 |
 |
 |
|
|
|||
|
|
||||
|
||||
|
|
Re: endometriosis in lungs, coughing up bloodFrom: kchris (anonymous@obgyn.net)Mon Jan 26 16:42:19 2009
At Mon, 26 Jan 2009, anonymous wrote: > >Are you in the UK? There are at least one or two docs there that do >keyhole surgery. > >SOunds like diaphragmatic endo...but I wanted to say, when I had surgery >they saw much more endo than anyone would think, but it was an expert. >If they didn't see much endo, chances are you have more than they think. > >You need an expert. If you are looking for a doctor in the US, there >are many here. centerforendo.com was good for me. > >If you are outside the US, why not join the ERC site for doctor >recommendations? > >(also docs in the US). > >erc.activboard.com/ > >At Mon, 26 Jan 2009, anonymous wrote: >> >>Hi I am new to the site. I am a 32yr mother of a 3 old and a 8mth old. >>I found out I had endo after failing to full pregnant unassisted with my >>first child. It was discovered after having a laparoscopy but was >>always suspected. I did not have it to a huge degree and due to the >>origin it was hard to laser. I was able to manage it on my own (painful >>occasionally). I fell pregnant both times on the drug clomiphene. Both >>babies were born via c-section. After the birth of my 2nd bub I had >>continual hormonal bleeding up until I got my first period at four >>months. It was with this period that I experienced my first case of >>coughing up blood. It has happened with every period since on the exact >>same day of my cycle. The amount I cough up does vary slightly but I >>have been told it is about 20-30mls. I have been on a roller coaster >>and am on the verge of being officially diagnosed with endo in the >>lungs. I had a CT after the 1st bleed and It showed something they >>thought was a form of pnuemonia. I was placed on antibiotics and was >>told the blood was probably due to the infection. After the 2nd bleed >>they still thought infection and I had more antibiotics. By the third >>bleed they were starting to think endo but still thought infection >>because endo in lungs rare and very rare so soon after birth. I was >>placed on more antibiotics which has now buggered my digestive system >>and I am seeking treatment for that too. I have had 5 episodes of >>coughing up blood from my lungs. I am a very active person and am >>frightened by what I have read on some websites. Is there anyone else >>out there who has or knows of someone with similar condition. I would >>love to here their story and what course of treatment they underwent. I >>feel alone and the doctors I have seen do not seem to know much about >>it. I have had a bronchoscopy which was performed mid cycle and showed >>nothing. It did rule out other possible nasty possibilities though. I >>have been referred by my chest specialist to a gyno- who hopefully will >>shed some light. I think they are going to perform another bronchoscopy >>a few days before I have a period due. >>Sorry very long...help Thanks for your reply. I am in Australia and have found it hard to find information on my condition in Australia. I am a bit sick of vague answers from the doctors I have seen and am scared of further hit and miss treatments. How much blood were you coughing up? and was removing it a last resort treatment. I think my doctors was talking hormones, which freaks me out too. What about side effects? It is the not knowing that is so scary. Thanks.
|
|
Return to ![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)
Technical Problems: webmaster@obgyn.net
Last Updated: Mon Nov 2 04:06:00 2009
Women's Insurance Checklist from Auto Insurance Quote
home | medical professionals | women | industry | forums | international