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Re: Dr Kanayama - pain after?From: anonymous@obgyn.netWed Jan 28 11:09:03 2009
At Wed, 4 Jun 2008, Michele wrote: > >Hi . Yes I had two surgeries with Dr. Kanayama. I was stage III endo. >My 1st surgery was 8/06. I had extreme pain everyday. Pain down my >left side, legs back etc. After my surgery i still had bad pain. I >went back and he said he would not stop until we knew why. On an ultra >sound he found a cyst on my left ovary about 5cm so he put me on bc >pills to shrink it. I went back a month later still had pain but the >cyst was gone. As he was looking on the ultrasound when he went near >the left side I felt extreme pain he was looking and actually found a >mass in the wall of my uterus. It was not inside or outside but in the >wall. He would not have been able to see it during my first lap. His >ultra sound mach picked it up because it can show blood flow in tissues. >I have a family history of cancer so he wanted to remove it. I had my >second surgery in 2/07. My surgery was over 3 hours this mass was in >about 12 layers of endo fibroid and the center was blood. the pain was >from this mass bleeding into itself. He has never seen anything like >it. It was a form of adenomyosis but a localized case. We are not sure >how it happened but there is a link of adeno to c-sections which I had >in 2004. After that surgery I have been pain free and I am now pregnant >with no help from any drugs. Before i saw him I went to dozens of Dr.'s >they all pretty much said we have no idea what is wrong with you. He >did not give up. Go back tell him how you feel and he wont give up on >you either. Endo is a crazy disease in many cases you do need another >surgery. Your success rate goes up with a second surgery. I wish you >all the luck. Michele > >At Mon, 2 Jun 2008, LW wrote: >> >>Has anyone had surgery with Dr Kanayama, and still had pain afterwards, >>or worse yet, more problems? thanks Hi - this is very interesting to me bc. I had surgery with Dr. Kanayama a month ago after a failed 1st surgery and he said the surgery was very successful and all of the endo. is gone. I have stage III as well. Although, I am still having the same pain LEFT SIDED PAIN if not a little worse and I don't feel that it is all gone. I think that I may have endo in the wall of my uterus as well but he says he doesn't see it. I am very frustrated bc. I know that something is still not right. How long did it take for him to realize he had missed the mass in your uterus? What did your pain feel like? I am so frustrated and would love to hear any advice you can give me! Congratulations on your pregnancy. Thanks so much. Kelly
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