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Re: how long do you just 'deal' with the pain before calling the doctor
From: Tammy (anonymous@obgyn.net)
Wed Nov 26 08:33:32 2008
Thank you both for your input.
I will not have a hysto. I am only 33 years old and i a want children
someday,just not today so whats supposed to be in my body needs to stay
right now. i hate these pain pills they dont help anything, the endo
creates more adhesions than the surgeries do but add them together and
you can barley tell what is what inside of me. I HATE THIS DISEASE more
than anything. I hate that no one has any cure for this, i hate that
the doctors want to push me aside because I am "that" patient, the one
they cant fix, the one that is always in the office in pain and they
cant do anything about it. I hate that just because this disease doesnt
kill you the research being done is not nearly as much as other
diseases. I hate that the media downplays endo, like its just Ah no big
deal just some pain. IT RULES EVERY MOVE I MAKE FOR MONTHS ON END and
more than anything i hate the way it causes me to slow down and feel
helpless. I am just so tired and the pain is so bad lately it never
stops. Sorry I just needed to vent.
At Tue, 25 Nov 2008, Kathy wrote:
>
>DO NOT rush into a hysterectomy. There is not a guarantee of relief
>from pain nor is there a guarantee that the endo will go away and not
>come back. There is no cure-all for endo. I would hate to see you have
>a hyst and still have the pain...whether it be from endo or adhesions.
>The more you get cut open, the more you place yourself at risk of
>getting more adhesions which, in themselves, hurt since they stick your
>organs together. Do a LOT of research because a hyst is not a guarantee
>cure, to say the least. As far as calling the doctor, there really
>isn't much they can do. Mine always recommended another lap (and low
>and behold, here I am with pain due to not only endo but adhesions from
>numerous surgeries - I was not warned of how adhesions are created) or
>they would switch around my bcp which would typically lead me into a
>whole new set of symptoms...nausea, dizziness, etc. It's been my
>experience that the doctors just seem to experiment to see what will
>work best. For me, nothing has. That's one of the worst parts of this
>disease. You could always try the ER, but all they will do is give you
>pain meds...IF they even do that. It's really not fair that there is no
>way to even get a few seconds of relief. I'm with ya.
>
>At Tue, 25 Nov 2008, anonymous wrote:
>>
>>My advice - call the doc and complain. The squeaky wheel gets the oil -
>>especially in todays overburdened medical system. I have tried to suck
>>it up and wait for years, and it never got better - only worse. Pain is
>>your body's way of telling you that something is wrong. I would listen
>>if I were you- pain meds only masking the problem. Its kind of like a
>>weed - if you don't get at the root of the problem, it'll keep coming
>>back.
>>
>>I am currently in the process of scheduling a total hysterectomy in
>>hopes of finding relief and getting my life back! I've also had too many
>>surgeries, and can barely walk some days. I have severe vertigo too!
>>
>>I don't know how old you are, but I would suggest discussing this with
>>your doctor as an option - especially if you are finished having
>>children.
>>
>>I hope that things get better for you soon.
>>
>>Hugs,
>>M
>>At Tue, 25 Nov 2008, Tammy wrote:
>>>
>>>My question is for anyone willing to answer. I am awaiting the results
>>>from my latest cat scan, i have already had four surgeries in a very
>>>short length of time and i am 100% certain the endo and adhesions are
>>>back in full force. I am living on pain killers like so many of us do
>>>but the pain is ridiculous, it hurts to sit, to stand, to try and go to
>>>the bathroom, to laugh, to cough, it hurts. Its constant with small
>>>periods of I can tolerate this for a few minutes. I know there is
>>>nothign my doctor can do for me but how bad do you let it get and for
>>>how long before you call your doctor who will just sigh and let you know
>>>to "hang in there" ? i mean how much pain can one person take before it
>>>drives you insane. I do not let it stop me in anyway, I mean I push
>>>myself no matter how bad it is to get up, to do everything that I can
>>>normally do but when it feels like someone has a pitchfork inside of you
>>>at all times it is beyond frustrating and the only postion that feels
>>>okay is fetal. So how long do you wait to call and is it really even
>>>worth it, does anyone have a doctor that knows how to give them better
>>>relief?
>>>Thank you for listening.
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