Re: endometriosis in lungs, coughing up blood
For more information on symptoms and treatment of endometriosis visit www.EndometriosisZONE.org.
From: anonymous (anonymous@obgyn.net)
Mon Jan 26 11:24:07 2009
Are you in the UK? There are at least one or two docs there that do
keyhole surgery.
SOunds like diaphragmatic endo...but I wanted to say, when I had surgery
they saw much more endo than anyone would think, but it was an expert.
If they didn't see much endo, chances are you have more than they think.
You need an expert. If you are looking for a doctor in the US, there
are many here. centerforendo.com was good for me.
If you are outside the US, why not join the ERC site for doctor
recommendations?
(also docs in the US).
erc.activboard.com/
At Mon, 26 Jan 2009, anonymous wrote:
>
>Hi I am new to the site. I am a 32yr mother of a 3 old and a 8mth old.
>I found out I had endo after failing to full pregnant unassisted with my
>first child. It was discovered after having a laparoscopy but was
>always suspected. I did not have it to a huge degree and due to the
>origin it was hard to laser. I was able to manage it on my own (painful
>occasionally). I fell pregnant both times on the drug clomiphene. Both
>babies were born via c-section. After the birth of my 2nd bub I had
>continual hormonal bleeding up until I got my first period at four
>months. It was with this period that I experienced my first case of
>coughing up blood. It has happened with every period since on the exact
>same day of my cycle. The amount I cough up does vary slightly but I
>have been told it is about 20-30mls. I have been on a roller coaster
>and am on the verge of being officially diagnosed with endo in the
>lungs. I had a CT after the 1st bleed and It showed something they
>thought was a form of pnuemonia. I was placed on antibiotics and was
>told the blood was probably due to the infection. After the 2nd bleed
>they still thought infection and I had more antibiotics. By the third
>bleed they were starting to think endo but still thought infection
>because endo in lungs rare and very rare so soon after birth. I was
>placed on more antibiotics which has now buggered my digestive system
>and I am seeking treatment for that too. I have had 5 episodes of
>coughing up blood from my lungs. I am a very active person and am
>frightened by what I have read on some websites. Is there anyone else
>out there who has or knows of someone with similar condition. I would
>love to here their story and what course of treatment they underwent. I
>feel alone and the doctors I have seen do not seem to know much about
>it. I have had a bronchoscopy which was performed mid cycle and showed
>nothing. It did rule out other possible nasty possibilities though. I
>have been referred by my chest specialist to a gyno- who hopefully will
>shed some light. I think they are going to perform another bronchoscopy
>a few days before I have a period due.
>Sorry very long...help
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