ENDO Messages for October, 2008: Re: diarrhea

Re: diarrhea

From: bren (anonymous@obgyn.net)
Sun Oct 26 15:00:18 2008

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Endometriosis implants can also sometimes form in the intestines and cause painful bowel movements, diarrhea, and even constipation. It is important that the surgeon is experienced w/ all the manfistations of endometriosis because even w/ lap surgery to remove any endometriosis seen, many women continue to suffer because the surgeon missed endo in other areas. If I can go back in time before my lap, I would of asked my surgeon if it would've been possible to do the bowel resection as well. I am in search of an endometriosis specialist w/in Kaiser because my lap was performed by an obgyn specialist and although adhesions and scar tissue were removed, I have not had any relief. I sufferred many many years of dysmennorrhea (painful & heavy-long periods) and diarrhea before and @ the onset of my periods thinking that it was all normal. Now I suffer from constipation instead. It wasn't until I started to get sciatic pain daily that used to only happen before my period and after a painful papsmear that I went to see my primary care physician to get a referral to see an obgyn specialist. This was when I found that I had a retroverted uterus during an u/s and MRI and cT scan and was unofficially diagnosed w/ Endometriosis after having a physical rectal-vaginal exam. I have a lot of tenderness and nodules that were felt posterior my uterus. It's been a month since my lap, which seemed to also made my period irregular/late for the first time. I just started my period today and this whole past week, I was sufferring more sciatic pain, fatigue, and GI problems especially last night and today (w/ the GI issue). Before I would get constipation and then diarrhea when I started my period and during and it would alter throughout my cycle. Now I mostly suffer from constipation and abdominal + pelvic pain that radiates through my lower back. I also take Miralax to help w/ the constipation and noticed that once it starts to work and I am able to have a bowel movement, my stools are also very thin. There's no doubt that this is all related to my period/Endometriosis or maybe even adenomyosis, but the hardest part is getting your doctor to listen to you and agree rather then saying "it's possible" and then not doing anything about it...very frustrating...I haven't seen a GI specialist, but if you have and even had a colonoscopy that was normal, then I would not have a doubt in my mind that all your GI symptoms are related to your endo/period. GI is most commonly affected w/ endometriosis and it's surprising how many doctors do not relate the two. It's amazing of how under-researched this disease is. There needs to be more endometriosis specialist available and I just don't understand why if it's so common in women, why there isn't one easily accessible for many women who have to travel so far to get to the small number of "popular" experienced endo specialists. Anyways, usually I hear of constipation being the most common topic on this forum w/ endo and gave advice about taking miralax...but if diarrhea is the problem and is not getting any better, it's important to see a doctor about this right away as you can become very dehydrated. Remember if you do have constant diarrhea, it's very important that you continue to hydrate yourself....when I used to have this problem, I would wait it out and hydrate myself and if it did not improve, I would either go see a doctor or take immodium AD as this works well to help w/ diarrhea and pain.Hope any info I provided was of some help.....

*Bren***

At Sun, 26 Oct 2008, Ally wrote: >
>The doctor said he could see it on the u/s and it was strongly suspected
>due to my symptoms. However, I don't think it can be absolutely
>confirmed until you have a lap. I also had a colonoscopy before the lap
>that was normal. Endo enters the colon from the outside in.
>I'll have to admit, the thought of a bowel resection was VERY scary for
>me, but they were able to do it all laproscopically and with no temp.
>colostomy needed. I am very thankful for the relief I have and how
>smoothly everything went. Let me know if you have any other questions!
>
>At Sun, 26 Oct 2008, annie wrote:
>>
>>Thank you Ally,
>>Did you know in advance that the endo was invading your colon or was it
>>confirmed during the lap?
>>At Sat, 25 Oct 2008, Ally wrote:
>>>
>>>I had experienced diarrhea during my period with a lot of urgency and
>>>abdominal pain like you describe. This was only the first couple of
>>>days during my cycle, but got progressively worse each cycle (more pain,
>>>more urgency those days). I also had very thin (sorry for TMI) bowel
>>>movements and needed to go multiple times a day during the rest of my
>>>cycle.
>>>
>>>I had a lap last Dec. where a bowel resection was done due to the endo
>>>invading my colon. Since then, I experience NO diarrhea during my
>>>periods. I feel so much better and have no doubts that the GI symptoms
>>>were due to the endo.
>>>
>>>Hope you feel better soon!
>>>
>>>At Sat, 25 Oct 2008, annie wrote:
>>>>
>>>>Sorry, it is not a pleasant topic but I have Stage 3 endo which has
>>>>recently been acting up. I always had diarrhea during my period, but
>>>>now my period just ended and the abdominal pain and urgency to go to the
>>>>bathroom has not ended. Does anyone experience this and attribute it to
>>>>endo?
>>>>
>>>>--
>>>>Annie, Brookyln, NY
>>>>
>>--
>>Annie, Brookyln, NY
>>

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Previous message: bren: "Re: current chocolate ovaian cyct and endometriosis"
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