ENDO Messages for September, 2008: Re: lap vs hysterectomy

Re: lap vs hysterectomy

From: bren (anonymous@obgyn.net)
Mon Sep 22 16:42:31 2008

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Forgot to mention-I should also mention just in case it wasn't brought up to you by your doctor, that depo provera can be given by injections or taken orally as in my case & instead of taking this progesterone pill for 15 days, stop for 15 days, & start again 15 days, it can be taken regularly to completely stop your period. There's also other forms of birth control pills that stops your period every month & you only get your period like every 3 months or something like that. Did you just have your son? I heard of women who start their period a little after they stop breastfeeding & initially their periods are prolonged & heavy, like if it's never going to end. Like I said, your doc should offer lots of treatment options & I agree w/ him that you should avoid a hysterectomy. From your family history of hysterectomies, did they all have complete relief & did they try any other treatment options besides the lap before deciding to have a hysterectomy? Just a thought. Also from extensive research & reading stories of many women who had a hysterectomy, it just seems like majority of those who had a hysterectomy before trying many other treatment options all regretted having the surgery to remove their uterus either because of worse symptoms after (such as hot flashes, menopause symptoms etc., having to take another pill everyday that gave them neg. side effects, or because their endo still grew back in other places & they still had pain). What kind of pain & symptoms do you have now besides what you mentioned & what treatments have you tried & what was it like for your grandmother/family members after they had their hysterectomies?

At Mon, 22 Sep 2008, Karen wrote: >
>I am new to this site and I am looking for some advice/comfort from
>others going through the same thing. My doctors have unofficially
>diagnosed me with endometriosis and pcos. By unofficially I mean they
>look at blood work, symptoms, and various other test results and say
>that it what it is (basically short of a lap which I know is the only
>way to know 100% that it is endo). I am in severe pain, have
>unbelievably long (up to a month and half) and heavy periods and I just
>want to get out of the pain in one shot with a total hysterectomy and
>have them take everything. The only problem is that I am 26 and because
>of that the doctor doesn't want to do a total hyst but do a lap instead.
>I am happily married with one son and my husband and I agree that our
>family is complete (so much so that before this started with me he had
>gone to a pre-op for a vasectomy but had to put off the surgery because
>of this). My fear is that if they do a lap, I will still have problems
>and they will have to go in for a total hyst anyway and that means 2
>surgeries with 2 recoveries. Let me add that endo apparently runs in my
>family: grandmother, 2 of her 3 sisters, and their mother all went
>through numerous laps and all had to have total hysts in the end anyway;
>and my mother who, was able to avoid the painful side, had to go through
>numerous D&Cs to get pregnant. Should I just listen to the doctor and
>try the lap and then the hyst if needed or should I keep pushing to get
>him to do the total hyst that I want. Thank you in advance your
>responses.

--
Bren

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