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Re: Does anyone know of an Endometriosis Specialist w/in Kaiser Permanente?From: Carriane (anonymous@obgyn.net)Mon Oct 27 11:58:58 2008
Hi Bren, I hope you get some information from him!! That would be wonderful. I too am so frustrated with kaiser. It took quite some time to be properly diagnosed and I have been to some awful doctors. I was told I had IBS, cysts, urine infection and also the standard, "just bad periods" which was the most frustrating! it was so hard to be persistent because I just knew it was more than that since i would constantly throw up/pass out, be immobile for days from the pain since high school and it was just unbearable. Finally my dr wanted to do the surgery and she was an ob/gyn specialist but she wasn't great. she definitely found endo but it was more in the cul-de sac region, and also my bowels were wrapped around my appendix, which was causing the horrific stomach pains (i think). interestingly she never really went through my surgery with me, even post-op visit. she told my parents what she found but i never heard it straight from her and she never gave me a stage number that i see a lot of people have. again, she was awful. :( Anyways, it's still painful but now i am dealing with horrible migraines every day, although they get worse around the time i should have my period (my dr had me stop periods, so i just go from one pack of pills to the next after the 3rd week...im not thrilled about this though, i just dont think it can be good to stop your periods) so i am under a nuerlogist care at kaiser in baldwin park but i got so fed up with all the medications and visits that i just stopped everything. so now i am loolking for a new gyno with some endo knowledge that can also help with my migraines. so. that is a very very brief blurb about my issues! i hope you find a dr that can help! i feel so defeated that i feel terrible every day and im only 23!! What about you? > >Hey Carriane- >I emailed my obgyn specialist from Kaiser who performed my lap surgery >because I do remember him mentioning one endo specialist. I asked him >also if this name can be given w/ location and if there was also one in >the San Gabriel area. When he emails me back, I will let you know what >his answer is..Hopefully he will be able to offer this information. So >keep in touch. >Also, just wondering what was found during your lap and details of your >symptoms/pain and surgery if you don't mind....I have Kaiser and it just >seems so difficult to get the proper diagnosis w/ them...All my >diagnosis (many different ones) see to all be symptoms of this one >debilitating disease.... >I would list all my diagnosis now, but I have another doctor's appt w/ >kaiser in about 20 minutes, so will reply later if interested. > >*Bren* > >At Mon, 27 Oct 2008, Carriane wrote: >> >>Hi Bren, >>I am going through the exact same problem as you. I also have endo and >>had the surgery about two years ago from a horrible doctor in san diego. >>I have Kaiser also and am looking for a dr in the san gabriel valley >>region with some sort of knowledge of endometriosis. I also have >>horrible migraine headaches that are somehow tied in so I need a dr that >>can tackle that also. let me know if you find anyone! I am in the >>process of calling all the kaisers in my area with that request. good >>luck! :) >>> >>>Hello everyone, >>> >>>I have Kaiser Permanente Insurance and had lap surgery for endo w/ an >>>obgyn specialist a month ago and am still having pain & symptoms. >>>(Sciatic pain, painful-heavy-long periods, sweats/hot flashes, Nausea, >>>constipation, etc)..you name it I probably suffer(ed) from it....My >>>primary care physician does not know of any in Kaiser and I can only go >>>to Kaiser, as Kaiser only accepts Kaiser Insurance. =( I really want to >>>see an endo specialist and can not afford to see one w/o insurance >>>especially when I get really good coverage @ Kaiser. I only had to pay >>>$10 for my laparoscopy surgery...but then again, it wasn't w/ an endo >>>specialist. *sigh* I live in Southern California and if anyone can help >>>me w/ info about Kaiser and a specialist for endo/adeno, it'd be grately >>>appreciated. My obgyn specialist who performed my lap referred me to >>>another obgyn but one who specializes in urology (to have a cystocopy >>>for my bladder symptoms) and the earliest appt I was able to get was in >>>Dec. I'm just a complex patient w/ so many symptoms that I'm probably a >>>doctor's worse nightmare. Any info would be appreciated. Thank you! >>> >>>-- >>>Bren >>>
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