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Re: currence, younger women
From: anonymous (anonymous@obgyn.net)
Sat Dec 27 15:43:36 2008
why don't you research for them, since you are so confident in your
abilities?
the cec is the best, and you will not go wrong in going to them
where your agenda originated from, it would be interesting to know
At Sat, 27 Dec 2008, anonymous wrote:
>
>I did read your response, and my point is that many other
>women have been helped surgically by many other excisionists.
>They too have been pain free for years and end up conceiving naturally.
>If you have perceived my post to be negative and judgemental,
>that is not my problem.
>I only want women to fully research ALL of their surgical
>options. This includes researching OTHER excisionists, not
>just the CEC.
>
>At Sat, 27 Dec 2008, annie wrote:
>>
>>if you read my response you would see that i said there are some drs
>>that are more skilled than others meaning not just cec. the only reason
>>why i brought up cec is because of my personal experience with cec and
>>because you made a negative statement about cec. you have a right to
>>your personal opinion, but right now i think your conversations with
>>others on the forum are out of line. i thought this forum was to
>>support women with endo, not to create arguments and negative energy.
>>everyone's situation is unique- you should not be so judgemental and
>>angry. different treatments work for different women. stop being so
>>negative about womens choice of treatment-be supportive.
>>At Sat, 27 Dec 2008, anonymous wrote:
>>>
>>>The CEC doctors may be skilled excisionists, but many doctors are
>>>skilled at excision and treatment of endometriosis: Dr. Robbins and Dr.
>>>Redwine, Dr. Lyons, Dr. Cook, etc. I am not going to list all of them
>>>here.
>>>They all have their different methods, and many women have been helped
>>>by them.
>>>Dr. Lyons has even written a book about endo.
>>>But all you people do is PUSH the CEC here, like they are the only
>>>doctors who can treat endo, when it's not true. There are many other
>>>doctors out there.
>>>But there are women who are with the ERC who come here specifically to
>>>push the CEC and the ERC, and that is evident by the links at the bottom
>>>of their posts.
>>>Women should continue to do their own research and question the validity
>>>of statistics that are self reported.
>>>It seems like this site is the old soviet union: just one way, the CEC.
>>>And no other doctors. Well, that is not so, we are still in America,
>>>there are
>>>plenty of endo doctors who can deal with this disease just as
>>>effectively, and some even more effectively, than the CEC.
>>>Spewing their stats to make them seem more qualified is not helpful at
>>>all, and is downright deceptive.
>>>
>>>At Sat, 27 Dec 2008, annie wrote:
>>>>
>>>>that is great to know but this is what it all balls down to:
>>>>endometriosis has no cure. but even though there is no cure, there are
>>>>good and bad treatments for it just like there are doctors who are more
>>>>skilled at performing laproscopic surgery and doctors that suck at it.
>>>>cec is known for helping many women with endometriosis. many women
>>>>state that they have been pain free for years after surgery and are able
>>>>to conceive naturally. because there is no cure, there is always going
>>>>to be a percentage of people who have not benefited from cec. if you
>>>>compare the resposes of women who have gone to cec: the percentage of
>>>>women who have benefitted from cec is farrrrrrrrr greater than those who
>>>>have not.
>>>>
>>>>At Sat, 27 Dec 2008, anonymous wrote:
>>>>>
>>>>>This site >http://www.health-mediainfo.net/Women-Health/105499.htm
>>>>>
>>>>>is from the ERC, the person who voluntarily monitors the ERC site is
>>>>>Heather G., who is employed by the CEC.
>>>>>
>>>>>Consider the source. Naturally, her aim is to guide people to the CEC
>>>>>despite there being other exceptional exsionists.
>>>>>
>>>>>At Fri, 26 Dec 2008, anonymous wrote:
>>>>>>
>>>>>>''Recent studies have also shown that Endometriosis may in fact have an
>>>>>>even bigger impact on younger patients than older women. One such study
>>>>>>discovered that in patients under 22 years of age, the rate of disease
>>>>>>recurrence was double that of older women (35% versus 19%). The study
>>>>>>also revealed that the disease behaves differently in younger women;
>>>>>>leading some researchers to believe it is a different form of
>>>>>>Endometriosis altogether. Surgery, considered necessary to accurately
>>>>>>diagnose and effectively treat the disease, is often withheld from
>>>>>>younger patients based on the injudicious belief that early surgery
>>>>>>somehow negatively influences a young woman’s fertility. Extensive,
>>>>>>cumulative research has shown this concern to be unfounded. What can
>>>>>>impact fertility, however, is neglecting effective treatment of the
>>>>>>disease. Some researchers also feel that symptomatic, adolescent-onset
>>>>>>Endometriosis is most often a lifelong problem that will progress to
>>>>>>severe fibrotic disease.
