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Re: Endo pain after orgasm in my sleep!
From: anonymous (anonymous@obgyn.net)
Sat Dec 27 16:18:57 2008
Why do I masterbate? Because I like to, thank you very much.
My pain is managable, fortunately. And it does not happen
after every time, just sometimes. I was writing to the OP, to
tell her she is not alone in this feeling.
I have an ob/gyn that is treating my endo, and I am satisfied with
his treatment and my topical progesterone.
I am not looking to have any kind of surgery, either with my
doctor or any specialist.
This is the type of treatment I am choosing to do.
The type of pain I have has not gotten worse in intensity over the
years, so
I am satisfied with the treatment I am choosing.
At Sat, 27 Dec 2008, anonymous wrote:
>
>why do you do it then?
>
>the endo is most likely in the pouch of douglas / cul-de-sac and / or
>adenomyosis
>
>see an endo specialist, it does get worse
>
>At Sat, 27 Dec 2008, anonymous wrote:
>>
>>I also have very bad pain after any kind of orgasm, even after I
>>masturbate.
>>I end up having to take advil before or after. Fortunately, it is not
>>as bad as it once was.
>>I know I have endo on my left uterosacral ligament, and I think it is
>>this spot that causes that pain. I also think I have it on my bowel,
>>but it has not been seen there. I do have diverticulosis, so maybe that
>>also has something to do with the pain.
>>The only thing I can say is try pain relievers, or muscle relaxants
>>before any kind of activity. It's a horrible feeling and the vomiting
>>is probably because of the level of pain. If you can head off the pain,
>>the vomiting probably won't happen. Have you tried topical
>>progesterone? That might help, too.
>>
>>At Fri, 26 Dec 2008, anonymous wrote:
>>>
>>>I have never heard of anyone else having my very symptoms. Like each of
>>>you, my doctors were all stymied. I began having intense pain after
>>>EVERY orgasm around the age of 25. The pain was so intense it was
>>>unbearable. I found that if I lay very very still and didn't move a
>>>muscle and breathed deeply, the spasm would be less intense, but if I
>>>gave into the urge to get up and walk around to try to escape the pain,
>>>it was worse. The pain did FEEL also connected to bowels.
>>>
>>>I had a laparoscopy showing I did NOT have endom. but had two fibroids
>>>on my outer uterus. One was removed, but one remained as it was
>>>attached also to a fallopian tube. The pain was not changed by this.
>>>
>>>When I began having children, I found that the pain went away for most
>>>of my pregnancy. After orgasm, instead of pain, my uterus just blew up
>>>like a balloon and got very hard (just as in labor). After birth, the
>>>pain stayed away for a full year and then returned, but not as intense.
>>>I had one C section and two fully natural vaginal births.
>>>
>>>After my last child, the pain began returning at different times, but
>>>intermittently. Sometimes during intercourse.. sometimes during
>>>intense physical activity.. but it wasn't consistant. I had a second
>>>laparoscopy 11 years after the first with a specialist (colorectal...
>>>the name escapes me..) present along with my OB GYN. Still no endo., no
>>>adhesions connecting anything. There was nothing that showed up in my
>>>lap. That was 3 years ago.
>>>
>>>Since then, it has developed a pattern. The pains begin about 1.5 weeks
>>>before the onset of my period. My cycle ranges from 4-5 weeks lately
>>>although I was very irregular throughout my life. The pains begin
>>>manageable but progress through the following week and a half to
>>>unbearable. I try to avoid orgasm during the second half of this period
>>>of time.
>>>
>>>I usually have an urge to pass a bowel movement during the pain spasm,
>>>and sometimes this makes it go away faster and sometimes not. It is
>>>still more manageable if I lay very still and breath deeply. My spasm
>>>used to last around 20 minutes from beginning to peak to normal. After
>>>the pain goes away I get an almost euphoric feeling. Maybe it is just
>>>relief.
