through so much, as have I, and it's sad we have to go >>>through all of this again, probably to discover it's endo in a new >>>location. >>> >>>Please let me know what he says. I am planning on writing him as well. >>>Did you have to pay the evaluation fee? >>> >>>Mindy :-) >>> >>>At Tue, 13 Jul 2004, Marie wrote: >>>> >>>>At Tue, 13 Jul 2004, Mindy wrote: >>>>Hi Mindy >>>> >>>>How strange...we have so much in common. My last surgery (8th) was done >>>>by Dr. Redwine as well and I have been symptom free since then...1999. >>>>Your symptoms do seem to match all the research I've done on >>>>diaphragmatic endo. I don't have that pain under my rib cage. And I >>>>only seem to get the common arm pain at night when I am sleeping on my >>>>back and try to roll over. It's as if there is a huge weight upon my >>>>chest and abdomen and I have to grab onto the bed post and SLOWLY roll >>>>over. >>>> >>>>My main symptoms are the bloody sputum, chest pain, extreme fatigue, and >>>>shortness of breath. A pulmonologist thought I might have Endo in my >>>>lungs or diaphram which could be the cause of the bloody sputum. For 4 >>>>months I've had every test there is, EKG, echocardiogram, cardiac blood >>>>workup, MRI, CT scans, Endoscopy, Bronchoscopy, etc. Ruling out heart >>>>problems, esophigitis, lung cancer, etc. This is REALLY starting to >>>>give me flashbacks of my 6 years of Endo struggles. Usually when you >>>>have most of the medical profession "stumped" with your >>>>symptoms.....it's Endo! >>>> >>>>I have just faxed my recent info to Dr. Redwine to see what he thinks. >>>>Do you have any of the symptoms I write of above? >>>> >>>>So happy you responded...thank you...so good to have someone to talk to >>>>who has already had surgery with Dr. Redwine....who is fabulous, isn't >>>>he? >>>> >>>>Thanks! >>>>Marie >>>>> >>>>Hello :-) Funny you should write this today! I have been researching the >>>>>forum today to help diagnose myself before going back to my doctor next >>>>>week. >>>>> >>>>>My pain is on my right side under the rib cage....deep and it radiates >>>>>up into my shoulder. What I have found is my symptoms are identical to >>>>>those who have been diagnosed with diaphramatic endo. I am curious as >>>>>to what your symptoms are? >>>>> >>>>>I have had two surgeries....first one unsuccesful (local doc), and my >>>>>second one a huge success (with Dr. Redwine). My pain has not returned >>>>>in the areas it was removed :-) I, too, had bladder and colon >>>>>(intestinal) endo. >>>>> >>>>>Mindy >>>>> >>>>>At Mon, 12 Jul 2004, Marie wrote: >>>>>> >>>>>>Can anyone who has been diagnosed with Diaphragmatic Endo tell me their >>>>>>symptoms? I've had 8 surgeries for Pelvic Endo, including bowel, >>>>>>bladder, etc. and the Doctor's are now suspecting Diaphragmatic Endo. >>>>>> >>>>>>Thank you! >>>>>>Marie >>>>>> >>>>>>-- >>>>>>Marie >>>>>> >>>>-- >>>>Marie >>>> >>-- >>Marie >>
|
|
Return to ![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)
Technical Problems: webmaster@obgyn.net
Last Updated: Mon Nov 2 04:06:00 2009
Women's Insurance Checklist from Auto Insurance Quote
home | medical professionals | women | industry | forums | international