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Re: awaiting another possible surgery ...5 in 7 years
From: anonymous@obgyn.net
Thu Oct 30 16:01:30 2008
I am so sorry for your pain. I have been going through it as you have
for years and years, having surgery after surgery. Honestly, you may
love your doctor but she may not be skilled enough to help your endo.
That's the reality I faced. My gyno did all of my laps and I love her.
She's amazing. But when it came down to it, she wasn't excising all of
my endo deep enough, most doctors don't exise is deep enough. Does your
doctor perfom excision? The difference between excision removal of endo
(cutting it out) and traditional cauterising (burning with laser) is the
excision goes deeper and removes the endo from more of its "root". I
was really hesistant to this whole thing, but I ended up seeing an endo
specialist who did excision on my endo and took out a whole bunch of
other things that could be contributing to my pain (adhesions, scar
tissue, appendix). It is worth looking into. There are some excision
specialists that accept insurance (the doctor I saw did, leaving me with
a very little bill for the surgery), some that do not, but if you think
about how much money you'll save in the long run, it's worth it. If you
have any questions please contact me. Be well :-)
At Thu, 30 Oct 2008, Ally wrote:
>
>I don't have a solution for you, but I can imagine how frustrated you
>are. I have stage IV endo and went through 2 surgeries last year. No
>pain for me; I have recurrent cysts. It's so frustrating having more
>every month. I've started continuous birth control now to help. I'm
>only 31 (young like you) and it's disgusting to think of how many years
>of this I have ahead of me. Not to mention that I appear unable to have
>children :(
>It sounds like you're doing all you can. I hope you get relief soon!
>{{HUGS}}
>
>At Thu, 30 Oct 2008, Tammy wrote:
>>
>>I really need some input here ladies. I am 33 years old and I have
>>already had 4 surgeries one lapectomy and 3 laproscopic for stage 4
>>endo. My doctor is fantastic ( she did the last three surgeries for me)
>>however its back again, in just one and half years time the pain is
>>back. I finally got on a health kick, dropped 35 pounds, workout 5 days
>>a week, eat really healthy and now all of a sudden the pain stops me in
>>my tracks. I am living on pain killers as i can not even take an asprin
>>due to blood disorders and I hate being loopy all day long. Is it
>>really possible that endo can just keep growing like this??? i dont have
>>children so refuse a hysto at this point. I have a really high
>>tolerance of pain so when its bad i know its really bad, had a sonogram
>>today and of course it only shows fluid surrounding my right ovary..next
>>step Im sure will be a cat scan or pet scan which will show nothing like
>>it always does then...surgery i am sure and that will reveal the same it
>>always does my insides are a mess. has anyone else had such issues with
>>it reoccuring so fast? i can not take any birth control nor any type of
>>medication to slow it down... is there anything else I can do???
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