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Re: currence, younger women
From: anonymous (anonymous@obgyn.net)
Sat Dec 27 15:33:54 2008
annie, this woman actually went to the CEC and got help, but she still
attacks them
i just wish heather g knew about her...she's atrocious, it's like she
has two personalities, and the evil one is reallllly bad
At Sat, 27 Dec 2008, annie wrote:
>
>that is great to know but this is what it all balls down to:
>endometriosis has no cure. but even though there is no cure, there are
>good and bad treatments for it just like there are doctors who are more
>skilled at performing laproscopic surgery and doctors that suck at it.
>cec is known for helping many women with endometriosis. many women
>state that they have been pain free for years after surgery and are able
>to conceive naturally. because there is no cure, there is always going
>to be a percentage of people who have not benefited from cec. if you
>compare the resposes of women who have gone to cec: the percentage of
>women who have benefitted from cec is farrrrrrrrr greater than those who
>have not.
>
>At Sat, 27 Dec 2008, anonymous wrote:
>>
>>This site >http://www.health-mediainfo.net/Women-Health/105499.htm
>>
>>is from the ERC, the person who voluntarily monitors the ERC site is
>>Heather G., who is employed by the CEC.
>>
>>Consider the source. Naturally, her aim is to guide people to the CEC
>>despite there being other exceptional exsionists.
>>
>>At Fri, 26 Dec 2008, anonymous wrote:
>>>
>>>''Recent studies have also shown that Endometriosis may in fact have an
>>>even bigger impact on younger patients than older women. One such study
>>>discovered that in patients under 22 years of age, the rate of disease
>>>recurrence was double that of older women (35% versus 19%). The study
>>>also revealed that the disease behaves differently in younger women;
>>>leading some researchers to believe it is a different form of
>>>Endometriosis altogether. Surgery, considered necessary to accurately
>>>diagnose and effectively treat the disease, is often withheld from
>>>younger patients based on the injudicious belief that early surgery
>>>somehow negatively influences a young woman’s fertility. Extensive,
>>>cumulative research has shown this concern to be unfounded. What can
>>>impact fertility, however, is neglecting effective treatment of the
>>>disease. Some researchers also feel that symptomatic, adolescent-onset
>>>Endometriosis is most often a lifelong problem that will progress to
>>>severe fibrotic disease.
>>>
>>>While it is possible to become pregnant with Endometriosis, the key is
>>>to obtain early, effective treatment such as that offered by specialty
>>>treatment centers like the Center for Endo Care (see
>>>http://www.centerforendo.com to learn about the success of excision as
>>>treatment). Hysterectomy is not a cure for Endometriosis. Any disease
>>>left behind by the surgeon (whether by design because he or she
>>>'couldn't get it all' or accident because they don't recognize the
>>>disease in all manifestations) will continue to thrive and cause pain
>>>and symptoms. It does not matter if the ovaries are removed or if HRT
>>>is withheld; Endo produces its own estrogen-synthesizing enzyme known as
>>>aromatase. Thus, it enables it's own vicious life cycle and sustains
>>>the disease process. You would be better off getting all disease truly
>>>excised from all locations at a specialty center like the CEC
>>>(http://www.centerforendo.com).''
>>>
>>>http://www.health-mediainfo.net/Women-Health/105499.htm
>>>
>>>At Fri, 26 Dec 2008, anonymous wrote:
>>>>
>>>>How is NWeber misinformed? she stated the same thing you did.
>>>>
>>>>At Fri, 26 Dec 2008, anonymous wrote:
>>>>>
>>>>> NWeber is misinformed.
>>>>>
>>>>>LAPEX surgery is an anacronym for 'laporascopic excision'. The LAP
>>>>>stands for laporascopic. The EX stands for Excision. This type of
>>>>>surgery can be performed by using different tools, either a LASER at the
>>>>>CEC, or by Redwine, by monopolar scissors.
>>>>>
>>>>>Deep removal of endometriosis can be done by laser or scissors,
>>>>>only in the hands of a key endometriosis expert.
>>>>>
>>>>>If an expert operates on you with a laser, he knows how much to cut,
>>>>>where to cut, and this will lead to excision.
>>>>>
>>>>>It is really not the tool that is in question, but the skill of the
>>>>>surgeon.
>>>>>
>>>>>If a regular ob/gyn uses a laser and they aren't all that familiar with
>>>>>endo, they may end up burning small endo implants deeper into tissue
>>>>>(thus it will come back).
>>>>>
>>>>>An expert will know how deep to cut in order to completely
>>>>>excise the implant, whether he uses a laser or a scissor like
>>>>>instrument.
>>>>>
>>>>>In addition, there are many different types of lasers that the experts
>>>>>can use at their disposal.
>>>>>
>>>>>Look here at Dr. A at CEC:
>>>>>http://www.centerforendo.com/articles/excision.htm
>>>>>Nowhere does he mention he does NOT use a laser as a cutting tool.
>>>>>
>>>>>There is mention that he uses no LASER ABLATION, but that is a
>>>>>completely different thing than using a laser for excision. For
>>>>>excision, the doctor uses the laser as a cutting tool to cut the endo
>>>>>out. In laser ablation, the laser is only used to destroy the tissue,
>>>>>not necessarily get rid of it, but to burn it out. If laser ablation is
>>>>>used, it is the typical 'laser surgery' that most gyns do. This laser
>>>>>surgery is destructive, burning away the tissue, but not completely,
>>>>>letting some endo tissue also get burned up and still stay in place.
