ENDO Messages for July, 2008: Re: interstitial cystitis

Re: interstitial cystitis

From: Jennifer (anonymous@obgyn.net)
Thu Jul 31 11:03:44 2008

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In reply to: anonymous: "Re: interstitial cystitis"

Hi Anon,

I have IC, just diagnosed this month. There is a common link between Lupron and the shrinking of the urethra that causes IC and its symptoms. I had a cystoscopy (sp?) on the 21st of this month. Luckily, I had no ulcers or damage inside my bladder, thank goodness. I don't have all the names of the things but he did fill my bladder with a certain fluid that helps deter the symptoms and cramping of IC. Again, i apologize for the lack of verbage on this. I did not go to a urologist for this, my Gyno actually did the procedure. It was in his office and they put you under. My doctor did not use narcotic based "twilight", this is the name of the antestia (sp?) that they use, so I was alert and awake 30 minutes after the procedue. That was great. You will have to have someone drive you and you are not allowed to drive all day. Anyways, sorry I am off the point...

I have recently been seeing a Registered Dietician (RD) and she put me on Aloe Vera Juice (mix it with water) and Flax Seed pills to help with the cramping. I know I had horrible bladder cramps. Since beginning all of this treatment I have been doing really well. I would suggest you speak with your doctor, like always, or talk to a dietician too. Doctors, in my opinion, use too many pharmaceuticals to "cure" things that could be cured on the natural side. I wish you luck in your research and please feel free to contact me at my personal email with any questions.

Thanks! Jen Adee

At Wed, 30 Jul 2008, anonymous wrote: >
>Yes, I think they both are supposed to be good for both. Flax seeds can
>help balance hormones, I've read.
>
>try googling ''IC diet'' for help on IC diet. Both aloe vera and flax
>seeds can make you go to the bathroom (move your bowels) so be careful
>of too much!
>
>This is a great book,
>
>http://endometriosis.org/key.html
>
>http://endometriosis.org/nutrition.html
>
>At Wed, 30 Jul 2008, anonymous wrote:
>>
>>I was wondering if anyone out there has used Aloe Vera Capsules for
>>helping with IC?
>>
>>I also was wondering if anyone knows if Flax Seed Oil is supposed to be
>>good for endo or IC?

Next message: Jennifer: "Re: Post-lap periods"
Previous message: Maura: "Re: I need help - I don't trust the doctors to help me & I feel like I'm 90"
In reply to: anonymous: "Re: interstitial cystitis"

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