Re: Dr Kanayama - pain after? - H ow's ANNTANN?
From: Yahoo-er (anonymous@obgyn.net)
Thu Jan 29 07:58:16 2009
I am concerned about a very nice lady who saw Dr. K.
She used to post on the ERC's Yahoo group as "ANNTANN" or something like
that, and we never heard from her after she had excision done by
Kanayama.
Last I knew, though, she was not feeling well and the surgery by
Kanayama was a disappointment.
So it's a huge bummer to know that he's not as good in real life as he
is in his own mind. What a shame for women who are desperate to get
relief.
Anntann, if you're out there, girl, I THINK OF YOU OFTEN and I hope
you've found relief somehow.
Love,
Yahoo-er
At Wed, 28 Jan 2009, anonymous wrote:
>
>I am glad you feel better. 1) Did he charge you the ''full price'' for
>the 2nd surgery? 2) He is known for having people come back a lot of
>times after surgery, of course charging every time (except the immediate
>post-op appointment).
>
>I had similar pains, because, as it turned out my colon was adhered to
>my bowel, ovary etc etc. His surgeries are very bloody and leave you
>open to a lot of adhesions.
>
>He has a very ''fuzzy'' way of saying what seems like the right
>things....
>
>I had trouble walking for a long time after my surgery with him (because
>of the adhesions) and could never recommend him. I am happy to hear
>other women do well after surgery with him, but if women need to have
>that many surgeries with him, he should offer a discount, change his
>method of excision, tell women there may be a chance of needing another
>surgery with him (or with someone else), or maybe figure out what he is
>doing wrong...
>
>At Wed, 28 Jan 2009, Michele wrote:
>>
>>At Wed, 28 Jan 2009, anonymous@obgyn.net wrote:
>>>
>>>At Wed, 4 Jun 2008, Michele wrote:
>>>>
>>>>Hi . Yes I had two surgeries with Dr. Kanayama. I was stage III endo.
>>>>My 1st surgery was 8/06. I had extreme pain everyday. Pain down my
>>>>left side, legs back etc. After my surgery i still had bad pain. I
>>>>went back and he said he would not stop until we knew why. On an ultra
>>>>sound he found a cyst on my left ovary about 5cm so he put me on bc
>>>>pills to shrink it. I went back a month later still had pain but the
>>>>cyst was gone. As he was looking on the ultrasound when he went near
>>>>the left side I felt extreme pain he was looking and actually found a
>>>>mass in the wall of my uterus. It was not inside or outside but in the
>>>>wall. He would not have been able to see it during my first lap. His
>>>>ultra sound mach picked it up because it can show blood flow in tissues.
>>>>I have a family history of cancer so he wanted to remove it. I had my
>>>>second surgery in 2/07. My surgery was over 3 hours this mass was in
>>>>about 12 layers of endo fibroid and the center was blood. the pain was
>>>>from this mass bleeding into itself. He has never seen anything like
>>>>it. It was a form of adenomyosis but a localized case. We are not sure
>>>>how it happened but there is a link of adeno to c-sections which I had
>>>>in 2004. After that surgery I have been pain free and I am now pregnant
>>>>with no help from any drugs. Before i saw him I went to dozens of Dr.'s
>>>>they all pretty much said we have no idea what is wrong with you. He
>>>>did not give up. Go back tell him how you feel and he wont give up on
>>>>you either. Endo is a crazy disease in many cases you do need another
>>>>surgery. Your success rate goes up with a second surgery. I wish you
>>>>all the luck. Michele
>>>>
>>>>At Mon, 2 Jun 2008, LW wrote:
>>>>>
>>>>>Has anyone had surgery with Dr Kanayama, and still had pain afterwards,
>>>>>or worse yet, more problems? thanks
>>>
>>>Hi - this is very interesting to me bc. I had surgery with Dr. Kanayama a month ago
>>>after a failed 1st surgery and he said the surgery was very successful and
>>>all of the endo. is gone. I have stage III as well. Although, I am still having
>>>the same pain LEFT SIDED PAIN if not a little worse and I don't feel that it is
>>>all gone. I think that I may have endo in the wall of my uterus as well but
>>>he says he doesn't see it.
>>>I am very frustrated bc. I know that something is still not right. How long did
>>>it take for him to realize he had missed the mass in your uterus?
>>>What did your pain feel like?
>>>I am so frustrated and would love to hear any advice you can
>>>give me!
>>>Congratulations on your pregnancy.
>>>
>>>Thanks so much.
>>>Kelly
>>
>>--
>>My pain felt like someone was stabbing me on my left side next to my bellybutton and the pain would shoot down my left leg. It was everyday for about 4-5hrs. Nothing would help the pain. I had my 1st surgery in august and he found the mass in early december. I had my 2nd surgery in february 2007 and ever since that day knock on wood I have not had the pain again. after my 1st surgery he knew I still was suffering and he said he would not stop until he found out why. i was going back every month.I am in the medical profession and there is no black and white there is alot of grey. He is a very good Dr.Endo is such a crazy and unpredictable disease. When you have stage III and stage IV endo you have a greater success rate with a second surgery. dont give up and he wont give up on you. Good luck. Michele
>>
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