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Re: severe endo and fertilityFrom: bren (anonymous@obgyn.net)Fri Oct 31 13:50:29 2008
Hi Nicki- I was just wondering what kind of symptoms you are having? Is the doctor who diagnosed you w/ possible endo an endometriosis specialist or obgyn specialist/pelvic pain specialist, etc? I was also wondering what kind of tests/exams you had done? I was diagnosed w/ endo as well before my lap and have been (and still am) experiencing a lot of symptoms along w/ debilitating sciatic pain. Before lap, I had a pelvic u/s and MRI of the pelvis & abdomen and the only thing that was found was that I have a retroverted(tilted) uterus and had a lot of constipation at the time. I still suffer from bowel symptoms/pain and constipation and feel like endo was missed in this area during my lap surgery because my doctor (obgyn specialist) is not fully experienced w/ all the manifistation and appearances of endo and the pain that it causes. At first, he stated that he did not think that my GI issues could be related to endo when research shows that women w/ endo often suffer from IBS symptoms or other GI problems, especially constipation that can alter from that to diarrhea (sorry tmi) before and during your menstrual period. I also noticed that w/ each bowel movement or when I am constipated or when my bladder is full, that I have more pain (especially the sciatic pain). During lap, my doctor said he only found a lot of scar tissue and adhesions from my appendectomy in 2003 that spread throughout...and I don't see how it can spread to other locations and even my "appendicitis" is questionable...I had severe pain that started off as an indigestion feeling in 2003 and didn't even go to the ER until sufferring for about 3 1/2 days because my mom thought it was just an ovarian cyst or from my menstrual cycle. When I went to the ER (horrible) they took me right in on a wheelchair, put me on a "bed" and just hooked me up to the IVs and machines to keep track of my vitals and just kept shooting my IV w/ morphine (which just "pissed" me off because my pain was so severe and it was like they were using the morphine constantly to try and sedate me so I would stop screaming and pass out). The pain was so bad that the morphine didn't help the pain and they would just give me enough to pass out. I got there at 10 am and didn't go into surgery until about 7 or 8pm. They made me drink the radioactive fluid for a CT scan (hard to drink all that when your stomach is feeling sick-took me an hour or so) and right when I finished it, the doctor came and said "oh-we don't need a CT scan...sounds like you have appendicitis and we're just going to take you into surgery"...so what a waste of torture because after surgery, that CT fluid made me sick to my stomach I was having major "you know what" and this was not easy having to constantly get out of the bed to use the restroom...I couldn't even get out of bed alone...Oh and I came out of surgery at like 10pm and the nurses just made me sleep, so instead of being released the next day, I ended up staying a week because I caught the hospital induced pneumonia and leg edema because they didn't put anything on my legs for circulation and didn't even notice it. My mom noticed it and had to go to the department to complain and get something on my legs...Anyways, the "appendicits" was/is questionable now because the doctor said if I waited longer, my appendix would've burst, but my WBC was in normal range, which is usually not possible when you're appendix is about to burst. I feel that it was endo at the time because my symptoms w/ my menstrual cycle worsened ever since...I sufferred many years w/ diagnosis of dysmenorrhea & PMDD thinking that this was all normal. My Period pain is so bad that I cringe right before and during...I know exactly when I'm about to start because I get contractions. So,..anyways,,,sorry for babbling...I just am lost to how endo was not clearly seen in my lap when I have all the symptoms, was diagnosed w/ a rectal/vaginal exam (lots of tenderness and nodules felt posterior my uterus, tilted uterus, etc) by 2 doctors...and it's tough cuz my ob even admitted he doesn't know all about endo....I really want to see an experienced endo specialist, but I have Kaiser and I don't know if they really have an experienced one who knows all the appearances of endo. I have photos from my lap, and many areas just don't look right to me...My doctor wanted to put me on Lupron but changed his mind (strange..he suddenly did while meeting w/ him and talking about treatments & I was actually talking about concerns w/ fertility issues, etc..& then he switched his option of treatment to a higher dose of Yasmin BC except too bad I had really bad side effects from it).....Now I'm on progesterone only BC pills (Medroxyprogesterone 5mg aka Provera) to help w/ my Heavy Long periods..which I don't know if it really helps a lot..it helps some, but I still get a lot of pain......Anyways, sorry for rambling on...maybe someone out there who reads this had similar experiences to share w/ me...all of us seem to have our bowel affected by endo or adeno or some other that our doctors missed....BTW, if you are concerned about your fertility, you should ask for a fertility test. I requested one and my doctor had no problem ordering that for me....Hope all goes well for you and keep us posted...Wishing you a pain free and symptom free day-week-months-years..etc...etc..... *Bren** At Fri, 31 Oct 2008, Nicki wrote: > >Hi. I'm 'newly' diagnosed. haven't had a lap done yet but Dr is sure >it is endo and is severe because i've got intense rectal pain, bleeding >and inflammed skin on the inside of my colon. She thinks that the endo >is penetrating through. So I need a lap and likely bowel resection. >I'm worried about the surgery, but I can't stop worrying about >fertility. We had been trying for 2 months and Dr thinks that we >wouldn't have been able to conceive naturally at the moment (I'm just >30). I've been trying to get stats on severe endo and fertility rates, >but it seems to vague - in that people say fertility is definately >decreased, but don't know by how much. >Does anyone have experience of having severe endo and conceiving either >naturally or through IVF? I would greatly appreaciate any experiences.
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