Re: I need help - I don't trust the doctors to help me & I feel like I'm 90
From: anonymous (anonymous@obgyn.net)
Thu Jul 31 11:37:47 2008
I'd get the review, and then decide what to do re: that.
I'd go to ratemds.com and get reviews of doctors near me, to try to
figure out who could help me in other areas.
I'd contact doctors who do take insurance, such as endoexcision.com - Dr
Robbins in Maine - and Dr Iris Orbuch in NYC.
There's another doctor who takes insurance in NYC, Dr Seckin
At Thu, 31 Jul 2008, Kathy wrote:
>
>Okay, I will try to keep this as short as possible, but there's a lot of
>things wrong with me (or so I suspect). I don't really trust the
>doctors anymore and you all are so well educated in these areas, I'm
>really hoping you'll be able to help me. I'll give you a (hopefully)
>brief history.
>
>Had pelvic pain and nausea since I was about 15 or 16. I saw my PCP for
>it until I was 22, who just kept telling me that it was IBS or that I
>wasn't eating right. I started BC when I was 17. Nobody believed there
>was anything legitimately wrong with me because the doctor said there
>wasn't, but you know your own body. I lost a couple of jobs from
>missing time but because there was no "medical reason", there was
>nothing I could do. My PCP also used to do my paps and exams and all
>that so finally at 22, he referred me to an actual OB.
>
>I started seeing my OB who immediately suspected endo. He did a
>laparoscopy and removed some. Unfortunately I didn't know enough
>through any of my surgeries to ask specific questions as to where it
>was, and the information was never imparted to me. I do know that he
>said I had a golfball sized adhesion behind one of my ovaries, and endo
>on my bowels as well as some place in my reproductive areas (again, he
>wasn't specific).
>
>Since my first lap 9/02, I had another one 4/04, 7/06 and 7/07, if
>memory serves correct. Each time endo was found and removed. I also do
>not know what method was used to remove the endo - I didn't know enough
>to ask.
>
>Now my OB has been out of the office for months and may be retiring. I'm
>getting a copy of all my records to send to the CEC. However, I doubt I
>will be able to go and have anything done as I have horrible insurance
>coverage and I'm on an Intermittent FMLA from work. If I don't go in, I
>don't get paid and I can't afford to miss all the time I would have to
>take off to fly to GA. I'm hoping someone here will be able to help me
>with a few things. I have been having some really weird things going on
>with me and I don't know if they're endo related or not. I am going to
>go to my PCP for some tests, as I have suspected things from CFS,
>Fibromyalgia, Candida, etc. If anyone can tell me if they've had these
>things happen and what worked or what I should ask my doctor to test me
>for, I would appreciate it.
>
>Here's what I'm experiencing: First and foremost, I am 28 years old and
>I feel like I'm 98. My entire body is achy and my joints feel stiff. I
>have no energy regardless of how much sleep I try to get. Because of
>this, I have not seen most of my friends in over a year. I have no
>problem falling asleep but staying asleep is another story. I cannot
>remember the last time I slept thru an entire night. I cannot regulate
>my body temp...I'm constantly ping-ponging back and forth between
>freezing and sweating. I'm dizzy all the time. Headaches a lot (I
>never used to get them). Pain and nausea (of course). One of the
>weirder things is my thighs, hips and butt have been aching to the point
>where it almost feels like a pinched nerve radiating down my legs. My
>hip pain almost feels like my hips are going to break when I walk. My
>hair has become dry and brittle and has been falling out.I'm very
>irritable and emotional.
>
>I've already met with a gastroenterologist who has done a colonoscopy
>and an endoscopy (EGD) and nothing was found with my stomach or
>anything. It seems like each doctor either wants to chalk everything up
>to endo or wants to refer me to someone else. I feel so overlooked and
>I feel like I'm viewed as a whiner and a complainer but if they just
>knew how bad this was, they wouldn't say that.
>
>I'm on the Nuva Ring - my OB put me on it to "help with pain around that
>time of the month". But what he doesn't seem to get is that it hurts
>ALL the time, not just at that time of month. Plus the only options I
>ever got from him for treating endo were the standard "get pregnant, get
>a hysterectomy, get a laparoscopy or go on Lupron". I will not go on
>Lupron as I've had severe depression in the past and I fear what the
>mood swings will do to me. I am not getting pregnant - my boyfriend is
>only 24 and there is no way we are ready for that. I don't want to keep
>getting laps, but there is no way I am going to get a hysterectomy at
>28, even though some days I would be more inclined to just tell them to
>rip everything out if it'll just stop the pain.
>
>Can anyone offer me any type of advice, please?
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