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Re: I think I have endometriosis
From: E. (anonymous@obgyn.net)
Thu Jan 29 21:53:02 2009
If you do have endo, it's hard to get diagnosed. Most women see a lot
of doctors before they are successfully diagnosed. Don't let a doc put
you on Lupron before diagnosis; get diagnosed by a laparascopy first.
Here are some drs in the northeast:
Dr. Robbins in Maine http://www.endoexcision.com/
Dr. T. Seckin and Dr. Iris Orbuch in NY, you can get them on
ratemds.com.
Dr. Nazhat in NY: http://www.nezhat.org/
It sounds like you have it. I have the same symptoms and pcos. You can
have both.
Keep looking for a doc who takes you seriously.
At Wed, 28 Jan 2009, Brianne wrote:
>
>Since my first menstruation, at age 11, I had painful periods. As I got
>older I was put on birth control pills (which brought on migraines) to
>control the pain. Since I couldn't stay on them I pretty much stuck
>with the pain and heard my grandmother's stories of how she had painful
>periods, and my mother told me the same. Recently I was diagnosed with
>PCOS as well as interstitial cystitis (painful bladder). I figured that
>this is why I have pain during sex and why I have an incredible urge to
>pee, so much so it hurts. I have been put on medication for both PCOS
>and IC and the symptoms are so so. Still, every month my period has me
>doubled over in bed crying. As I get older the cramps are more intense,
>I now have lower back pain, I have pelvic pain and no
>anti-inflammatories bring relief. Heat packs used to, but those no
>longer do. I almost went to the ER yesterday because I just couldn't
>deal with it. I called my gyno and as usual she blew me off. She
>thinks because endometriosis doesn't run in my family, I must not have
>it. She "doesn't know what to tell me" when it comes to my painful
>cramps. She "has done all she can do".
>
>Can anyone recommend a website or gynocologist in the Philadelphia, PA
>area?? I cannot take the blase attitude of my doctor anymore. I know
>something is wrong with my periods and the pain, but no one is listening
>to me. If it isn't endometriosis, it must be something!
>
>Thank you,
>Brianne
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