Re: Lupron or Laparoscopy?? So much pain :(
From: anonymous (anonymous@obgyn.net)
Tue Dec 30 17:53:54 2008
I post this all the time :)
endoexcision.com
endometriosissurgeon.com
centerforendo.com
erc.activboard.com/
pelvicpain.com
At Tue, 30 Dec 2008, Leanne wrote:
>
>Thanks for your response! How do you find a specialist for
>endometriosis? I have looked online, but there don't seem to be any
>anywhere near me.
>
>At Tue, 30 Dec 2008, anonymous wrote:
>>
>>Hi Leanne,
>>
>>I'm obviously not a doc, but it sounds like endo.
>>
>>I had never heard of endo and had a lap done a few months ago. Doc put
>>me on lupron, but it caused too many side effects and my pain never went
>>away. Personally, I have pain every single day with endo, its not
>>cyclical for me, can't speak for anyone else though. he kept saying it
>>was going to get better, but it didnt. He also said that he would
>>probably need to do another surgery after my lupron run. The thing w/
>>lupron is it just suppresses it for awhile, it doesnt make it go away.
>>
>>I would go for the lap surgery - but with an excision
>>surgeon/specialist. The reason I was on the lupron was b/c the doc
>>couldnt get everything out (he was an obgyn/fertility specialist, not an
>>endo specialist). Feel free to post/email me personally if you have any
>>questions, and hang in tbere!!
>>
>>At Tue, 30 Dec 2008, Leanne wrote:
>>>
>>>I have been in and out of doctors and gynecologists and the hospital for
>>>the past 3 months. I have sever abdominal cramping every single day for
>>>the past 3 months. I also have groin, sides, and lower back pain. The
>>>pain is sometimes stabbing and sometimes achy or cramplike. I have also
>>>been spotting in between periods, and my period has been irregular. My
>>>last gyno kept trying to send me somewhere else. I have had just xrays,
>>>ct scans, ultrasounds, 9 things of blood drawn, 2 urine tests, 3 pelvic
>>>exams, and everything has come back fine. I finally went to a new
>>>doctor today and he suggested I go on Lupron. He also said I could
>>>chose to have a laparoscopy. But he recommended the Lupron. I got home
>>>and looked it up and have seen some pretty horrible symptoms. And I am
>>>just wondering, is it smart to go on Lupron before they even know if i
>>>have endometriosis? Or should i get the lap done to be sure? Do my
>>>symptoms sound like endometriosis to anyone. The doctor today told me
>>>that he's not sure it's endo because it is everyday, he said if it was
>>>endo it would be cyclical, and worse around ovulation or my period. But
>>>if he doesn't think its that, then why is he trying to put me on Lupron?
>>>I am so confused, and the pain is just so unbearable. I just don't know
>>>what to do. And I would love to get some input from someone who has
>>>been through this, because I just feel like doctor's don't know enough
>>>about endo, or just want to push me off on someone else.
>>>
>>>--
>>>Leanne
>>>
>--
>Leanne
>
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