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Re: What after an unsuccessful sugery with an Endo specialist?! = Dr. Cook
From: anonymous (anonymous@obgyn.net)
Tue Jan 27 03:01:41 2009
Sorry, just reading the posts. There is not much help they can provide
b/c my insurance is self-funded, I believe they call it, meaning, they
are excempt from many state insurance laws. I'm still hoping for the
best. I'm trying to locate case studies and any info that proves that
excision is superior to electrocoagulation, that electrocoagulation is
not normally done on certain organs for fear of harming underlying
tissue, and that there is no dr. in network that does complete
excision. Thanks for the suggestion though, I do appreciate it!
At Wed, 21 Jan 2009, anonymous wrote:
>
>Have you looked into any of your state laws regarding this? i wonder if
>they could help.
>
>At Wed, 21 Jan 2009, anonymous wrote:
>>
>>The first was just denied so I am starting the second, I'll keep at it
>>until I can't any longer.
>>
>>At Wed, 21 Jan 2009, liz wrote:
>>>
>>>Anon, did you do an insurance appeal?
>>>
>>>At Wed, 21 Jan 2009, anonymous wrote:
>>>>
>>>>Hello "ZZ." I wanted to ask you if you wouldn't mind me emailing you
>>>>about the dr. I would like to know the name as I am very curious, I do
>>>>understand if you do not wish to disclose that, even in an email. I
>>>>wish I could give you some good info on your specific question but to be
>>>>honest, and I do not mean this in a bad way so please don't take it that
>>>>way...but it would seem to me that you either have something else that
>>>>is causing your pain, which is why you may still have the same pain even
>>>>after surgery with a specialist, although I have no idea would it could
>>>>be, or, you may unfortuntely be one of the exceptions, you may just be
>>>>that "pain in the butt" patient. I don't believe there is any dr. that
>>>>can get it right 100% of the time, a few patients will not get relief
>>>>with even the best endo dr. And instead of continuing to help you out,
>>>>the dr. is giving up, believes he did everything he could. Now don't
>>>>get me wrong, I do not agree with the dr. doing that and you have every
>>>>right to be upset, I know I would be, especially after 25G's was spent.
>>>>Your case just seems very perplexing. I had surgery with a top dr. and
>>>>after insurance I still owe roughly 8G and that peeves me, more b/c of
>>>>the insurance not covering it all. While I believe the dr. was worth
>>>>every penny I do believe my insurance should pay for it, 100%. Anyhow,
>>>>I hope you find relief, I couldn't imagine. I just think you have to be
>>>>one of those exceptions or it has to be something else. I do wish you
>>>>luck and please let me know if you wouldn't mind sharing with me through
>>>>email. Thanks and take care.
>>>>
>>>>At Sun, 18 Jan 2009, ZZ wrote:
>>>>>
>>>>>Hi there,
>>>>>
>>>>>I can't email you since you're showing as anonymous. Can you please
>>>>>email me at: zzviolin@gmail.com to discuss both of us going to Dr. Cook
>>>>>in the future, although mine won't be anytime soon since I can't afford
>>>>>it just now, but I understand you are having a surgery shortly with him,
>>>>>are you not? I'd be very interested in hearing about the outcome of it
>>>>>and I wish you all the best at your upcoming excision & hysterectomy
>>>>>(I'd also love to ask you how you decided on that, if you don't mind).
>>>>>
>>>>>Glad I could help a tiny little bit with the laser tool info. That's
>>>>>what we should do for each other on this forum, but it seems it's turned
>>>>>into a "know-it-all" heaven and a marketing strategy for just one group
>>>>>of doctors - the CEC. I doubt I'll be sticking around much longer,
>>>>>unless things change so that people & doctors are not attacked for
>>>>>subjective reasons.
>>>>>
>>>>>Also worth knowing: if you absolutely don't want laser used in your
>>>>>excision surgery with Dr. Cook.. this is a little tidbit I found today
>>>>>while reading his website:
>>>>>
>>>>>----> "If the patient wants excision only this is not a problem, as
>>>>>always I am there in surgery to do what they want to have happen."
>>>>><-----
>>>>>
>>>>>That was found on this part of his site (second to last paragraph, but
>>>>>the whole thing is well worth reading):
>>>>>http://www.vitalcareinstitute.com/truth.html
>>>>>
>>>>>Those badmouthing a very good excision specialist should first learn to
>>>>>read properly. I've known for some time that he, like many others,
>>>>>doesn't use laser as anything but a cutting tool.... which is the same
>>>>>use of laser as in any other laparoscopic surgery - gallbladder or
>>>>>appendix removal, to name a few, but there are many more!
