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BEST POST OF 2008 - Re: A comment regarding negativity of :upron
From: Ex (anonymous@obgyn.net)
Wed Dec 31 20:37:44 2008
The following post is the best-written, most rational, and most helpful
post I've seen on here in a long time. NICE JOB.
Thank you.
At Wed, 31 Dec 2008, anonymous wrote:
>
>Actually, it has nothing to do with being angry or having the right to
>be angry about endo, Lupron, or it's potential side effects. Those who
>have been down the Lupron road are simply responding with their personal
>experiences when asked. That's it. A newly diagnosed endo patient
>finds this site, asks questions about this disease and relates that
>their doctor is recommending a very potentially dangerous drug that is
>only a short-term band-aid (if that), and then gets upset when they feel
>that others (who truly KNOW endo and Lupron all too well!) are being
>"negative" about it. It has absoloutely nothing to do with trying to be
>negative or angry at all! It has to do only with the TRUTH, and sadly,
>when it comes to endo and Lupron, the TRUTH is very ugly...but it's
>still the TRUTH!! There have been a few posters that have gone
>over-board in my opinion, but I still know that what they are saying is
>real and they are only sharing what they have already learned the hard
>way, to try and save another woman from going through the same, negative
>experience they have already been through. It's pretty simple to
>understand. Those who have already been there are trying to help those
>who are headed in the same direction a lot of time and trouble by being
>as honest as possible. Yes, it's hard to hear, but it's even worse to
>live through it, then try to help others out with much needed info, only
>to be continually told they are "being too negative"! Sadly, there is
>nothing positive about endometriosis, Lupron, or major surgery. Why
>should any of it be sugar-coated? Endo is a horrible disease to live
>with and Lupron is a horrible drug to have ravaging one's body and mind,
>and many, many women end up with PERMANENT NEGATIVE side-effects from
>both.
>
>At Thu, 18 Dec 2008, anonymous wrote:
>>
>>IMO, you do not know enough about endo, excision surgery and lupron to
>>tell others what to do, and to tell them not to warn others.
>>
>>At Thu, 18 Dec 2008, Minnie wrote:
>>>
>>>I just want to add my two cents here. I agree with what some of you are
>>>saying about the negativity of some regarding the lupron. Being overly
>>>negative is not constructive, and in my situation, being someone who has
>>>never used it before and is going in for my first laparoscopy and
>>>treatment in a month, it only makes me more nervous and confused. On
>>>the other hand, if you have suffered from the side effects I do believe
>>>you and my prays for you. You have a right to be angry, nobody can take
>>>that away from you, and although bringing research into the picture has
>>>it's educational benefits it should used in a seperate post and
>>>discussion, not in a manner that disregards the pain of others, while
>>>claiming that you see no obvious problem. Making your argument about
>>>wanting less negativity regarding lupron is perfectly understandable and
>>>necessary to the overall effectiveness of this forum, however, one
>>>should be careful how they say things to others. We are here to learn
>>>from eachother with compassion, which first means that to some
>>>reasonable extent we must accept that those out there who have suffered
>>>are going to be very angry, and rightfully so. Although, for those of
>>>you who go overboard in being negative you also contradict the purpose
>>>of this forum, which should be to share your story with others in an
>>>effective manner so that those like myself who have not tried lupron
>>>have options and new possibilities open to them. Hey everyone, please
>>>understand that I am only pointing out some observations here. I am not
>>>trying to upset anyone with these statements I have made and if I have I
>>>am sorry. I will personally say that in my own experience with 7 years
>>>of birth control pills (which have not helped me with this severe pelvic
>>>pain that is not yet officially diagnosed), I know what it feels like to
>>>be told by doctors that only certain side effects are reported with the
>>>pill, but the unique ones I was having could not possibly be because of
>>>the pill and I was just being delusional. Yeah like a perfectly healthy
>>>athlete starts taking the pills, and it is what, just a coincidence to
>>>start having chronic infections non-stop every month that are never had
>>>before. Deep down I knew this was BS. Maybe what we all need is to
>>>listen to that voice and intuition more closely that tells us something
>>>is wrong. Nothing is every completely understood and just because
>>>research shows something, just not make it all inclusive of all medical
>>>incidents. Science is not God, remember that first
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