Re: Dr Kanayama - pain after?
From: anonymous (anonymous@obgyn.net)
Wed Jan 28 13:01:26 2009
1) He won't give up on you, but he'll charge you for every surgery.
2) I cannot imagine why he could not have seen any problems the first
time around. The only reason might be is that his surgeries are very
bloody, and this might have obscured some of what he could see.
3) You might have serious adhesions, as I did. Dr K removed most of my
endo, but I still had some, and I had TERRIBLE adhesions within a short
time of the surgery with him.
He seems to be a nice man, but I don't know if he really knows what he's
doing, 100 %
At Wed, 28 Jan 2009, anonymous@obgyn.net wrote:
>
>At Wed, 4 Jun 2008, Michele wrote:
>>
>>Hi . Yes I had two surgeries with Dr. Kanayama. I was stage III endo.
>>My 1st surgery was 8/06. I had extreme pain everyday. Pain down my
>>left side, legs back etc. After my surgery i still had bad pain. I
>>went back and he said he would not stop until we knew why. On an ultra
>>sound he found a cyst on my left ovary about 5cm so he put me on bc
>>pills to shrink it. I went back a month later still had pain but the
>>cyst was gone. As he was looking on the ultrasound when he went near
>>the left side I felt extreme pain he was looking and actually found a
>>mass in the wall of my uterus. It was not inside or outside but in the
>>wall. He would not have been able to see it during my first lap. His
>>ultra sound mach picked it up because it can show blood flow in tissues.
>>I have a family history of cancer so he wanted to remove it. I had my
>>second surgery in 2/07. My surgery was over 3 hours this mass was in
>>about 12 layers of endo fibroid and the center was blood. the pain was
>>from this mass bleeding into itself. He has never seen anything like
>>it. It was a form of adenomyosis but a localized case. We are not sure
>>how it happened but there is a link of adeno to c-sections which I had
>>in 2004. After that surgery I have been pain free and I am now pregnant
>>with no help from any drugs. Before i saw him I went to dozens of Dr.'s
>>they all pretty much said we have no idea what is wrong with you. He
>>did not give up. Go back tell him how you feel and he wont give up on
>>you either. Endo is a crazy disease in many cases you do need another
>>surgery. Your success rate goes up with a second surgery. I wish you
>>all the luck. Michele
>>
>>At Mon, 2 Jun 2008, LW wrote:
>>>
>>>Has anyone had surgery with Dr Kanayama, and still had pain afterwards,
>>>or worse yet, more problems? thanks
>
>--
>Hi - this is very interesting to me bc. I had surgery with Dr. Kanayama a month ago
>after a failed 1st surgery and he said the surgery was very successful and
>all of the endo. is gone. I have stage III as well. Although, I am still having
>the same pain LEFT SIDED PAIN if not a little worse and I don't feel that it is
>all gone. I think that I may have endo in the wall of my uterus as well but
>he says he doesn't see it.
>I am very frustrated bc. I know that something is still not right. How long did
>it take for him to realize he had missed the mass in your uterus?
>What did your pain feel like?
>I am so frustrated and would love to hear any advice you can
>give me!
>Congratulations on your pregnancy.
>
>Thanks so much.
>Kelly
>
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