Re: Dr Kanayama - pain after?
From: anonymous (anonymous@obgyn.net)
Wed Jan 28 12:58:05 2009
Meant to add, centerforendo.com
I would not go to Kanayama. I too went to him, and then needed another
surgery? WHAT IS THE POINT, DR KANAYAMA???? I wish more women knew about
this.
I went to the CEC and am doing very well.
Check it out, get in touch with them. Send them your records, for a
consultation. You won't be the first woman to have go through this.
I'd tell women, don't have a first surgery with Kanayama, certainly
don't have a 2nd one!
At Wed, 28 Jan 2009, anonymous@obgyn.net wrote:
>
>At Wed, 4 Jun 2008, Michele wrote:
>>
>>Hi . Yes I had two surgeries with Dr. Kanayama. I was stage III endo.
>>My 1st surgery was 8/06. I had extreme pain everyday. Pain down my
>>left side, legs back etc. After my surgery i still had bad pain. I
>>went back and he said he would not stop until we knew why. On an ultra
>>sound he found a cyst on my left ovary about 5cm so he put me on bc
>>pills to shrink it. I went back a month later still had pain but the
>>cyst was gone. As he was looking on the ultrasound when he went near
>>the left side I felt extreme pain he was looking and actually found a
>>mass in the wall of my uterus. It was not inside or outside but in the
>>wall. He would not have been able to see it during my first lap. His
>>ultra sound mach picked it up because it can show blood flow in tissues.
>>I have a family history of cancer so he wanted to remove it. I had my
>>second surgery in 2/07. My surgery was over 3 hours this mass was in
>>about 12 layers of endo fibroid and the center was blood. the pain was
>>from this mass bleeding into itself. He has never seen anything like
>>it. It was a form of adenomyosis but a localized case. We are not sure
>>how it happened but there is a link of adeno to c-sections which I had
>>in 2004. After that surgery I have been pain free and I am now pregnant
>>with no help from any drugs. Before i saw him I went to dozens of Dr.'s
>>they all pretty much said we have no idea what is wrong with you. He
>>did not give up. Go back tell him how you feel and he wont give up on
>>you either. Endo is a crazy disease in many cases you do need another
>>surgery. Your success rate goes up with a second surgery. I wish you
>>all the luck. Michele
>>
>>At Mon, 2 Jun 2008, LW wrote:
>>>
>>>Has anyone had surgery with Dr Kanayama, and still had pain afterwards,
>>>or worse yet, more problems? thanks
>
>--
>Hi - this is very interesting to me bc. I had surgery with Dr. Kanayama a month ago
>after a failed 1st surgery and he said the surgery was very successful and
>all of the endo. is gone. I have stage III as well. Although, I am still having
>the same pain LEFT SIDED PAIN if not a little worse and I don't feel that it is
>all gone. I think that I may have endo in the wall of my uterus as well but
>he says he doesn't see it.
>I am very frustrated bc. I know that something is still not right. How long did
>it take for him to realize he had missed the mass in your uterus?
>What did your pain feel like?
>I am so frustrated and would love to hear any advice you can
>give me!
>Congratulations on your pregnancy.
>
>Thanks so much.
>Kelly
>
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