Re: Dr Kanayama - pain after?
From: anonymous (anonymous@obgyn.net)
Wed Jan 28 21:14:13 2009
I am glad you feel better. 1) Did he charge you the ''full price'' for
the 2nd surgery? 2) He is known for having people come back a lot of
times after surgery, of course charging every time (except the immediate
post-op appointment).
I had similar pains, because, as it turned out my colon was adhered to
my bowel, ovary etc etc. His surgeries are very bloody and leave you
open to a lot of adhesions.
He has a very ''fuzzy'' way of saying what seems like the right
things....
I had trouble walking for a long time after my surgery with him (because
of the adhesions) and could never recommend him. I am happy to hear
other women do well after surgery with him, but if women need to have
that many surgeries with him, he should offer a discount, change his
method of excision, tell women there may be a chance of needing another
surgery with him (or with someone else), or maybe figure out what he is
doing wrong...
At Wed, 28 Jan 2009, Michele wrote:
>
>At Wed, 28 Jan 2009, anonymous@obgyn.net wrote:
>>
>>At Wed, 4 Jun 2008, Michele wrote:
>>>
>>>Hi . Yes I had two surgeries with Dr. Kanayama. I was stage III endo.
>>>My 1st surgery was 8/06. I had extreme pain everyday. Pain down my
>>>left side, legs back etc. After my surgery i still had bad pain. I
>>>went back and he said he would not stop until we knew why. On an ultra
>>>sound he found a cyst on my left ovary about 5cm so he put me on bc
>>>pills to shrink it. I went back a month later still had pain but the
>>>cyst was gone. As he was looking on the ultrasound when he went near
>>>the left side I felt extreme pain he was looking and actually found a
>>>mass in the wall of my uterus. It was not inside or outside but in the
>>>wall. He would not have been able to see it during my first lap. His
>>>ultra sound mach picked it up because it can show blood flow in tissues.
>>>I have a family history of cancer so he wanted to remove it. I had my
>>>second surgery in 2/07. My surgery was over 3 hours this mass was in
>>>about 12 layers of endo fibroid and the center was blood. the pain was
>>>from this mass bleeding into itself. He has never seen anything like
>>>it. It was a form of adenomyosis but a localized case. We are not sure
>>>how it happened but there is a link of adeno to c-sections which I had
>>>in 2004. After that surgery I have been pain free and I am now pregnant
>>>with no help from any drugs. Before i saw him I went to dozens of Dr.'s
>>>they all pretty much said we have no idea what is wrong with you. He
>>>did not give up. Go back tell him how you feel and he wont give up on
>>>you either. Endo is a crazy disease in many cases you do need another
>>>surgery. Your success rate goes up with a second surgery. I wish you
>>>all the luck. Michele
>>>
>>>At Mon, 2 Jun 2008, LW wrote:
>>>>
>>>>Has anyone had surgery with Dr Kanayama, and still had pain afterwards,
>>>>or worse yet, more problems? thanks
>>
>>Hi - this is very interesting to me bc. I had surgery with Dr. Kanayama a month ago
>>after a failed 1st surgery and he said the surgery was very successful and
>>all of the endo. is gone. I have stage III as well. Although, I am still having
>>the same pain LEFT SIDED PAIN if not a little worse and I don't feel that it is
>>all gone. I think that I may have endo in the wall of my uterus as well but
>>he says he doesn't see it.
>>I am very frustrated bc. I know that something is still not right. How long did
>>it take for him to realize he had missed the mass in your uterus?
>>What did your pain feel like?
>>I am so frustrated and would love to hear any advice you can
>>give me!
>>Congratulations on your pregnancy.
>>
>>Thanks so much.
>>Kelly
>
>--
>My pain felt like someone was stabbing me on my left side next to my bellybutton and the pain would shoot down my left leg. It was everyday for about 4-5hrs. Nothing would help the pain. I had my 1st surgery in august and he found the mass in early december. I had my 2nd surgery in february 2007 and ever since that day knock on wood I have not had the pain again. after my 1st surgery he knew I still was suffering and he said he would not stop until he found out why. i was going back every month.I am in the medical profession and there is no black and white there is alot of grey. He is a very good Dr.Endo is such a crazy and unpredictable disease. When you have stage III and stage IV endo you have a greater success rate with a second surgery. dont give up and he wont give up on you. Good luck. Michele
>
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