>>>>>
>>>>>At Thu, 25 Dec 2008, anonymous wrote:
>>>>>>
>>>>>>Thank you, NWeber! you know your stuff, and explain it well
>>>>>>
>>>>>>At Wed, 24 Dec 2008, NWeber wrote:
>>>>>>>
>>>>>>>There is one thing that needs to be cleared up here, so that
>>>>>>>misinformation isn't spread through this topic. Laser surgery is in no
>>>>>>>way the same as LAPEX (excision surgery.)
>>>>>>>
>>>>>>>A traditional laser does nothing for endo. It burns it off by way of
>>>>>>>vaporization, then comes right back, and many patients experience worse
>>>>>>>symptoms after laser or burning surgeries. LAPEX(excision surgery)
>>>>>>>removes deep down the implants of the endometriosis. This is the reason
>>>>>>>it works well and places like the CEC and Dr. Redwine.
>>>>>>>
>>>>>>>Most RE's do not know the correct way to remove endo, many remove it by
>>>>>>>typical lasers or by burning. This is the common problem with this
>>>>>>>disease, we take the word of RE's or regular OBGYN's and think that they
>>>>>>>know what they are doing. With this disease, you must understand that
>>>>>>>excision is the only successful way to remove this disease, and even at
>>>>>>>times, in difficult cases, it can come back. However, the timeline is
>>>>>>>much better with excision surgery. Some people have one excision
>>>>>>>surgery and never need another, some it lasts five years. Each person
>>>>>>>is different.
>>>>>>>
>>>>>>>Please research and understand the difference between lasers and LAPEX.
>>>>>>>These instruments are not the same.
>>>>>>>
>>>>>>>Dr. Redwine's site or the CEC is a great place for explanation.
>>>>>>>
>>>>>>>At Wed, 24 Dec 2008, Kristy wrote:
>>>>>>>>
>>>>>>>>Some of the top endo specialists are also infertility specialists like
>>>>>>>>Dr. Perloe also in Atlanta (which I am not sure if he's still
>>>>>>>>practicing right now).
>>>>>>>>
>>>>>>>>Endo specialists are regular OB/GYNs who gave up doing the deliveries to
>>>>>>>>try and help other women with endo, and some of them also have
>>>>>>>>additional training in Reproductive Endocrinology (the infertility
>>>>>>>>specialists).
>>>>>>>>
>>>>>>>>The techniques used by endo specialists whether they are regular OB/GYNs
>>>>>>>>or those that are also infertility specialists are not that much
>>>>>>>>different than what is used by a private doctor in the community other
>>>>>>>>than the amount of experience with those techniques. Not the names of
>>>>>>>>the techniques.
>>>>>>>>
>>>>>>>>LAPEX is just another way to say that endo is being removed thru
>>>>>>>>excision done thru laparoscopic surgery.
>>>>>>>>
>>>>>>>>The laser is just an instrument used to remove the endo whether it's
>>>>>>>>done thru excision or one of the other methods.
>>>>>>>>
>>>>>>>>For years it used to be primarily infertility specialists that mostly
>>>>>>>>saw endo (read this in one of the books on endo) because of those women
>>>>>>>>that were looking to try and get pregnant and couldn't do it on their
>>>>>>>>own.
>>>>>>>>
>>>>>>>>At Wed, 24 Dec 2008, annie wrote:
>>>>>>>>>
>>>>>>>>>infertility specialists and endo specialists have different techniques,
>>>>>>>>>or different names for their techniques
>>>>>>>>>At Wed, 24 Dec 2008, Kristy wrote:
>>>>>>>>>>
>>>>>>>>>>The laser is just an instrument used to remove endo and in the hands of
>>>>>>>>>>experienced doctors the laser can be used to excise endo.
>>>>>>>>>>
>>>>>>>>>>Also, the CEC uses the laser to do the excision of endo in their
>>>>>>>>>>patients (read this on another endo list, the ERC one I think but I
>>>>>>>>>>can't remember right now) instead of the monopolar scissors like Dr.
>>>>>>>>>>Redwine uses.
>>>>>>>>>>
>>>>>>>>>>Some doctors including my own uses a harmonic scalpel. I first heard
>>>>>>>>>>about harmonic scalpel from this list about 6 years ago.
>>>>>>>>>>
>>>>>>>>>>At Wed, 24 Dec 2008, annie wrote:
>>>>>>>>>>>
>>>>>>>>>>>i went back to the infertility doctor yesterday to let her know that i
>>>>>>>>>>>am going to get LAPEX surgery from CEC in atlanta to get rid of my endo
>>>>>>>>>>>and increase my chances of getting pregnant. the infertility obgyn had
>>>>>>>>>>>no clue what LAPEX was. i found this to be a little disturbing becuase
>>>>>>>>>>>the hospital i went to was a research hospital. i guess regular
>>>>>>>>>>>infertility doctors are not trained on LAPEX they are trained on just
>>>>>>>>>>>regular lasering endo. they just laser what they see .there main goal
>>>>>>>>>>>is to get me pregnant not worrying about the long term effect of
>>>>>>>>>>>hormones and inseminations. and if i chose to do insemination, the endo
>>>>>>>>>>>would still be there and it would get worse and i would have to do
>>>>>>>>>>>insemination again if i wanted more children. this is why a am putting
>>>>>>>>>>>it into the hands of dr. sinervo who is an expert in getting rid of the
>>>>>>>>>>>endo- this will be better for me in the long run and increase my
>>>>>>>>>>>fertility
>>>>>>>>>>
>>>>>>>>>>--
>>>>>>>>>>=====
>>>>>>>>>>Kristy :)
>>>>>>>>>>
>>>>>>>>>>http://www.geocities.com/sokokl/Kristysstory.html
>>>>>>>>>>
>>>>>>>>--
>>>>>>>>=====
>>>>>>>>Kristy :)
>>>>>>>>
>>>>>>>>http://www.geocities.com/sokokl/Kristysstory.html
>>>>>>>>
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