>>>
>>>Lately, at the very end of my "pain cycle" just before my period begins,
>>>if I do have an orgasm, the spasm ultimately has led to vomiting. I
>>>don't feel sick to my stomach, but I can feel it begin to contract and
>>>spasm and then I begin vomiting. This has happened about four times in
>>>the last year.
>>>
>>>For a brief time I got a prescription for codeine and I would CHEW it
>>>when I felt the spasm coming on. At this point in my life, things other
>>>than orgasms can bring on the pain spasm. A bowel movement, strenuous
>>>activity like working out or walking up a flight of stairs, dancing,
>>>etc. Sometimes it comes on spontaneously with no explanation. I am
>>>currently in my early 40's
>>>
>>>I can't tell you what a relief it is to read of others who have my
>>>bizarre symptoms. No doctor understands it. It is frustrating to need
>>>to explain to partners or friends. It is difficult to ask a partner to
>>>not touch me or talk to me for 15 minutes following my orgasm (during
>>>that week and a half) until my "cramps" go away.
>>>
>>>I am eager to hear more from others.
>>>
>>>At Thu, 16 Oct 2008, anonymous wrote:
>>>>
>>>>At Tue, 20 Mar 2007, anonymous wrote:
>>>>>
>>>>>I note these are quite old messages but I wanted to also mention that I
>>>>>have a problem with this. I had left sided pain for many years with
>>>>>intense contraction like pain following orgasms and no other symptoms
>>>>>and was diagnosed with irritable bowel initially. I eventually had a
>>>>>laparoscopy and was diagnosed with endometriosis which was treated by
>>>>>laser surgery which alleviated my symptoms for a year but they have
>>>>>since returned. the pain I experience after orgasm has also occured
>>>>>during my sleep and awoken me. the pain is intense and I usually pass a
>>>>>bowel motion then the pain subsides over about 30mins or so. The
>>>>>doctors didnt think that it could be related to my endo due to passing
>>>>>bowel motions but the laser treatment for endo did make it go away for a
>>>>>while. It is helpful to see I am not the only one with this problem.
>>>>>
>>>>>At Fri, 15 Oct 2004, anonymous wrote:
>>>>>>
>>>>>>This has happened to me once, and the doctor could give me no
>>>>>>explanation for it. The experience I had was particularly scary and it
>>>>>>happened not after intercourse but after masturbation. A minute or two
>>>>>>afterwards I started to get intense pelvic pain which increased until I
>>>>>>couldn't stand up and was crying with it. I was really scared and ran
>>>>>>to get my mother - then I felt very sick. I made it to the bathroom and
>>>>>>was physically sick as well, and had a bowel movement. By this time I
>>>>>>was experiencing intense pains - I can't think contractions could be
>>>>>>worse! My body went into shock from the pain, my lips turned white and I
>>>>>>went freezing cold and I felt woozy and passed out on the floor for
>>>>>>several minutes. When I came round, I made it to the bathroom and the
>>>>>>pain subsided, if you can call it that, into intense contractions which
>>>>>>were coming regularly every minute or two as if I was in advanced
>>>>>>labour. They were so bad I was doubled over and screaming in pain. It
>>>>>>did almost seem like something had triggered false labour pains - I
>>>>>>could feel the contractions in my uterus. These gradually, over the
>>>>>>course of an hour or two subsided - I went to the doctor when able but
>>>>>>she could not tell me what was wrong. My period started later the same
>>>>>>day. Nobody has ever been able to explain this and I wish they could
>>>>>>becasue it was very frightening. I am glad it has only happened once to
>>>>>>me.
>>>>>>I did wonder why it happened - it happened after the end of a
>>>>>>relationship with a man during which I had experienced other
>>>>>>gynaecological problems - thrush, cystitis, and also irritation to his
>>>>>>semen like an allergy - at one point I seemed to get mucus like discarge
>>>>>>from my cervix but this was ealier than the pelvic pain episode. And
>>>>>>yes, we did both get ourselves checked out at the sexual health clinic,
>>>>>>and we didn't have anything wrong or any infection. I did wonder if his
>>>>>>semen had caused problems in my uterus as well as the external
>>>>>>irritation and redness I experienced when I has skin contact with it. It
>>>>>>even happened when it got on my fingers or thighs, I would get red
>>>>>>patches! I am fine now a couple of years later with another man. Do you
>>>>>>think whatever caused this wil have gone or should I see a gyno?
