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Re: Provera 100mg for endo
From: anonymous (anonymous@obgyn.net)
Fri Jan 30 22:25:10 2009
http://www.endometriosistreatment.org/html/reprint9.html
At Fri, 30 Jan 2009, kchris wrote:
>
>That was me who wrote the message on the 26 Jan "endo in lungs, coughing
>up blood" That explains my story in review. I am in Australia Victoria
>and have been to various Australian web sites for extra advice, I must
>say I am a little disappointed.
>
>I have seen a chest specialist, docs and a gynecologist. After lots of
>disbelief, and 'na, it can't be that' they have diagnosed me with endo
>in the lungs. I have also just had other confirming tests like blood
>work and testing for the cells in the blood I cough up (I am about to
>have another CT before my period next week). They were also thinking of
>performing another bronchoscopy, but because it can sometimes be hard to
>see and I wasn't up to another major procedure. They decided to put
>that off and try provera. They told me if I stop getting the bleeds on
>provera along with the results of the other tests, that really does
>confirm it. I was told provera stops and shrinks the cells and after 6
>to 9 months of treatment I could have a high chance of being symptom
>free from then on.
>
>I had read about the possibility that it could be most likely be in
>other places in my body too. I know I have it near my bowel ect, but it
>does not trouble me really at all. I have pain sometimes (manageable
>with strong panadol), bloating- lose poo. That is why it was such a
>surprise when it started in my lungs. I thought well you would have to
>have it real bad down there to get it somewhere like the lungs- but no
>not at all. The thought of it being else where does scare me a fair bit
>and I asked my gyno about it. He said well the provera will shrink it
>there too if that be the case. He has seen endo in lots of weird places
>but I am the first one with it in the lungs he and his colleagues have
>heard of or seen hear.
>
>I can not believe how scary it has all been. This web site has been my
>beacon. I feel alone a bit here in OZ. I tried to search for that
>other Australain someone mentioned who had endo in the lungs and posted
>here sometime ago. I could not find her....... Would love to speak to
>someone from own country.
>
>Also I will mention that my sister gets endo in her nose and suffered
>from cysts. She is now however symptom free. We have not been on best
>of terms but are beginning to mend some bridges. Hopefully I can chat
>to her for support.
>
>I would love to hear from other ladies who have been on provera 100 mg
>tablets for the treatment of endo. Even better if it was from someone
>who used it for endo in the lungs. I have looked in the archives, but
>that was a bit scary too. Is really that bad and do most people have
>those kind of side effects. I know it is human nature to only report
>bad effects. I am hoping there are woman who have used with no real big
>problems at all. What do you think of my treatment.
>
>Posting is long, sorry :)
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