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Re: A comment regarding negativity of :upron
From: anonymous (anonymous@obgyn.net)
Wed Dec 31 18:04:09 2008
Actually, it has nothing to do with being angry or having the right to
be angry about endo, Lupron, or it's potential side effects. Those who
have been down the Lupron road are simply responding with their personal
experiences when asked. That's it. A newly diagnosed endo patient
finds this site, asks questions about this disease and relates that
their doctor is recommending a very potentially dangerous drug that is
only a short-term band-aid (if that), and then gets upset when they feel
that others (who truly KNOW endo and Lupron all too well!) are being
"negative" about it. It has absoloutely nothing to do with trying to be
negative or angry at all! It has to do only with the TRUTH, and sadly,
when it comes to endo and Lupron, the TRUTH is very ugly...but it's
still the TRUTH!! There have been a few posters that have gone
over-board in my opinion, but I still know that what they are saying is
real and they are only sharing what they have already learned the hard
way, to try and save another woman from going through the same, negative
experience they have already been through. It's pretty simple to
understand. Those who have already been there are trying to help those
who are headed in the same direction a lot of time and trouble by being
as honest as possible. Yes, it's hard to hear, but it's even worse to
live through it, then try to help others out with much needed info, only
to be continually told they are "being too negative"! Sadly, there is
nothing positive about endometriosis, Lupron, or major surgery. Why
should any of it be sugar-coated? Endo is a horrible disease to live
with and Lupron is a horrible drug to have ravaging one's body and mind,
and many, many women end up with PERMANENT NEGATIVE side-effects from
both.
At Thu, 18 Dec 2008, anonymous wrote:
>
>IMO, you do not know enough about endo, excision surgery and lupron to
>tell others what to do, and to tell them not to warn others.
>
>At Thu, 18 Dec 2008, Minnie wrote:
>>
>>I just want to add my two cents here. I agree with what some of you are
>>saying about the negativity of some regarding the lupron. Being overly
>>negative is not constructive, and in my situation, being someone who has
>>never used it before and is going in for my first laparoscopy and
>>treatment in a month, it only makes me more nervous and confused. On
>>the other hand, if you have suffered from the side effects I do believe
>>you and my prays for you. You have a right to be angry, nobody can take
>>that away from you, and although bringing research into the picture has
>>it's educational benefits it should used in a seperate post and
>>discussion, not in a manner that disregards the pain of others, while
>>claiming that you see no obvious problem. Making your argument about
>>wanting less negativity regarding lupron is perfectly understandable and
>>necessary to the overall effectiveness of this forum, however, one
>>should be careful how they say things to others. We are here to learn
>>from eachother with compassion, which first means that to some
>>reasonable extent we must accept that those out there who have suffered
>>are going to be very angry, and rightfully so. Although, for those of
>>you who go overboard in being negative you also contradict the purpose
>>of this forum, which should be to share your story with others in an
>>effective manner so that those like myself who have not tried lupron
>>have options and new possibilities open to them. Hey everyone, please
>>understand that I am only pointing out some observations here. I am not
>>trying to upset anyone with these statements I have made and if I have I
>>am sorry. I will personally say that in my own experience with 7 years
>>of birth control pills (which have not helped me with this severe pelvic
>>pain that is not yet officially diagnosed), I know what it feels like to
>>be told by doctors that only certain side effects are reported with the
>>pill, but the unique ones I was having could not possibly be because of
>>the pill and I was just being delusional. Yeah like a perfectly healthy
>>athlete starts taking the pills, and it is what, just a coincidence to
>>start having chronic infections non-stop every month that are never had
>>before. Deep down I knew this was BS. Maybe what we all need is to
>>listen to that voice and intuition more closely that tells us something
>>is wrong. Nothing is every completely understood and just because
>>research shows something, just not make it all inclusive of all medical
>>incidents. Science is not God, remember that first
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