>>>>>>
>>>>>>At Sat, 1 Mar 2003, anonymous wrote:
>>>>>>>
>>>>>>>Yes, this happened to me too. I have even thrown up from the pain. I
>>>>>>>had fibroids and have endo. You probably should have your doctor do a
>>>>>>>laparscopy to check for endo. Talk to your doctor, he/she will
>>>>>>>understand.
>>>>>>>
>>>>>>>At Sat, 1 Mar 2003, anonymous wrote:
>>>>>>>>
>>>>>>>>This person wrote awhile ago, but if anyone out there can relate to
>>>>>>>>this, please write back. I experience this. I also have pain all
>>>>>>>>through the month after orgasm. Awake, sleeping and it is excruciating
>>>>>>>>from anywhere from 20-40 minutes. I really need help- I have tried to
>>>>>>>>search the internet- no luck except for this. I have not been tested
>>>>>>>>for endo. I have normal periods, well, severe pms and pain up to 2
>>>>>>>>weeks before, and get very bloated and gaseous. I am 28 yrs old and
>>>>>>>>have had this orgasm pain for years. I find it pretty difficult to talk
>>>>>>>>to doctors about it. They seem to say it's about uncomfortable sexual
>>>>>>>>positions, or back ache, and then they thought it was irritable bowel. I
>>>>>>>>am at my wits end. It happend while I'm sleeping! Waking up to intense
>>>>>>>>pain-- the pain always makes me squirm because it's so intense I can't
>>>>>>>>sit still- I end up on the foor usually practically crying. It has
>>>>>>>>gotten so severe I would bet childbirth isn't much more painful. The
>>>>>>>>pain is exhausting. After the pain, I am completely fine. It's nuts. A
>>>>>>>>dr. wanted to put me on the pill and i said no. I have small fibroids
>>>>>>>>--- so small, they only found them when I asked for an ultrsound. They
>>>>>>>>said to small to cause this pain.
>>>>>>>>I think I need to go for a laproscopy and find out. The thing is, I
>>>>>>>>feel like this is the only symptom I have that is truly endo-like, but I
>>>>>>>>guess there aren't always symptoms.
>>>>>>>>Does anyone out there think this orgasm pain can be endo?
>>>>>>>>I don't know what else it can be. I am a healthy 28 year old. Do you
>>>>>>>>think I should get the laproscopy?
>>>>>>>>Please write if you can tell me any shared experiences. Thank you.
>>>>>>>>
>>>>>>>>At Sun, 6 May 2001, anonymous wrote:
>>>>>>>>>
>>>>>>>>>I'm writing for the first time hoping someone else out there may have
>>>>>>>>>experienced something similar. My pain with endo in excruciating after
>>>>>>>>>orgasm. Since the onset of this disease 9 years ago I have had orgasms
>>>>>>>>>in my sleep resulting in severe pain and a sleepless night. The orgasms
>>>>>>>>>always occur around day 23 of my cycle. Recently we've been trying to
>>>>>>>>>concieve and every time I feel the egg has implanted, I get this orgasm
>>>>>>>>>in my sleep followed by severe pain and the next few days my pregnancy
>>>>>>>>>symptoms are gone, and I get my period. I've had surgery, Lupron, and
>>>>>>>>>the clomid, IUI ordeal. I'm sure we concieved this month but I had an
>>>>>>>>>orgasm in my sleep two nights ago. I'll have to wait and see. So
>>>>>>>>>frustrating and sooo weird. It's like this disease doesn't want me to
>>>>>>>>>get pregnant, like it has a mind of its own. Creepy. Any suggestions
>>>>>>>>>anyone?
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