ENDO Messages for October, 2008: Re: Isnt Lupron supposed to make the pain go away?

Re: Isnt Lupron supposed to make the pain go away?

From: anonymous (anonymous@obgyn.net)
Sat Oct 25 22:55:00 2008

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Lupron WILL NOT make your endo go away completely.

Lupron will only be effective as long as you take it; when you go off it, your endo pain will come back.

Lupron overstimulates your ovaries, so after the first and even second shot, your endo pain can get worse. After the third shot, you should see some improvement. If not, I would think about discontinuing it and ask your doctor about another hormonal treatment.

Some doctors (who have been dealing with endometriosis for a long time, not necessarily specialists, either) are actually able to tell if the endo implants have shrunk during a pelvic exam. If your doc has not been dealing with endo patients regularly, I would doubt his judgment as to whether the implants have been shrinking or not.

When effective, Lupron does shrink endo implants. When Lupron is discontinued, these implants will continue to ‘grow’ back during every period.

It is always very important to research any and all medications that all of your doctors prescribe. IT IS IMPORTANT THAT AS PATIENTS, WE DON’T TOTALLY DEPEND ON OUR DOCTORS FOR EVERYTHING. We must take an active role in researching all our medications and seeing what their side effects are and whether the risks of medications and/or treatments outweigh the benefits. Only you can decide whether the risk is worth it.

Lupron does have serious side effects, it can cause an amazing amount of bone loss, and can affect your spine, teeth, etc. later on down the road. It can 'buy time' if you want to get pregnant, or delay surgery.

That said, bcps also have serious side effects as well, and women have died from heart attacks and strokes caused by blood clots while taking the pill.

Lupron is not a worthless toxin. It is another hormonal treatment option for women with endometriosis. Not everyone will respond to treatment with it and some will have more serious side effects. This is true for every drug.

By the way, doctors and pharmaceutical companies are also getting rich off of prescribing newer birth control pills like Yaz, Mirena, and Seasonique. So using that argument goes both ways.

At Sat, 25 Oct 2008, EndoChick wrote: >
>The only thing Lupron does is make doctors richer, because TAP
>Pharmaceuticals, the manufacturer, gives handsome incentives to doctors
>to push the poison on us poor women. DID YOU DO ANY RESEARCH ON LUPRON
>BEFORE TAKING IT?
>
>I did, and because the Internet is full of stories of lawsuits, and
>women's bad experiences, and tales of permanent damage, I didn't take
>it. But plenty of people I know DID take it before the research was
>available online, and they're suffering mightily.
>
>I'd run far and fast from your doctor, because if he said he could tell
>it was shrinking by doing a pelvic then he's full of nonsense. He's
>lying to you. The only way to know the status of active endo lesions is
>to do a lap.
>
>I think you need to change doctors. Fast. Find a specialist. Find
>someone who won't tell you lies and profit from giving you a worthless
>toxin.
>
>At Sat, 25 Oct 2008, anonymous wrote:
>>
>>This whole endo thing has been a whi
>
>rlwind. I've had three shots of
>>Lupron but there is still pain and I am still fatigued much of the time.
>>The doc said the pain would be gone after the first shot. Now he's
>>saying it'll be gone after the fourth one. Now I am scared...what if
>>the pain never goes away? When he did a pelvic exam he siad the endo is
>>still there but its shrinking. I've switched to a mostly macrobiotic
>>diet; i think its helping b/c when i lapse i definitely feel the
>>consequences. Can anyone offer some insight? has anyone done lupron and
>>still had pain, but it went away after the shots? Also, the doc said he
>>might have to go in do check things out again after the lupron shos.
>>Does this make sense? Isn't the lupron supposed to make it go away
>>completely?
>>
>>Thanks. :)

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