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Re: endometriosis in lungs, coughing up blood
From: anonymous (anonymous@obgyn.net)
Mon Jan 26 21:25:45 2009
Lupron affects hormones, it's bad for most women.
Synthetic hormones are bad for women.
Natural, bio-identical hormones, the kind Oprah has recently discussed
on her show, are ok and good. BUT they do not remove endo.
At Mon, 26 Jan 2009, kchris wrote:
>
>At Mon, 26 Jan 2009, anonymous wrote:
>>
>>Are you in the UK? There are at least one or two docs there that do
>>keyhole surgery.
>>
>>SOunds like diaphragmatic endo...but I wanted to say, when I had surgery
>>they saw much more endo than anyone would think, but it was an expert.
>>If they didn't see much endo, chances are you have more than they think.
>>
>>You need an expert. If you are looking for a doctor in the US, there
>>are many here. centerforendo.com was good for me.
>>
>>If you are outside the US, why not join the ERC site for doctor
>>recommendations?
>>
>>(also docs in the US).
>>
>>erc.activboard.com/
>>
>>At Mon, 26 Jan 2009, anonymous wrote:
>>>
>>>Hi I am new to the site. I am a 32yr mother of a 3 old and a 8mth old.
>>>I found out I had endo after failing to full pregnant unassisted with my
>>>first child. It was discovered after having a laparoscopy but was
>>>always suspected. I did not have it to a huge degree and due to the
>>>origin it was hard to laser. I was able to manage it on my own (painful
>>>occasionally). I fell pregnant both times on the drug clomiphene. Both
>>>babies were born via c-section. After the birth of my 2nd bub I had
>>>continual hormonal bleeding up until I got my first period at four
>>>months. It was with this period that I experienced my first case of
>>>coughing up blood. It has happened with every period since on the exact
>>>same day of my cycle. The amount I cough up does vary slightly but I
>>>have been told it is about 20-30mls. I have been on a roller coaster
>>>and am on the verge of being officially diagnosed with endo in the
>>>lungs. I had a CT after the 1st bleed and It showed something they
>>>thought was a form of pnuemonia. I was placed on antibiotics and was
>>>told the blood was probably due to the infection. After the 2nd bleed
>>>they still thought infection and I had more antibiotics. By the third
>>>bleed they were starting to think endo but still thought infection
>>>because endo in lungs rare and very rare so soon after birth. I was
>>>placed on more antibiotics which has now buggered my digestive system
>>>and I am seeking treatment for that too. I have had 5 episodes of
>>>coughing up blood from my lungs. I am a very active person and am
>>>frightened by what I have read on some websites. Is there anyone else
>>>out there who has or knows of someone with similar condition. I would
>>>love to here their story and what course of treatment they underwent. I
>>>feel alone and the doctors I have seen do not seem to know much about
>>>it. I have had a bronchoscopy which was performed mid cycle and showed
>>>nothing. It did rule out other possible nasty possibilities though. I
>>>have been referred by my chest specialist to a gyno- who hopefully will
>>>shed some light. I think they are going to perform another bronchoscopy
>>>a few days before I have a period due.
>>>Sorry very long...help
>
>--
>Thanks for your reply. I am in Australia and have found it hard to find information on my condition
>in Australia. I am a bit sick of vague answers from the doctors I have seen and am scared of further
>hit and miss treatments.
>
>How much blood were you coughing up? and was removing it a last resort treatment. I think my doctors was
>talking hormones, which freaks me out too. What about side effects?
>
>It is the not knowing that is so scary.
>
>Thanks.
>
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