Re: Misdiagnosis?
From: Candace (anonymous@obgyn.net)
Mon Sep 22 21:05:03 2008
Did they test for kidney stones? Also, unless he's experienced he may
not see clear endo, which does exist.
At Mon, 22 Sep 2008, bren wrote:
>
>I just had a lap this past Thurs & w/o knowing the results & being home
>recovering, been having a lot of time on my hands posting on this forum,
>giving & getting advice, doing research, etc. Anyways, I'm glad to hear
>that you were able to have 2 wonderful children w/ endo. It sounds like
>since your endo/adhesions were "cut" out, which is known to be more
>successful than lasering/buring it out, your endo has not grown back
>(this is what it sounds like to me)..There is no cure for endo & there's
>always a high probability for it to grow back (especially w/ just
>burning/lasering it) & @ times come back worse along w/ something extra
>such as scar tissue from previous surgery(ies). I know of someone who
>didn't have the debilitating symptoms of endo & had surgery to get it
>removed & later had kids & after never had problems w/ endo again, so I
>know of "success" stories as well. It's just mind boggling how this
>disease can be so debilitating for some & others who don't even have
>symptoms besides infertility & how it doesn't matter what the extent of
>the disease is for correlation to the extent of pain one experiences.
>For some reason w/ women's pelvis pain or disease, lots of time I hear
>"it'll be better after you have kids", which I find ironic-maybe has
>something to do w/ hormone levels changing when u get pregnant &
>afterwards since it seems like hormanal imbalance seems to be the cause
>of a lot of women's pelvis pain &/or any disease going on., Well, the
>pain that you have & from what the new Dr. said how no endo was found,
>doesn't mean that you were misdiagnosed w/ endo in the past or that you
>don't currently have pain. It sounds like since you've had surgery
>before, you probably have scar tissue from the previous surgery that
>could possibly of gotten larger or spread to other areas that could most
>definitely cause pain. I had my appendix removed in 2003 & later had
>pain in the same area & close by areas as well & I was told by doctors
>that it's always possible that scar tissue can cause pain. Even from my
>lap a few days ago, altho' I don't know my results, I remember the
>doctor telling me that I had quite a bit of scar tissue that spread from
>my appendectomy, which is one reason for some of my pain. I've also had
>bowel issues eversince my appendix was removed (irregularities & pain).
>Did you ever get the update on papsmear & ultrasound? If you did & if
>they haven't called you, that usually means that results came out
>normal. This doesn't mean that you are imagining your pain. Obviously,
>somethings not right if you are having pain & if tests come out normal,
>it just means u need other tests done, but it is very likely that you
>have scar tissue from your previous surgery that is causing your pain or
>maybe bowel problems such as constipation or IBS or other abdominal
>problems that causes pain..I would try to see a GI Dr. as well along w/
>another Obgyn specialist or see your primary care Dr. to get referrals
>and any other tests ordered. Hope this helps.
>
>At Mon, 22 Sep 2008, lorimjc wrote:
>>
>>I was diagnosed with moderate endo in 1992. A year later I got pregnant
>>with my first child and my second child in 1997. In November of 97 I
>>had a tubaliagtion and at that time my obgyn said there were 'some
>>adhesions' which he cut and some spots which were cauterized. Flash
>>forward to 2006. My pains became extremely uncomfortable again and I
>>found myself at another obgyn in a new city. He suggested a scope which
>>I agreed to as previous ones did aliviate some of the pain before. He
>>went in, did the scope and told me a week later that there was no
>>endometriosis present.
>>Can it go away? I felt so negated and have not returned to the obgyn
>>since. (We only have two in this city and the other is not
>>recommended). Again, I'm dealing with pain, having gone to the ER this
>>week & having a CT Scan done to rule out appedicitis and any bowel
>>concerns. I have the pain through my right side. It feels like
>>something pulling from my ribs down to my hip. I feel like a total nut
>>job looking for attention, which I'm not.
>>On a side note, my family physician sent a request to this particular
>>obgyn SIX MONTHS ago for me to get a pap & ultrasound....still haven't
>>heard anything.
>>Any suggestions?
>
>--
>Bren
>
--
Candace
Wishing for pain free days for all!
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)