Re: awaiting another possible surgery ...5 in 7 years
From: anonymous (anonymous@obgyn.net)
Fri Oct 31 17:03:43 2008
I know this is going to sound nuts, but I think the one thing you can do
to minimize your pain is to drop your exercise regimen to only 3 days
instead of 5.
Everytime you exercise, you are making your muscles stronger, but also
your adhesions might be also getting thicker and stronger, and this
might be increasing your pain.
Try to do light exercises, not heavy jumping or aerobics, as this type
of exercise can make the pain worse. Be careful also of Yoga, as
sometimes you position your pelvis below your head, which can not be a
good thing if you have endo. Also any type of heavy twisting in your
abdominal area can make the pain worse (and make the adhesions wrap
around organs).
At Fri, 31 Oct 2008, Tammy wrote:
>
>Thank you for replying to my post so much. It has been as you all know
>an emotional rollercoaster to say the least. Yes my doctor does excise
>the endo and its mostly the adhesions that are what cause my pain ( my
>doctor has shown me post surgical pictures because she couldnt believe
>how thick the adhesions were) At one point she said she thought I had
>extra muscles because they were so thick and strong. I am going to
>attempt this last surgery if they will do it. I am high risk but I can
>not live in pain and then I am oging to try the endo diet, if i have to
>eat lettuce and water until i am ready for a baby so be it.
>thank you for your kind words... i really hope and pray that one day we
>can all be endo free.
>
>At Thu, 30 Oct 2008, anonymous@obgyn.net wrote:
>>
>>I am so sorry for your pain. I have been going through it as you have
>>for years and years, having surgery after surgery. Honestly, you may
>>love your doctor but she may not be skilled enough to help your endo.
>>That's the reality I faced. My gyno did all of my laps and I love her.
>>She's amazing. But when it came down to it, she wasn't excising all of
>>my endo deep enough, most doctors don't exise is deep enough. Does your
>>doctor perfom excision? The difference between excision removal of endo
>>(cutting it out) and traditional cauterising (burning with laser) is the
>>excision goes deeper and removes the endo from more of its "root". I
>>was really hesistant to this whole thing, but I ended up seeing an endo
>>specialist who did excision on my endo and took out a whole bunch of
>>other things that could be contributing to my pain (adhesions, scar
>>tissue, appendix). It is worth looking into. There are some excision
>>specialists that accept insurance (the doctor I saw did, leaving me with
>>a very little bill for the surgery), some that do not, but if you think
>>about how much money you'll save in the long run, it's worth it. If you
>>have any questions please contact me. Be well :-)
>>
>>At Thu, 30 Oct 2008, Ally wrote:
>>>
>>>I don't have a solution for you, but I can imagine how frustrated you
>>>are. I have stage IV endo and went through 2 surgeries last year. No
>>>pain for me; I have recurrent cysts. It's so frustrating having more
>>>every month. I've started continuous birth control now to help. I'm
>>>only 31 (young like you) and it's disgusting to think of how many years
>>>of this I have ahead of me. Not to mention that I appear unable to have
>>>children :(
>>>It sounds like you're doing all you can. I hope you get relief soon!
>>>{{HUGS}}
>>>
>>>At Thu, 30 Oct 2008, Tammy wrote:
>>>>
>>>>I really need some input here ladies. I am 33 years old and I have
>>>>already had 4 surgeries one lapectomy and 3 laproscopic for stage 4
>>>>endo. My doctor is fantastic ( she did the last three surgeries for me)
>>>>however its back again, in just one and half years time the pain is
>>>>back. I finally got on a health kick, dropped 35 pounds, workout 5 days
>>>>a week, eat really healthy and now all of a sudden the pain stops me in
>>>>my tracks. I am living on pain killers as i can not even take an asprin
>>>>due to blood disorders and I hate being loopy all day long. Is it
>>>>really possible that endo can just keep growing like this??? i dont have
>>>>children so refuse a hysto at this point. I have a really high
>>>>tolerance of pain so when its bad i know its really bad, had a sonogram
>>>>today and of course it only shows fluid surrounding my right ovary..next
>>>>step Im sure will be a cat scan or pet scan which will show nothing like
>>>>it always does then...surgery i am sure and that will reveal the same it
>>>>always does my insides are a mess. has anyone else had such issues with
>>>>it reoccuring so fast? i can not take any birth control nor any type of
>>>>medication to slow it down... is there anything else I can do???
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