>>>>>
>>>>>It's all available to those who READ or even ASK the doctor how and what
>>>>>he uses. I was attacked few days ago for not knowing which tools my
>>>>>surgeon used, 8 months after my lap. LOL :)) Of course, I could have
>>>>>fished out the report and read that info, but I didn't feel the tools
>>>>>used by an endo specialist are my problem at this point in time (since I
>>>>>already asked and was satisfied with the answers of my surgeon PRIOR to
>>>>>the surgery).
>>>>>
>>>>>All my best to you!! I hope your surgery is a great success and that
>>>>>you're pain-free forever after it!!!
>>>>>
>>>>>Hugss,
>>>>>ZZ
>>>>>
>>>>>At Sun, 18 Jan 2009, anonymous wrote:
>>>>>>
>>>>>>Well, i went through the other doctor's sites and Dr. Cook's site again
>>>>>>and watched the videos showing the different removal techniques and I am
>>>>>>quite comfortable going to see him based on what he and I have
>>>>>>discussed. You were correct ZZ, the laser is used as a cutting tool,
>>>>>>not for ablation or cauterization.
>>>>>>
>>>>>>Before we all run Dr. Cook through the grinder here, has anyone
>>>>>>actually gone to him/had surgery with him? I'd be interested in hearing
>>>>>>about your experience. Please respond or feel free to email me.
>>>>>>
>>>>>>Thanks.
>>>>>>
>>>>>>At Sun, 18 Jan 2009, ZZ wrote:
>>>>>>>
>>>>>>>Just a little input on this.
>>>>>>>
>>>>>>>During a laparoscopy, a laser can be used to CUT the bad endo tissue off
>>>>>>>from the healthy one.. meaning its used as a cutting tool, and not used
>>>>>>>to "burn" anything off (ie. ablation).
>>>>>>>
>>>>>>>That's one gigantic difference when speaking about different methods of
>>>>>>>the use of different tools in laparoscopy - you HAVE TO know what is
>>>>>>>exactly the tool being used for, and what is done with it, before
>>>>>>>starting to judge its ineffectiveness.
>>>>>>>
>>>>>>>Just because someone yells OMG LASERING STUFF IS BAD doesn't mean a
>>>>>>>laser cannot be used in this procedure, for cutting the tissue off, as
>>>>>>>only one example. If a tool is used (any tool) it's VERY important to
>>>>>>>know HOW AND FOR WHAT it is used, before starting to either push for it,
>>>>>>>or against it.
>>>>>>>
>>>>>>>Hope that helps a bit, sorry if I'm not explaining it properly.. I am
>>>>>>>not a doctor, and if you wish to research different methods of
>>>>>>>laparoscopy, tools used in it, etc. maybe you should speak to a
>>>>>>>doctor.. not seek info on a basic "help" forum.
>>>>>>>
>>>>>>>Also, I had no idea these doctors you mentioned referred patients to
>>>>>>>each other.. that strikes me as odd (provided they don't work in the
>>>>>>>same office, which is the only way it'd make sense)... because why
>>>>>>>would each of them be losing out on any cash they can gain from the
>>>>>>>surgeries performed?
>>>>>>>
>>>>>>>Good luck!!
>>>>>>>ZZ
>>>>>>>
>>>>>>>At Sun, 18 Jan 2009, Lauren wrote:
>>>>>>>>
>>>>>>>>Cook writes on his site:
>>>>>>>>
>>>>>>>>"The EVE Procedure™ is a comprehensive process that effectively removes
>>>>>>>>endometriosis from the body. The EVE Procedure™ utilizes wide excision
>>>>>>>>of the endometriosis as the primary technique with vaporization of
>>>>>>>>endometriosis IN CRITICAL AREAS WHERE VERY PRECISE REMOVAL OF TISSUE
>>>>>>>>FROM VITAL STRUCTURES IS REQUIRED AND WHERE EXCISION ALONE WOULD DAMAGE
>>>>>>>>AN UNNECESSARY AMOUNT OF NORMAL TISSUE." [emphasis added]
>>>>>>>>
>>>>>>>>None of the renowned, effective specialist would ever dream of doing
>>>>>>>>vaporization (ablation) on areas and it's complete B.S. for Cook to
>>>>>>>>claim that excision alone would damage an unnecessary amount of normal
>>>>>>>>tissue.
