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Re: She Says I Have Endo And Need Lapro- What Do You Think??
From: bren (anonymous@obgyn.net)
Tue Oct 28 01:11:22 2008
Oh by the way, I forgot to mention another reason why it's important
that you see an endometriosis specialist (who does exision
surgery)....endo comes in all sorts of size and appearances and hides in
certain places,...so if the surgeon is not experienced, it is very
likely that endometriosis can be missed all together or just the
normal-obvious endo burnt/cut out and less obvious ones left alone
causing little or no relief from the laparoscopy. Hope this helps, too!
=)
*Bren*
At Tue, 28 Oct 2008, Leyna wrote:
>
>Hi All,
>
><b>My name is Leyna, and I recieved a tentative diagnosis of
>endometriosis.</b> Here's why it's tentative/a backstory:
>
>In the spring of '07 I began getting tension headaches which grew worse
>until September '07, just after I got married, I began getting terrible
>migraines. I immediately went to my PCP, and due to my headaches, my
>weight at the time (265 lbs), and recent diagnosis of reactive
>hypoglycemia (which can both be signs of diabetes down the road), she
>prescribed me a medicine called Topamax. Topamax is a miracle medicine-
>not only are my headaches 99.5% gone, by the end of the year I had lost
>40 lbs that I hadnt been able to lose through diet change or excercise!
>
>However, in November of '07 I began having menstrual cramps. This was
>extremely unusual for me because I have been on birth control pills
>since I was 15 due to severe cramping and nausea and and havent really
>experienced those since. The cramping wasnt terrible by any means- just
>uncomfortable- so I ignored it. Until around Christmas, when sex began
>to be painful. At first I thought I'd just hurt something somehow and
>was sore- but it continued for far too long to be normal. I feared
>something very serious was wrong, so I set up an appointment with my
>gyno.
>
>She gave me an exam and said everything looked and felt fine. Then she
>reviewed my medications with me, and said that my pain could be due to
>the Topamax having a bad interaction with my birth control- she upped
>the hormone level in an attempt to compensate, since I did not want to
>stop taking the Topamax or the birth control. By February this year,
>nothing had changed except that I began being queasy during my cycles
>and experiencing the discomfort outside of the cycles, so she gave me an
>ultrasound. The ultrasound revealed a cyst on my right ovary. This
>upset me alot, but she was still convinced it could have been caused by
>my medications, so she switched me from the pills to Nuvaring, hoping
>that if the meds were absorbed into my body in completely different
>ways, they wouldn't have a chance to interact badly. She scheduled me
>for another ultrasound in three months to see if there was any
>improvement.
>
>My ultrasound in May '08 revealed that the cyst had neither gotten
>bigger, nor gotten smaller. Again, the only change were my sypmtoms...
>the pain is worse, more frequently appears outside of my cycle, and
>occaisionally I experience nausea with the pain. My gyno seemed to run
>out of ideas- she explained that I could have endometriosis, which was a
>cause that had NEVER come up before. She said that the only was to
>check for endo is to do a laproscopy, which they would need to do to
>remove the cyst anyway.
>
><b>Sooooooo</b> here are my issues (aside from possibly having
>endometriosis):
>
>I know that my symptoms (after reading up on endo, I have others that
>match- such as back pain and frequency urinating, even the cyst) match
>up to endo... but... I guess I feel like I'm more sure I have it that
>my doctor. That is to say... if it was such a real possibility all
>along, why didn't it come up earlier? Why did my doctor play with my
>medications for so long first? I mean, has anybody even ever heard of
>medication interactions causing pain or cysts?
>
>I guess what I'm getting at is should I get a second opinion or just
>start going to a different gyno. I don't think she's wrong, I'm just a
>little upset at how she came to the diagnosis.
>
>I delayed scheduling surgery because I was not on insurance that would
>cover it, and my gyno was moving to a different practice in August- and
>in August my husband lost his job, so I have had to delay further. He's
>gotten a job with the state now and our medical benefits, once they
>start in November, will be wonderful... but I want to be sure of what
>I'm doing under whose instruction before I decide to do anything. What
>do you think?
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