>>>>>>
>>>>>>While it is possible to become pregnant with Endometriosis, the key is
>>>>>>to obtain early, effective treatment such as that offered by specialty
>>>>>>treatment centers like the Center for Endo Care (see
>>>>>>http://www.centerforendo.com to learn about the success of excision as
>>>>>>treatment). Hysterectomy is not a cure for Endometriosis. Any disease
>>>>>>left behind by the surgeon (whether by design because he or she
>>>>>>'couldn't get it all' or accident because they don't recognize the
>>>>>>disease in all manifestations) will continue to thrive and cause pain
>>>>>>and symptoms. It does not matter if the ovaries are removed or if HRT
>>>>>>is withheld; Endo produces its own estrogen-synthesizing enzyme known as
>>>>>>aromatase. Thus, it enables it's own vicious life cycle and sustains
>>>>>>the disease process. You would be better off getting all disease truly
>>>>>>excised from all locations at a specialty center like the CEC
>>>>>>(http://www.centerforendo.com).''
>>>>>>
>>>>>>http://www.health-mediainfo.net/Women-Health/105499.htm
>>>>>>
>>>>>>At Fri, 26 Dec 2008, anonymous wrote:
>>>>>>>
>>>>>>>How is NWeber misinformed? she stated the same thing you did.
>>>>>>>
>>>>>>>At Fri, 26 Dec 2008, anonymous wrote:
>>>>>>>>
>>>>>>>> NWeber is misinformed.
>>>>>>>>
>>>>>>>>LAPEX surgery is an anacronym for 'laporascopic excision'. The LAP
>>>>>>>>stands for laporascopic. The EX stands for Excision. This type of
>>>>>>>>surgery can be performed by using different tools, either a LASER at the
>>>>>>>>CEC, or by Redwine, by monopolar scissors.
>>>>>>>>
>>>>>>>>Deep removal of endometriosis can be done by laser or scissors,
>>>>>>>>only in the hands of a key endometriosis expert.
>>>>>>>>
>>>>>>>>If an expert operates on you with a laser, he knows how much to cut,
>>>>>>>>where to cut, and this will lead to excision.
>>>>>>>>
>>>>>>>>It is really not the tool that is in question, but the skill of the
>>>>>>>>surgeon.
>>>>>>>>
>>>>>>>>If a regular ob/gyn uses a laser and they aren't all that familiar with
>>>>>>>>endo, they may end up burning small endo implants deeper into tissue
>>>>>>>>(thus it will come back).
>>>>>>>>
>>>>>>>>An expert will know how deep to cut in order to completely
>>>>>>>>excise the implant, whether he uses a laser or a scissor like
>>>>>>>>instrument.
>>>>>>>>
>>>>>>>>In addition, there are many different types of lasers that the experts
>>>>>>>>can use at their disposal.
>>>>>>>>
>>>>>>>>Look here at Dr. A at CEC:
>>>>>>>>http://www.centerforendo.com/articles/excision.htm
>>>>>>>>Nowhere does he mention he does NOT use a laser as a cutting tool.
>>>>>>>>
>>>>>>>>There is mention that he uses no LASER ABLATION, but that is a
>>>>>>>>completely different thing than using a laser for excision. For
>>>>>>>>excision, the doctor uses the laser as a cutting tool to cut the endo
>>>>>>>>out. In laser ablation, the laser is only used to destroy the tissue,
>>>>>>>>not necessarily get rid of it, but to burn it out. If laser ablation is
>>>>>>>>used, it is the typical 'laser surgery' that most gyns do. This laser
>>>>>>>>surgery is destructive, burning away the tissue, but not completely,
>>>>>>>>letting some endo tissue also get burned up and still stay in place.
>>>>>>>>
>>>>>>>>At Thu, 25 Dec 2008, anonymous wrote:
>>>>>>>>>
>>>>>>>>>Thank you, NWeber! you know your stuff, and explain it well
>>>>>>>>>
>>>>>>>>>At Wed, 24 Dec 2008, NWeber wrote:
>>>>>>>>>>
>>>>>>>>>>There is one thing that needs to be cleared up here, so that
>>>>>>>>>>misinformation isn't spread through this topic. Laser surgery is in no
>>>>>>>>>>way the same as LAPEX (excision surgery.)
>>>>>>>>>>
>>>>>>>>>>A traditional laser does nothing for endo. It burns it off by way of
>>>>>>>>>>vaporization, then comes right back, and many patients experience worse
>>>>>>>>>>symptoms after laser or burning surgeries. LAPEX(excision surgery)
>>>>>>>>>>removes deep down the implants of the endometriosis. This is the reason
>>>>>>>>>>it works well and places like the CEC and Dr. Redwine.
>>>>>>>>>>
>>>>>>>>>>Most RE's do not know the correct way to remove endo, many remove it by
>>>>>>>>>>typical lasers or by burning. This is the common problem with this
>>>>>>>>>>disease, we take the word of RE's or regular OBGYN's and think that they
>>>>>>>>>>know what they are doing. With this disease, you must understand that
>>>>>>>>>>excision is the only successful way to remove this disease, and even at
>>>>>>>>>>times, in difficult cases, it can come back. However, the timeline is
>>>>>>>>>>much better with excision surgery. Some people have one excision
>>>>>>>>>>surgery and never need another, some it lasts five years. Each person
>>>>>>>>>>is different.
