Re: currence, younger women
From: anonymous (anonymous@obgyn.net)
Sat Dec 27 15:42:18 2008
thank you annie - this person has been doing it for months if not years
they are so filled with toxic junk...
i loved the CEC, and think they're the best
are others great? of course....this is like a jealous child or
something, mad that not every other doctor is mentioned
by the way, if you do mention every other doctor, this person (not even
sure if it's a woman), will rant about you mentioning every other doctor
lol
At Sat, 27 Dec 2008, annie wrote:
>
>if you read my response you would see that i said there are some drs
>that are more skilled than others meaning not just cec. the only reason
>why i brought up cec is because of my personal experience with cec and
>because you made a negative statement about cec. you have a right to
>your personal opinion, but right now i think your conversations with
>others on the forum are out of line. i thought this forum was to
>support women with endo, not to create arguments and negative energy.
>everyone's situation is unique- you should not be so judgemental and
>angry. different treatments work for different women. stop being so
>negative about womens choice of treatment-be supportive.
>At Sat, 27 Dec 2008, anonymous wrote:
>>
>>The CEC doctors may be skilled excisionists, but many doctors are
>>skilled at excision and treatment of endometriosis: Dr. Robbins and Dr.
>>Redwine, Dr. Lyons, Dr. Cook, etc. I am not going to list all of them
>>here.
>>They all have their different methods, and many women have been helped
>>by them.
>>Dr. Lyons has even written a book about endo.
>>But all you people do is PUSH the CEC here, like they are the only
>>doctors who can treat endo, when it's not true. There are many other
>>doctors out there.
>>But there are women who are with the ERC who come here specifically to
>>push the CEC and the ERC, and that is evident by the links at the bottom
>>of their posts.
>>Women should continue to do their own research and question the validity
>>of statistics that are self reported.
>>It seems like this site is the old soviet union: just one way, the CEC.
>>And no other doctors. Well, that is not so, we are still in America,
>>there are
>>plenty of endo doctors who can deal with this disease just as
>>effectively, and some even more effectively, than the CEC.
>>Spewing their stats to make them seem more qualified is not helpful at
>>all, and is downright deceptive.
>>
>>At Sat, 27 Dec 2008, annie wrote:
>>>
>>>that is great to know but this is what it all balls down to:
>>>endometriosis has no cure. but even though there is no cure, there are
>>>good and bad treatments for it just like there are doctors who are more
>>>skilled at performing laproscopic surgery and doctors that suck at it.
>>>cec is known for helping many women with endometriosis. many women
>>>state that they have been pain free for years after surgery and are able
>>>to conceive naturally. because there is no cure, there is always going
>>>to be a percentage of people who have not benefited from cec. if you
>>>compare the resposes of women who have gone to cec: the percentage of
>>>women who have benefitted from cec is farrrrrrrrr greater than those who
>>>have not.
>>>
>>>At Sat, 27 Dec 2008, anonymous wrote:
>>>>
>>>>This site >http://www.health-mediainfo.net/Women-Health/105499.htm
>>>>
>>>>is from the ERC, the person who voluntarily monitors the ERC site is
>>>>Heather G., who is employed by the CEC.
>>>>
>>>>Consider the source. Naturally, her aim is to guide people to the CEC
>>>>despite there being other exceptional exsionists.
>>>>
>>>>At Fri, 26 Dec 2008, anonymous wrote:
>>>>>
>>>>>''Recent studies have also shown that Endometriosis may in fact have an
>>>>>even bigger impact on younger patients than older women. One such study
>>>>>discovered that in patients under 22 years of age, the rate of disease
>>>>>recurrence was double that of older women (35% versus 19%). The study
>>>>>also revealed that the disease behaves differently in younger women;
>>>>>leading some researchers to believe it is a different form of
>>>>>Endometriosis altogether. Surgery, considered necessary to accurately
>>>>>diagnose and effectively treat the disease, is often withheld from
>>>>>younger patients based on the injudicious belief that early surgery
>>>>>somehow negatively influences a young woman’s fertility. Extensive,
>>>>>cumulative research has shown this concern to be unfounded. What can
>>>>>impact fertility, however, is neglecting effective treatment of the
>>>>>disease. Some researchers also feel that symptomatic, adolescent-onset
>>>>>Endometriosis is most often a lifelong problem that will progress to
>>>>>severe fibrotic disease.
