ENDO Messages for July, 2008: Re: Free Fluid in Pelvis: PLEASE HELP!!

Re: Free Fluid in Pelvis: PLEASE HELP!!

From: kat35423 (anonymous@obgyn.net)
Thu Jul 31 09:30:42 2008

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At Mon, 26 Feb 2007, Nicole wrote: >
>I've had so many doctors seem completely unconcerned by the fact that I
>have Endometriosis, just as in your case. I don't know how many times
>I've been in the ER complaining of severe pain (usually a ruptured cyst
>which can leak fluid into the pelvic are and cause severe pain,
>infections, fever etc.) I get abnormal sized cysts which rupture all the
>time. I know exactly what they feel like and the signs/symptoms. The
>doctor's always shrug and say "well Endometriosis probably has nothing
>to do with this, you probably have appendicitis" I'm like HELLO I have
>ENDOMETRIOSIS, and I do not have appendicitis...I have no appendix!
>Endometriosis is serious! Why won't you listen to me! And the truth is
>most doctors don't know crap about it! So when a doctor shrugs, or seems
>totally unconcerned get rid of 'em. I've gotten to the point where I
>don't trust anything a doctor says (yes this is sad) but I've been told
>more lies than truth. Unless I'm talking to an Endo expert. Even if
>your doc is an OBGYN...I've found most know little about
>Endometriosis(also very sad). I once went to an OBGYN who listed on her
>website bio as having experience with treating Endo. When I saw her,
>she looked at me shrugged and said "Well, Endometriosis is tough to
>treat, so there's not much that I can do for you" I was
>appaled...needless to say I never paid her 350 dollar fee to hear her
>blow wind at me! I simply never went back to her and looked for another
>doc. It's ironic that a lot of the women I talk to who have Endo, don't
>have a good GYN, or they go through like 10 or 20 before finding a good
>one that knows about Endo. I couldn't believe this woman claimed to be
>"experienced treating Endometriosis" and she basically said-sorry I
>can't help you because I don't know anything about treating Endo, I
>lied. Anyway...I would suggest that if you are not happy with your
>doctor (for whatever reason, even if you've been with her/him awhile) go
>seek out a doctor who is an expert in Endo. I don't think it is
>something to shrug off for example, if you are getting free fluid in
>your pelvic area. It is very common for women with Endo to get large
>abnormal cysts which rupture and cause free fluid in that area. My
>guess would be that this is probably what is causing the free-standing
>fluid you have. If you want to talk to me more about this problem feel
>free to email me: "meenee@gmail.com" I have a long history of ovarian
>cysts/ruptured cysts, endometrial cysts, so I can tell you all about
>'em.
>Grrr it makes me so upset to hear about doctors like this...at least she
>could have said "sorry I'm not sure what is causing this, but you may
>want to see a specialist since I'm not that familiar with Endometriosis.
>As women with this disease, we need to learn as much about it as
>possible, so we can protect ourselves from mis-information and those
>doctors who may do more harm than good. When in doubt, seek another
>opinion.
>Good luck with everything.
>-Nic
>
>At Fri, 23 Feb 2007, sheila wrote:
>>
>>At Sun, 24 Jul 2005, michele wrote:
>>>
>>>I had a CT scan done a couple of months ago due to GI problems I was
>>>experiencing, and have been experiencing for quite some time. My scan
>>>also revealed fluid in my pelvic region....and like you, I paniced.
>>>However, when I went back to the doctors how ordered the results, she
>>>was completely unconcerned. She did seem to care or think anything of
>>>the fact that I have endometriosis, and I was still concerned because I
>>>was disappointed with her lack of acknowledgement of the fluid, so I
>>>went to my OBGYN to discuss it. He, too, was unconcerned, and said it
>>>could be the result of a ruptured cyst. He also ordered a pelvic
>>>ultrasound to make sure I did not have anymore cysts. I felt happy
>>>after my visit with him because he is a great doctor, and he ordered the
>>>ultrasound as well. Just as someone else replied, I'm sure if there was
>>>a reason for concern they would've directed you to the hospital. But I
>>>agree, waiting is the worse, especially if you're the type of person
>>>like me who always thinks the worst. I had to wait a few days as well
>>>and was frustrated, but like I said, nobody was too concerned. Hope
>>>this was helpful.
>>>At Fri, 22 Jul 2005, Jill wrote:
>>>>
>>>>Hi All,
>>>>Has anyone had a CT scan that showed free fluid in the pelvis? My scan
>>>>was yesterday by my GI's request. She is sending the results back to my
>>>>GYN. They feel it may be a burst cyst. I started my period, too. Can
>>>>a period contribute to free fluid? This is my first period after six
>>>>months of Lupron therapy.
>>>>
>>>>I've had endo problems for a long time now, but free fluid freaks me out
>>>>b/c I was bleeding internally from a ruptured ectopic preg. for 10 days
>>>>and almost died in Dec. 04. I know I am not preg. now.
>>>>
>>>>I'm shaking right now; I'm so scared. I just called my GYN to give her
>>>>the heads up about the CT results, but it's Friday at 4pm. I'm not
>>>>expecting a call back, even though I let her know how important it was
>>>>to me.
>>>>
>>>>Any information anyone has on this subject would be much appreciated.
>>>>Why did I have to get this news on a Friday afternoon??!!
>>>>
>>>>Help!
>>>>
>>>>--
>>>>Jill
>>>>
>>>>--
>>>>Jill
>>>>
>>I know exactly what you mean about being upset over having free floating
>>fluid in the pelvis. I had a ct of the the right hip to rule out a
>>orthopedic problem but all that showed up was FREE FLOATING FLIUD IN MY
>>PELVIS !!!!!! I had never heard of this before. I did think the worst,I
>>saw my doctor who ordered an ultrasound of the pelvis that showed the
>>same.So now I am to have a ct of the pelvis.I searched the internet for
>>days to even find this problem, which I have yet to do. Reading your
>>e-mail at least gave me some hope knowing that someone else has at least
>>heard of this problem.I wish you the best with your situation.I will
>>follow up with the ct scan. The lack of concern that my doctors are
>>showing may be a good sign as well.I do wish that some information out
>>there did exist for this problem. good luck
>>
>>--
>>sheila
>>

Hi, i have been in a lot of pain for months now and evertime i go to doctor they say i must have STD, they do tests and always come back negative. they have been brushing it off for ages until i demanded an ultrasound. it showed free fluid around my ovaries. now they wont tell me what that means and whats wrong with me. from the little information i have got from them i think i have cysts on my ovaries but they wont confirm it. they say we will do a couple more tests. why are they hidding information from me. im so scared that it could be something serious. i have all the symptoms of being pregnant and constant cramping, i cant have intercourse with my boyfriend as it hurts too much. does any1 else have these problems at if so what is it?

--
katrina

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