ENDO Messages for July, 2008: Re: INTERSTITIAL CYSTITIS/ADENOMYOSIS/SURGERY AT CEC

Re: INTERSTITIAL CYSTITIS/ADENOMYOSIS/SURGERY AT CEC

From: anonymous (anonymous@obgyn.net)
Thu Jul 31 01:02:15 2008

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At Mon, 4 Dec 2006, holly wrote: >
>definitely follow that diet. it's surprising how much is off-limits,
>but if you follow the diet, you'll feel better. even though it's really
>boring.
>
>also, sress triggers flares bigtime. one of my urologists told me that
>taking anti-histamines when i'm stressed will help reduce the pain. it
>seems to work.
>
>i've tried bladder instillations where they put medication directly into
>the bladder via a catheter, but after several a week for several weeks,
>i wasn't showing enough progress and stopped them. i do take urelle (an
>antispasmodic) when i flare, and right now vesicare is helping with the
>uregency. i've tried all sorts of stuff, and so far, stress-reduction,
>diet changes and vesicare are the best things for me. my job is very
>stressful though, so i have to really be careful with what i eat.
>
>everyone is different. what triggers a flare in one person may not
>affect another. what works to treat one person may do nothing for
>another. read as much as you can about it and learn all you can. find
>a good urologist (i've finally found a good one) and make sure your
>ob/gyn is working with the urologist to treat your pain. endo pain and
>IC pain are very similar, and both need to be treated correctly.
>
>good luck to you.
>
>~holly
>mild endo/IC
>
>At Mon, 4 Dec 2006, g wrote:
>>
>>Leslie writes :Pamela I understand the pain you are going through. When
>>I first got
>>>diagnosed with IC my DR gave me some kind of bladderpain pills. It
>>>helps alot if you do not drink any caffine. there are web sights you
>>>can go to get the does and donts of eating. Another thing is to try to
>>>stay stress free. Lesie
>>
>>--
>>
>>Hey Les not a bad idea ... Heres a greta link! I need to look at it
>>myself ...
>>
>>IC DIET LINK :
>>http://www.ichelp.org/TreatmentAndSelfHelp/ICAndDiet.html
>>
>>At Mon, 4 Dec 2006, leslie wrote:
>>>
>>>At Mon, 4 Dec 2006, PAMELA wrote:
>>>>
>>>>I have not been on this forum in a while. I do however go in from time
>>>>to time to stay updated.
>>>>
>>>>I just had excision surgery by Dr. S
>
>inervo at the CEC in Atlanta. He
>>>>did a wonderful job & removed all the Endometriosis. I did not have it
>>>>real bad (I have Stage II Endometriosis) but I had in several different
>>>>areas (sigmoid colon, bladder, uterus, ovary, fallopian tube, some other
>>>>areas on & around my uterus) plus a few adhesions. He also removed my
>>>>appendix. He did a cystoscopy & found that it looks like I have the
>>>>beginnings of Adenomyosis in my uterus. He also did a Cystoscopy &
>>>>something where they fill up your bladder where they can look in it to
>>>>see what is going on. He said I had moderate to severe Interstitial
>>>>Cystitis.
>>>>
>>>>If someone could let me know what Adenomyosis is & if they have it & if
>>>>it is something that I should be really worried about (especially since
>>>>it is just in the beginnings)
>>>>
>>>>This Interstitial Cystitis stuff is really bad. I have been hurting all
>>>>weekend. I am set to go to my internal doctor tomorrow to see what he
>>>>can do. Does anyone have this? What does your doctor have you on to
>>>>treat it? Are you on a special diet to help? What do you take for the
>>>>pain? I have tried everything & nothing helps (not even percocet). How
>>>>do you sleep, especially with getting up all night having to pee all the
>>>>time & always feeling like you never get any sleep? Do you take anything
>>>>to help you sleep?
>>>>
>>>>I would love it if anyone could E-mail me back with some tips.
>>>>
>>>>Thanks,
>>>>Pamela
>>>
>>>Pamela I understand the pain you are going through. When I first got
>>>diagnosed with IC my DR gave me some kind of bladderpain pills. It
>>>helps alot if you do not drink any caffine. there are web sights you
>>>can go to get the does and donts of eating. Another thing is to try to
>>>stay stress free. Lesie
>>

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