>>>>>
>>>>>While it is possible to become pregnant with Endometriosis, the key is
>>>>>to obtain early, effective treatment such as that offered by specialty
>>>>>treatment centers like the Center for Endo Care (see
>>>>>http://www.centerforendo.com to learn about the success of excision as
>>>>>treatment). Hysterectomy is not a cure for Endometriosis. Any disease
>>>>>left behind by the surgeon (whether by design because he or she
>>>>>'couldn't get it all' or accident because they don't recognize the
>>>>>disease in all manifestations) will continue to thrive and cause pain
>>>>>and symptoms. It does not matter if the ovaries are removed or if HRT
>>>>>is withheld; Endo produces its own estrogen-synthesizing enzyme known as
>>>>>aromatase. Thus, it enables it's own vicious life cycle and sustains
>>>>>the disease process. You would be better off getting all disease truly
>>>>>excised from all locations at a specialty center like the CEC
>>>>>(http://www.centerforendo.com).''
>>>>>
>>>>>http://www.health-mediainfo.net/Women-Health/105499.htm
>>>>>
>>>>>At Fri, 26 Dec 2008, anonymous wrote:
>>>>>>
>>>>>>How is NWeber misinformed? she stated the same thing you did.
>>>>>>
>>>>>>At Fri, 26 Dec 2008, anonymous wrote:
>>>>>>>
>>>>>>> NWeber is misinformed.
>>>>>>>
>>>>>>>LAPEX surgery is an anacronym for 'laporascopic excision'. The LAP
>>>>>>>stands for laporascopic. The EX stands for Excision. This type of
>>>>>>>surgery can be performed by using different tools, either a LASER at the
>>>>>>>CEC, or by Redwine, by monopolar scissors.
>>>>>>>
>>>>>>>Deep removal of endometriosis can be done by laser or scissors,
>>>>>>>only in the hands of a key endometriosis expert.
>>>>>>>
>>>>>>>If an expert operates on you with a laser, he knows how much to cut,
>>>>>>>where to cut, and this will lead to excision.
>>>>>>>
>>>>>>>It is really not the tool that is in question, but the skill of the
>>>>>>>surgeon.
>>>>>>>
>>>>>>>If a regular ob/gyn uses a laser and they aren't all that familiar with
>>>>>>>endo, they may end up burning small endo implants deeper into tissue
>>>>>>>(thus it will come back).
>>>>>>>
>>>>>>>An expert will know how deep to cut in order to completely
>>>>>>>excise the implant, whether he uses a laser or a scissor like
>>>>>>>instrument.
>>>>>>>
>>>>>>>In addition, there are many different types of lasers that the experts
>>>>>>>can use at their disposal.
>>>>>>>
>>>>>>>Look here at Dr. A at CEC:
>>>>>>>http://www.centerforendo.com/articles/excision.htm
>>>>>>>Nowhere does he mention he does NOT use a laser as a cutting tool.
>>>>>>>
>>>>>>>There is mention that he uses no LASER ABLATION, but that is a
>>>>>>>completely different thing than using a laser for excision. For
>>>>>>>excision, the doctor uses the laser as a cutting tool to cut the endo
>>>>>>>out. In laser ablation, the laser is only used to destroy the tissue,
>>>>>>>not necessarily get rid of it, but to burn it out. If laser ablation is
>>>>>>>used, it is the typical 'laser surgery' that most gyns do. This laser
>>>>>>>surgery is destructive, burning away the tissue, but not completely,
>>>>>>>letting some endo tissue also get burned up and still stay in place.
>>>>>>>
>>>>>>>At Thu, 25 Dec 2008, anonymous wrote:
>>>>>>>>
>>>>>>>>Thank you, NWeber! you know your stuff, and explain it well
>>>>>>>>
>>>>>>>>At Wed, 24 Dec 2008, NWeber wrote:
>>>>>>>>>
>>>>>>>>>There is one thing that needs to be cleared up here, so that
>>>>>>>>>misinformation isn't spread through this topic. Laser surgery is in no
>>>>>>>>>way the same as LAPEX (excision surgery.)
>>>>>>>>>
>>>>>>>>>A traditional laser does nothing for endo. It burns it off by way of
>>>>>>>>>vaporization, then comes right back, and many patients experience worse
>>>>>>>>>symptoms after laser or burning surgeries. LAPEX(excision surgery)
>>>>>>>>>removes deep down the implants of the endometriosis. This is the reason
>>>>>>>>>it works well and places like the CEC and Dr. Redwine.
>>>>>>>>>
>>>>>>>>>Most RE's do not know the correct way to remove endo, many remove it by
>>>>>>>>>typical lasers or by burning. This is the common problem with this
>>>>>>>>>disease, we take the word of RE's or regular OBGYN's and think that they
>>>>>>>>>know what they are doing. With this disease, you must understand that
>>>>>>>>>excision is the only successful way to remove this disease, and even at
>>>>>>>>>times, in difficult cases, it can come back. However, the timeline is
>>>>>>>>>much better with excision surgery. Some people have one excision
>>>>>>>>>surgery and never need another, some it lasts five years. Each person
>>>>>>>>>is different.
>>>>>>>>>
>>>>>>>>>Please research and understand the difference between lasers and LAPEX.
