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Re: Danazol- blessing or curse
From: Sarah122 (anonymous@obgyn.net)
Mon Nov 24 13:30:43 2008
Thank you so much for the input and prayers! I started the danazol this
weekend and haven't noticed any side effects yet. I am sorry you are
having such problems with the Lupron. I have told my dr that I was very
scared about taking the Lupron, I really haven't found anything good
about it at all! I think I have read more that the effects of danazol
are reversable, and it seems like alot of women have trouble with
longterm effects on the Lupron.
thanks again, I will keep you in my prayers as well!
Sarah
At Thu, 20 Nov 2008, Lesa wrote:
>
>Hello,
>
>I have been on Lupron on two different occassion. I had shots for about
>6 months after a surgery about 10 years ago. Also, I started the shots
>back this year for numerous months. Now, the side effects are really
>something else. I went through serious menopause (night sweats that
>were awful) stage that caused me to be hot all the time. I am talking
>about a heat that the air conditioner does not seem to help even when
>you are barely dressed. Also, it causes bone digenearation and joint
>issues. Currently, I am having joint and muscle issues that no one can
>seem to find out what the problems are. I keep having joints swell up
>on different parts of my body. Now, when they do lab work and blood
>work, they don't find anything. So, I am thinking that it couls be side
>effects from the lupron. Now, I did not have any endo pain while on the
>lupron because I did not have a cycle. (I know everyperson's body is
>differnt) I thought about the Danzol but, I was scared of the side
>affects of the deep voice and hair (indications of taking on man like
>features) so, I didn't do it.
>
>Well, I hope that you pray about whatever decision you make and know
>that I will be praying for you.
>
>Be Blessed,
>At Thu, 20 Nov 2008, Sarah122 wrote:
>>
>>At Wed, 12 Apr 2000, sandra wrote:
>>>
>>>Okay. Now that I am bleeding constantly and sick of it I need a
>>>treatment. Lupron, I have heard, is a horror. Is there anyone out
>>>there that has had a good "time" with it? I want to hear good and bad
>>>reports of danazol too? Does it make you a man (just kidding)? what are
>>>the regular side effects rather than the text book ones? Thanks to all
>>>who answer my questions. Again I am so glad I found this site.
>>
>>This is kind of my problem too, the bleeding is not so heavy - and I
>>really do not want to go on additional hormones (I am taking
>>norethindrone right now), but my dr just put me on danocrine/danazol
>>yesterday, because I have been refusing Lupron (too many horror
>>stories). I don't really know much about danazol, and the research that
>>I started yesterday afternoon makes it sound even WORSE than the Lupron.
>>I know everyone reacts differently....but I also keep seeing that they
>>rarely use this on patients any more. So I am freaked out. Also - I
>>have a caring boyfriend, family, friends etc, but I feel so alone with
>>this! I am trying to find a support group in Houston but the only number
>>I have for a contact I haven't been getting a response from. If anyone
>>knows anything about a support group here, I really want to talk to
>>other people that have endometriosis, b/c it is not easy to explain to
>>other people, and all that. Seriously, it does sound like the stuff
>>turns you into a man!
>>Thanks for any help/info/support you can give!
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