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Re: how long do you just 'deal' with the pain before calling the doctor
From: Tammy (anonymous@obgyn.net)
Wed Nov 26 08:38:20 2008
Thank you for the advise. I thought about asking the CEC for a record
review but since there is NO WAY i can afford to have surgery there I
didnt want to waste their time. The only specialist in my area does not
accept any insurance either and it is an insane amount of money that I
just dont have. I will not have a hysto, I will not put my body through
that type of turmoil at 33 years old and I am right now childless
although someday i hope to have a baby just not yet.
I am simply disgusted with myself today and every now and then this
disease really takes a toll on me and makes me feel just weak and i hate
feeling so weak.
At Tue, 25 Nov 2008, NWeber wrote:
>
>Please consider and listen to what Kathy has written. She is absolutely
>correct when she says that a hysterectomy is not a cure all. Please at
>least consider a record review from a true endo specialist. The CEC
>offers them for free! They can give you a treatment plan they think is
>the best specifically for you. I got a record review and then worked
>out a plan with another doctor because my insurance would not cover the
>CEC, but please at least check with them. Hang in there. Have you
>tried looking into the endo diet or any supplements? These have seemed
>to help me alot in dealing with my pain. Each person is different, but
>it does help lots of women.
>
>Feel free to throw out your location and see if there are any endo
>specialists around your area.
>
>Best of luck!
>
>At Tue, 25 Nov 2008, Kathy wrote:
>>
>>DO NOT rush into a hysterectomy. There is not a guarantee of relief
>>from pain nor is there a guarantee that the endo will go away and not
>>come back. There is no cure-all for endo. I would hate to see you have
>>a hyst and still have the pain...whether it be from endo or adhesions.
>>The more you get cut open, the more you place yourself at risk of
>>getting more adhesions which, in themselves, hurt since they stick your
>>organs together. Do a LOT of research because a hyst is not a guarantee
>>cure, to say the least. As far as calling the doctor, there really
>>isn't much they can do. Mine always recommended another lap (and low
>>and behold, here I am with pain due to not only endo but adhesions from
>>numerous surgeries - I was not warned of how adhesions are created) or
>>they would switch around my bcp which would typically lead me into a
>>whole new set of symptoms...nausea, dizziness, etc. It's been my
>>experience that the doctors just seem to experiment to see what will
>>work best. For me, nothing has. That's one of the worst parts of this
>>disease. You could always try the ER, but all they will do is give you
>>pain meds...IF they even do that. It's really not fair that there is no
>>way to even get a few seconds of relief. I'm with ya.
>>
>>At Tue, 25 Nov 2008, anonymous wrote:
>>>
>>>My advice - call the doc and complain. The squeaky wheel gets the oil -
>>>especially in todays overburdened medical system. I have tried to suck
>>>it up and wait for years, and it never got better - only worse. Pain is
>>>your body's way of telling you that something is wrong. I would listen
>>>if I were you- pain meds only masking the problem. Its kind of like a
>>>weed - if you don't get at the root of the problem, it'll keep coming
>>>back.
>>>
>>>I am currently in the process of scheduling a total hysterectomy in
>>>hopes of finding relief and getting my life back! I've also had too many
>>>surgeries, and can barely walk some days. I have severe vertigo too!
>>>
>>>I don't know how old you are, but I would suggest discussing this with
>>>your doctor as an option - especially if you are finished having
>>>children.
>>>
>>>I hope that things get better for you soon.
>>>
>>>Hugs,
>>>M
>>>At Tue, 25 Nov 2008, Tammy wrote:
>>>>
>>>>My question is for anyone willing to answer. I am awaiting the results
>>>>from my latest cat scan, i have already had four surgeries in a very
>>>>short length of time and i am 100% certain the endo and adhesions are
>>>>back in full force. I am living on pain killers like so many of us do
>>>>but the pain is ridiculous, it hurts to sit, to stand, to try and go to
>>>>the bathroom, to laugh, to cough, it hurts. Its constant with small
>>>>periods of I can tolerate this for a few minutes. I know there is
>>>>nothign my doctor can do for me but how bad do you let it get and for
>>>>how long before you call your doctor who will just sigh and let you know
>>>>to "hang in there" ? i mean how much pain can one person take before it
>>>>drives you insane. I do not let it stop me in anyway, I mean I push
>>>>myself no matter how bad it is to get up, to do everything that I can
>>>>normally do but when it feels like someone has a pitchfork inside of you
>>>>at all times it is beyond frustrating and the only postion that feels
>>>>okay is fetal. So how long do you wait to call and is it really even
>>>>worth it, does anyone have a doctor that knows how to give them better
>>>>relief?
>>>>Thank you for listening.
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