>>>>>>>>>These instruments are not the same.
>>>>>>>>>
>>>>>>>>>Dr. Redwine's site or the CEC is a great place for explanation.
>>>>>>>>>
>>>>>>>>>At Wed, 24 Dec 2008, Kristy wrote:
>>>>>>>>>>
>>>>>>>>>>Some of the top endo specialists are also infertility specialists like
>>>>>>>>>>Dr. Perloe also in Atlanta (which I am not sure if he's still
>>>>>>>>>>practicing right now).
>>>>>>>>>>
>>>>>>>>>>Endo specialists are regular OB/GYNs who gave up doing the deliveries to
>>>>>>>>>>try and help other women with endo, and some of them also have
>>>>>>>>>>additional training in Reproductive Endocrinology (the infertility
>>>>>>>>>>specialists).
>>>>>>>>>>
>>>>>>>>>>The techniques used by endo specialists whether they are regular OB/GYNs
>>>>>>>>>>or those that are also infertility specialists are not that much
>>>>>>>>>>different than what is used by a private doctor in the community other
>>>>>>>>>>than the amount of experience with those techniques. Not the names of
>>>>>>>>>>the techniques.
>>>>>>>>>>
>>>>>>>>>>LAPEX is just another way to say that endo is being removed thru
>>>>>>>>>>excision done thru laparoscopic surgery.
>>>>>>>>>>
>>>>>>>>>>The laser is just an instrument used to remove the endo whether it's
>>>>>>>>>>done thru excision or one of the other methods.
>>>>>>>>>>
>>>>>>>>>>For years it used to be primarily infertility specialists that mostly
>>>>>>>>>>saw endo (read this in one of the books on endo) because of those women
>>>>>>>>>>that were looking to try and get pregnant and couldn't do it on their
>>>>>>>>>>own.
>>>>>>>>>>
>>>>>>>>>>At Wed, 24 Dec 2008, annie wrote:
>>>>>>>>>>>
>>>>>>>>>>>infertility specialists and endo specialists have different techniques,
>>>>>>>>>>>or different names for their techniques
>>>>>>>>>>>At Wed, 24 Dec 2008, Kristy wrote:
>>>>>>>>>>>>
>>>>>>>>>>>>The laser is just an instrument used to remove endo and in the hands of
>>>>>>>>>>>>experienced doctors the laser can be used to excise endo.
>>>>>>>>>>>>
>>>>>>>>>>>>Also, the CEC uses the laser to do the excision of endo in their
>>>>>>>>>>>>patients (read this on another endo list, the ERC one I think but I
>>>>>>>>>>>>can't remember right now) instead of the monopolar scissors like Dr.
>>>>>>>>>>>>Redwine uses.
>>>>>>>>>>>>
>>>>>>>>>>>>Some doctors including my own uses a harmonic scalpel. I first heard
>>>>>>>>>>>>about harmonic scalpel from this list about 6 years ago.
>>>>>>>>>>>>
>>>>>>>>>>>>At Wed, 24 Dec 2008, annie wrote:
>>>>>>>>>>>>>
>>>>>>>>>>>>>i went back to the infertility doctor yesterday to let her know that i
>>>>>>>>>>>>>am going to get LAPEX surgery from CEC in atlanta to get rid of my endo
>>>>>>>>>>>>>and increase my chances of getting pregnant. the infertility obgyn had
>>>>>>>>>>>>>no clue what LAPEX was. i found this to be a little disturbing becuase
>>>>>>>>>>>>>the hospital i went to was a research hospital. i guess regular
>>>>>>>>>>>>>infertility doctors are not trained on LAPEX they are trained on just
>>>>>>>>>>>>>regular lasering endo. they just laser what they see .there main goal
>>>>>>>>>>>>>is to get me pregnant not worrying about the long term effect of
>>>>>>>>>>>>>hormones and inseminations. and if i chose to do insemination, the endo
>>>>>>>>>>>>>would still be there and it would get worse and i would have to do
>>>>>>>>>>>>>insemination again if i wanted more children. this is why a am putting
>>>>>>>>>>>>>it into the hands of dr. sinervo who is an expert in getting rid of the
>>>>>>>>>>>>>endo- this will be better for me in the long run and increase my
>>>>>>>>>>>>>fertility
>>>>>>>>>>>>
>>>>>>>>>>>>--
>>>>>>>>>>>>=====
>>>>>>>>>>>>Kristy :)
>>>>>>>>>>>>
>>>>>>>>>>>>http://www.geocities.com/sokokl/Kristysstory.html
>>>>>>>>>>>>
>>>>>>>>>>--
>>>>>>>>>>=====
>>>>>>>>>>Kristy :)
>>>>>>>>>>
>>>>>>>>>>http://www.geocities.com/sokokl/Kristysstory.html
>>>>>>>>>>
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