>>>>>>>>
>>>>>>>>QUITE THE CONTRARY: excision alone does much less damage than zapping
>>>>>>>>the surface layer with laser does.
>>>>>>>>
>>>>>>>>For those wondering about ablation, the definition is: Endometrial
>>>>>>>>ablation is a procedure that uses a lighted viewing instrument
>>>>>>>>(hysteroscope) and other instruments to destroy (ablate) the uterine
>>>>>>>>lining, or endometrium. Endometrial ablation can be done by:
>>>>>>>>
>>>>>>>>Laser beam (laser thermal ablation).
>>>>>>>>Heat (thermal ablation), using: radiofrequency, thermal balloon
>>>>>>>>ablation, or heated free fluid);
>>>>>>>>Electricity, using a resectoscope with a loop or rolling ball electrode.
>>>>>>>>Freezing.
>>>>>>>>Microwave.
>>>>>>>>
>>>>>>>>IT'S VERY IMPORTANT TO SPREAD THE WORD THAT DR. COOK USES THIS
>>>>>>>>INEFFECTIVE METHOD WHEN HE CAN'T "GET TO" DIFFICULT LOCATIONS USING
>>>>>>>>EXCISION ALONE.
>>>>>>>>
>>>>>>>>I NOTICED THAT THE OTHER SURGEONS WHO SOMETIMES REFER PATIENTS AMONG
>>>>>>>>THEMSELVES (ALBEE, SINERVO, REDWINE, ROBBINS, ETC., ETC.) DO NOT INCLUDE
>>>>>>>>COOK IN THEIR CIRCLE. If the doctors don't regard Cook to be "one of
>>>>>>>>them," then I do not, either.
>>>>>>>>
>>>>>>>>At Sun, 18 Jan 2009, liz wrote:
>>>>>>>>>
>>>>>>>>>Wanted to add, the use of laser is not the problem. It's perhaps either
>>>>>>>>>why it's used, or how, or both (sorry, I forget at the moment!)
>>>>>>>>>
>>>>>>>>>Vaporization is the word I was trying to think of. I think some people
>>>>>>>>>think that's a problem. I think you can read more about this on the ERC
>>>>>>>>>site.
>>>>>>>>>
>>>>>>>>>I wish I'd known more about some of these things a few years ago, about
>>>>>>>>>the methods...they do matter and affect us!
>>>>>>>>>
>>>>>>>>>Here's the site where there's some info
>>>>>>>>>
>>>>>>>>>http://www.pelvicpain.com/EVE_Procedure.html
>>>>>>>>>
>>>>>>>>>At Sun, 18 Jan 2009, liz wrote:
>>>>>>>>>>
>>>>>>>>>>Can I ask, do you want the hyst? Does he think you have adeno?
>>>>>>>>>>
>>>>>>>>>>At Sat, 17 Jan 2009, anonymous wrote:
>>>>>>>>>>>
>>>>>>>>>>>Can any of you ladies speak to this? I have excision surgery and
>>>>>>>>>>>hysterectomy scheduled w/ dr. cook in a couple of weeks. He
>>>>>>>>>>>specifically told me he would be doing excision with SCISSORS not LASER.
>>>>>>>>>>>Any info is appreciated, because now I'm freaking out. I realize that
>>>>>>>>>>>there is a percentage of people where excision doesnt work, but again,
>>>>>>>>>>>any info is appreciated.
>>>>>>>>>>>
>>>>>>>>>>>I was not aware of him having a bad success rate. In fact, what I've
>>>>>>>>>>>read about him states the contrary.
>>>>>>>>>>>
>>>>>>>>>>>Thanks.
>>>>>>>>>>>
>>>>>>>>>>>At Sat, 17 Jan 2009, Maribeth wrote:
>>>>>>>>>>>>
>>>>>>>>>>>>Hey ZZ did you see Dr. Cook in California?
>>>>>>>>>>>>
>>>>>>>>>>>>He is renowned for telling women he can fix them but then disappointing
>>>>>>>>>>>>them greatly.
>>>>>>>>>>>>
>>>>>>>>>>>>Apparently the reason he has such a bad success rate is that COOK USES
>>>>>>>>>>>>LASER.
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