ENDO Messages for October, 2008: Re: adenomyosis?

Re: adenomyosis?

From: bren (anonymous@obgyn.net)
Sun Oct 26 15:27:07 2008

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In reply to: Brandy: "adenomyosis?"

Hi Brandy, I'll make this short since I emailed you about this and your thoughts of having a hysterectomy. First, you should see an endometriosis specialist (I don't know how accessible one is for you, but as you know, I have Kaiser and only Kaiser accepts Kaiser insurance and I don't know of an endo specialist in Kaiser, so anyone I see outside of Kaiser, I would have to pay out of my own pocket-so not easy for me). After your post-op and finding out what was exactly done during your lap surgery and asking as many questions as you can and hearing out other treatment options, then I would make a record of all this and if possible, take it to an endo specialist for review. I know that if one has had all possible treatments for endo and even had this "cut/excised" out rather than lasered out and one is still sufferring symptoms and pain, then it is quite possible that adenomyosis is the culprit...However, if before deciding to have a hysterectomy, I would work w/ an endo specialist who can offer proper advice and treatments beforehand. If my symptoms don't improve or continue to worsen, then I would have another lap w/ the Endo Specialist rather than my original obgyn specialist who doesn't know everything about endo and adeno. After thoroughly discussing everything w/ the endo specialist, I would then give permission for him to remove my uterus (hysterectomy through laparoscopy) during the lap if he finds that your uterus is very distorted and adenomyosis is highly suspected as the cause of your sciatic pain. Since the article I emailed you that adeno can cause sciatic pain & even the retroverted uterus can cause back pain....Just remember to weigh out all the pros and cons of a hysterectomy before deciding to have one. I would actually probably have a lap again w/ an endo specialist and before deciding to have a hysterectomy (big decision) and I know the recovery for lap is a lot shorter and easier than the recovery for a hysterectomy during a lap. I'd basically would just want to try all types of treatments (besides Lupron), I'm talking more about exision surgery w/ an endo specialist and if symptoms are not better, then I would have a hysterectomy as research does say that if women continue to suffer endo symptoms after exision surgery and hormonal treatments, etc, then it is highly possible that you have adenomyosis. The good thing is that you already have one child, so the decision might be easier. Just make sure to weigh out the pros and cons and get more than one opinion especially by an endo specialist. I'm hoping that your recovery is getting better. Let me know, cuz I've been worried! Read your email. =) ***Hugs*****

*Bren*

At Sat, 25 Oct 2008, Brandy wrote: >
>Hi ladies,
>
>I'm wondering if any of you have been diagnosed with or are suspected of
>having ademomyosis? And, if so, what types of symptoms are you having?
>
>I know the the only "cure" for this is hysterectomy, but have you been
>able to find relief using any medications, like Lupron?
>
>I am meeting with my GYN on monday for post-lap follow up, and I'm
>afraid that the lap didn't get the job done. I'm almost wishing I had
>requested a hysterectomy while he was already in there, as I don't
>really want to go through this tough recovery again.
>
>My symptoms are heavy periods, usually 2 periods a month, heavy
>clotting, dark blood, and severe and crippling sciatic-type back pain.
>
>thanks for any input.
>
>--
>Brandy
>

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