>>>>>>>>>>
>>>>>>>>>>Please research and understand the difference between lasers and LAPEX.
>>>>>>>>>>These instruments are not the same.
>>>>>>>>>>
>>>>>>>>>>Dr. Redwine's site or the CEC is a great place for explanation.
>>>>>>>>>>
>>>>>>>>>>At Wed, 24 Dec 2008, Kristy wrote:
>>>>>>>>>>>
>>>>>>>>>>>Some of the top endo specialists are also infertility specialists like
>>>>>>>>>>>Dr. Perloe also in Atlanta (which I am not sure if he's still
>>>>>>>>>>>practicing right now).
>>>>>>>>>>>
>>>>>>>>>>>Endo specialists are regular OB/GYNs who gave up doing the deliveries to
>>>>>>>>>>>try and help other women with endo, and some of them also have
>>>>>>>>>>>additional training in Reproductive Endocrinology (the infertility
>>>>>>>>>>>specialists).
>>>>>>>>>>>
>>>>>>>>>>>The techniques used by endo specialists whether they are regular OB/GYNs
>>>>>>>>>>>or those that are also infertility specialists are not that much
>>>>>>>>>>>different than what is used by a private doctor in the community other
>>>>>>>>>>>than the amount of experience with those techniques. Not the names of
>>>>>>>>>>>the techniques.
>>>>>>>>>>>
>>>>>>>>>>>LAPEX is just another way to say that endo is being removed thru
>>>>>>>>>>>excision done thru laparoscopic surgery.
>>>>>>>>>>>
>>>>>>>>>>>The laser is just an instrument used to remove the endo whether it's
>>>>>>>>>>>done thru excision or one of the other methods.
>>>>>>>>>>>
>>>>>>>>>>>For years it used to be primarily infertility specialists that mostly
>>>>>>>>>>>saw endo (read this in one of the books on endo) because of those women
>>>>>>>>>>>that were looking to try and get pregnant and couldn't do it on their
>>>>>>>>>>>own.
>>>>>>>>>>>
>>>>>>>>>>>At Wed, 24 Dec 2008, annie wrote:
>>>>>>>>>>>>
>>>>>>>>>>>>infertility specialists and endo specialists have different techniques,
>>>>>>>>>>>>or different names for their techniques
>>>>>>>>>>>>At Wed, 24 Dec 2008, Kristy wrote:
>>>>>>>>>>>>>
>>>>>>>>>>>>>The laser is just an instrument used to remove endo and in the hands of
>>>>>>>>>>>>>experienced doctors the laser can be used to excise endo.
>>>>>>>>>>>>>
>>>>>>>>>>>>>Also, the CEC uses the laser to do the excision of endo in their
>>>>>>>>>>>>>patients (read this on another endo list, the ERC one I think but I
>>>>>>>>>>>>>can't remember right now) instead of the monopolar scissors like Dr.
>>>>>>>>>>>>>Redwine uses.
>>>>>>>>>>>>>
>>>>>>>>>>>>>Some doctors including my own uses a harmonic scalpel. I first heard
>>>>>>>>>>>>>about harmonic scalpel from this list about 6 years ago.
>>>>>>>>>>>>>
>>>>>>>>>>>>>At Wed, 24 Dec 2008, annie wrote:
>>>>>>>>>>>>>>
>>>>>>>>>>>>>>i went back to the infertility doctor yesterday to let her know that i
>>>>>>>>>>>>>>am going to get LAPEX surgery from CEC in atlanta to get rid of my endo
>>>>>>>>>>>>>>and increase my chances of getting pregnant. the infertility obgyn had
>>>>>>>>>>>>>>no clue what LAPEX was. i found this to be a little disturbing becuase
>>>>>>>>>>>>>>the hospital i went to was a research hospital. i guess regular
>>>>>>>>>>>>>>infertility doctors are not trained on LAPEX they are trained on just
>>>>>>>>>>>>>>regular lasering endo. they just laser what they see .there main goal
>>>>>>>>>>>>>>is to get me pregnant not worrying about the long term effect of
>>>>>>>>>>>>>>hormones and inseminations. and if i chose to do insemination, the endo
>>>>>>>>>>>>>>would still be there and it would get worse and i would have to do
>>>>>>>>>>>>>>insemination again if i wanted more children. this is why a am putting
>>>>>>>>>>>>>>it into the hands of dr. sinervo who is an expert in getting rid of the
>>>>>>>>>>>>>>endo- this will be better for me in the long run and increase my
>>>>>>>>>>>>>>fertility
>>>>>>>>>>>>>
>>>>>>>>>>>>>--
>>>>>>>>>>>>>=====
>>>>>>>>>>>>>Kristy :)
>>>>>>>>>>>>>
>>>>>>>>>>>>>http://www.geocities.com/sokokl/Kristysstory.html
>>>>>>>>>>>>>
>>>>>>>>>>>--
>>>>>>>>>>>=====
>>>>>>>>>>>Kristy :)
>>>>>>>>>>>
>>>>>>>>>>>http://www.geocities.com/sokokl/Kristysstory.html
>>>>>>>>>>>
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