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Re: Misdiagnosis?From: tnkerbl (anonymous@obgyn.net)Tue Sep 23 00:02:04 2008
At Mon, 22 Sep 2008, anonymous wrote: > >Was the doctor familiar with all types of endo? If he/she is not very >versed in endo its very possible it is there and he/she just missed it. >Most ob/gyn only look in the common areas endo is found such as the cul >de sac. It could be possible you also have adenomyosis or endo in the >uterine wall muscles. I had the debilitating right sided pain too and >when I had excision last month it was all over my abdominal wall. Its >possible that scar tissue and adhesions could be the culprit or a cyst >on your ovary. As far as endo going away Im not sure I would accept >that as the drs explanation. I know endo can go into "remission" so to >speak during pregnancy due to the high progesterone levels. > >Is there another doctor you can see in a nearby town? If so I would go >there or try to find a endo or pelvic pain specialist. Also did they >test you for IC? Interstitial Cystitis? It can cause pelvic pain as >well. As far as the bowel issues another poster mentioned I dont think >that is the issue unless your experiencing diarrhea/constipation issues >as well. Kidney stones could be a culprit as well but with kidney >stones you would be doubled over and begging to die LOL atleast I was. >It was the worst pain I have ever felt. I would take 10 c sections >before I would want another kidney stone. > >I would deffinately find another doctor. Do you have pics from your >surgery? If so look and see if you see any shiny spots which is how some >endo presents. Also the pelvic organs will look red and inflamed not a >pink salmony color normal organs are. Look for dark red/powder burn >looking places as well as endo presents like that too. > >Im sorry your having to deal with pain and Hope you feel better and get >some real answers soon! Take Care! >Niki > >At Mon, 22 Sep 2008, Candace wrote: >> >>Did they test for kidney stones? Also, unless he's experienced he may >>not see clear endo, which does exist. >> >>At Mon, 22 Sep 2008, bren wrote: >>> >>>I just had a lap this past Thurs & w/o knowing the results & being home >>>recovering, been having a lot of time on my hands posting on this forum, >>>giving & getting advice, doing research, etc. Anyways, I'm glad to hear >>>that you were able to have 2 wonderful children w/ endo. It sounds like >>>since your endo/adhesions were "cut" out, which is known to be more >>>successful than lasering/buring it out, your endo has not grown back >>>(this is what it sounds like to me)..There is no cure for endo & there's >>>always a high probability for it to grow back (especially w/ just >>>burning/lasering it) & @ times come back worse along w/ something extra >>>such as scar tissue from previous surgery(ies). I know of someone who >>>didn't have the debilitating symptoms of endo & had surgery to get it >>>removed & later had kids & after never had problems w/ endo again, so I >>>know of "success" stories as well. It's just mind boggling how this >>>disease can be so debilitating for some & others who don't even have >>>symptoms besides infertility & how it doesn't matter what the extent of >>>the disease is for correlation to the extent of pain one experiences. >>>For some reason w/ women's pelvis pain or disease, lots of time I hear >>>"it'll be better after you have kids", which I find ironic-maybe has >>>something to do w/ hormone levels changing when u get pregnant & >>>afterwards since it seems like hormanal imbalance seems to be the cause >>>of a lot of women's pelvis pain &/or any disease going on., Well, the >>>pain that you have & from what the new Dr. said how no endo was found, >>>doesn't mean that you were misdiagnosed w/ endo in the past or that you >>>don't currently have pain. It sounds like since you've had surgery >>>before, you probably have scar tissue from the previous surgery that >>>could possibly of gotten larger or spread to other areas that could most >>>definitely cause pain. I had my appendix removed in 2003 & later had >>>pain in the same area & close by areas as well & I was told by doctors >>>that it's always possible that scar tissue can cause pain. Even from my >>>lap a few days ago, altho' I don't know my results, I remember the >>>doctor telling me that I had quite a bit of scar tissue that spread from >>>my appendectomy, which is one reason for some of my pain. I've also had >>>bowel issues eversince my appendix was removed (irregularities & pain). >>>Did you ever get the update on papsmear & ultrasound? If you did & if >>>they haven't called you, that usually means that results came out >>>normal. This doesn't mean that you are imagining your pain. Obviously, >>>somethings not right if you are having pain & if tests come out normal, >>>it just means u need other tests done, but it is very likely that you >>>have scar tissue from your previous surgery that is causing your pain or >>>maybe bowel problems such as constipation or IBS or other abdominal >>>problems that causes pain..I would try to see a GI Dr. as well along w/ >>>another Obgyn specialist or see your primary care Dr. to get referrals >>>and any other tests ordered. Hope this helps. >>> >>>At Mon, 22 Sep 2008, lorimjc wrote: >>>> >>>>I was diagnosed with moderate endo in 1992. A year later I got pregnant >>>>with my first child and my second child in 1997. In November of 97 I >>>>had a tubaliagtion and at that time my obgyn said there were 'some >>>>adhesions' which he cut and some spots which were cauterized. Flash >>>>forward to 2006. My pains became extremely uncomfortable again and I >>>>found myself at another obgyn in a new city. He suggested a scope which >>>>I agreed to as previous ones did aliviate some of the pain before. He >>>>went in, did the scope and told me a week later that there was no >>>>endometriosis present. >>>>Can it go away? I felt so negated and have not returned to the obgyn >>>>since. (We only have two in this city and the other is not >>>>recommended). Again, I'm dealing with pain, having gone to the ER this >>>>week & having a CT Scan done to rule out appedicitis and any bowel >>>>concerns. I have the pain through my right side. It feels like >>>>something pulling from my ribs down to my hip. I feel like a total nut >>>>job looking for attention, which I'm not. >>>>On a side note, my family physician sent a request to this particular >>>>obgyn SIX MONTHS ago for me to get a pap & ultrasound....still haven't >>>>heard anything. >>>>Any suggestions? >>> >>>-- >>>Bren >>> >>-- >>Candace >> >>Wishing for pain free days for all! >> Thanks for the advice, Yes my Dr. specializes in that area of practice. I had a D&C in july and was sent to pathology and thats how he diagnosed me with adnomiosis. then sent it off again after my hystorectomy and thats how he found I had endometriosis, and yes thank God for my two children. I lost 10 babies though in the process and had very high risk pregnancies. I will ask my dr tomorrow when I see him about kidney stones. But the pain is identical to the pain I had before all in my right side abs and in my lower back and down into my legs.... I really thankyou for your advice and I will look into other possiblities... thanks again TNKERBL
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